Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Wow - you are all so talented. I am so uncoordinated that playing a musical instrument is way beyond me and it is actually a kindness to people's hearing if I don't attempt to do that. Family members are still scarred from my attempts on the recorder. But that doesn't stop me from appreciating the wonderful skills of others @tougholdcrow and @intolight.
@tanya_djamila, my sympathies about dentist appointment. They can be extremely stressful and painful afterwards.
@sondraf, so sorry about the hair loss. In your pocket with hugs.
@chicagoan and @intolight I hope you both begin to get energy back soon. In your pockets with hugs.
In everyone's pockets with lullabies for those who are having trouble sleeping like @micmel.
Re: My Husband, My Life, My Love, My Family, My Cancer
Just want to weigh in with my own experience regarding a couple of scan results:
Had a previous bone scan report state "increased uptake, suspicious for metastases", which turned out to be a fracture, not a tumor. CT scan revealed the fracture clearly.
More recently, an xray of my thoracic spine (where I had rods and screws placed) noted "laminectomies present". I did not have laminectomies during spinal surgery. Emailed my surgeon to confirm the report was wrong, and he said "yes, it's incorrect, that's why I review them myself."
It's so emotionally difficult getting these scans, and then adding in potential error when the scans are read...ugh.
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
Hey Malleemiss251 - Thank you so much for the Koala good thoughts and supports. They are much appreciated. Holding out for a possible mistake or misreading on my part or something, until the onc at least, weighs in. I do not want to go off the drug regimen I'm on now. Fingers crossed.
Re: My Husband, My Life, My Love, My Family, My Cancer
Sondra-losing your hair in clumps must be very distressing. Wearing the gaiter sounds like a good temporary solution until you can get some cute wraps.
Intolight-I can relate to the lack of energy. I did a load of laundry and cleaned up the mulberries on my sidewalk, dishes next but I'm taking a break. I think I'll sit outside this afternoon without any guilt for "doing nothing."
Re: My Husband, My Life, My Love, My Family, My Cancer
@sondraf So sorry to read about your hair. This disease is tough enough without the added downheartedness of losing your hair.
I would love for us all to sit together in the living room listening to music and enjoying each other's company. I would bring out my keyboard or join you all with my cello if I had any strength…
It is a beautiful day here. The plants and trees are planted and life should be good, but I just don't feel good. I want so bad to be able to do stuff, but instead I find myself sitting in my chair doing nothing much. I washed the dishes and hung my summer wreath on the front door, but now I have no energy left. It is even tough to crochet today. Sorry—just needed to vent.
Re: My Husband, My Life, My Love, My Family, My Cancer
Hard to keep up with the thread, but if I really were in Mel's living room, I might not be so chatty, but I would play you Scarborough Fair on my new guitar.
Re: My Husband, My Life, My Love, My Family, My Cancer
This thread is about to blow up qith cuteness overload. Omg theo AND buster!
Things here ok, tho hair is coming out now in handfuls which is distressing. I found a neck gaiter and am wearing it as a head covering to keep the hair on for now until I can get to the hair specialist next week and I'll get some wraps and coverings in the meantime. Its quite painful on the old scalp, but keeping it covered seems to have helped and maybe get me used to this, but the hair is gonna go next week I think.. Oh and I got my lymphedema clinic appt moved up a week at least, never hurts to call and ask.
sondraf
Re: My Husband, My Life, My Love, My Family, My Cancer
here we are bedtime again. Wish me luck. I’m never sleeping too good lately. I’m so fatigued dying the day I need to nap. Maybe cut it down. Sigh. I don’t know anymore. Life with cancer sucks. Plain and simple! Goodnight
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
Candy - You so get it about those reports! I also remember reading a DJMammo post here some time ago, where DJ explained that radiologists actually write the report for the next radiologist who will be dealing with the same patient - not even for the PCP or MO, etc., much less the patient. We and our regular doctors are not the audience the report is directed toward at all, so no wonder they read strangely to most of us. Also, I too have even wondered sometimes if I even have cancer! In my situation, I think it is wishful thinking, but I get it, and why someone would wonder, after to you read all this stuff.
Cookie - Thanks, and I am hoping the oncologist will have something helpful and uplifting to say tomorrow. Intolight's did, am I really glad for her. Also, Buster is soooooooooooooooo cute! Thanks for sharing the wonderful photos. Especially like the "on the water" one. He looks like he's wearing a corsage and ready for a date.
(I love it when Candy and Cookie post close together - makes me think of "cookies and candy" and who wouldn't have their mood raised by that alone?)
Mel - I am so glad that you have Theo. He seems to bring you so much joy and comfort. Hard to believe he is a whole year old now. May you have many, many more together!
