Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
I completely agree about the clothes shopping. I do not last out in public long. I can barely sit through a dinner with out extreme pain and discomfort. It is completely depressing. I feel like if the sun hits my skin, I’m going to melt away in a matter of seconds. I also breathe on one lung and the heat isn’t my friend. I miss the go whenever you want to do whatever you want to do feeling. When I think back about two years before diagnosis, I started having extreme fatigue and I had no idea why. I thought it was aging. I was like 43. We’ve come to determine l, I had cancer at least a few years before diagnosis. Was the only symptom. Makes me so mad. Cut down in my prime. We all have been in ways. I’m sorry for all of us. I truly am.
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
Thanks everyone - I did make it home that night but I can feel the mouth sores and tender gums starting up already from that darn antibiotic.
@sunshine99 I lost 15lbs on Afinitor, mostly due to lack of appetite, but that wasn't until like month three. Just keep an eye on it, but its known to cause weight loss.
@shanagirl oh I feel those pains too for sure - I hope you got a good rest in and they finally subsided!
Think Ill go make myself a small Coke float. Weve had huge downpours here the last few days and two big booms of thunder this afternoon. I feel sorry for those folks at Wimbledon who have to put the covers on and off because half the time its sun then you turn around and its pouring rain again!
sondraf
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove Happy happy Anniversary to you and DH. That’s wonderful !!!!♥️
@sondraf gentle hugs sweet one.🩵
@mkestrel I am definitely not a camper. Give me air conditioning, a lovely room with a view, a great bar downstairs, and a pool and a beach 🏝️ 🏖️ 🌊. But Eve that is just too much for me lately with the way I’ve been feeling…..
Hi everyone here! Going to bed now.
So on Tuesday last week,I had my oncologist follow up with lab work and the Fasoldex and Xgeva injection.. I felt ok and I surprised myself and attended the annual Neighborhood Christmas in July party and barbecue for the 4th of July. I didn’t eat much,but everyone was so glad to see me and happy that I “look great”.😊 I have to admit, It felt really nice to put a pretty summer outfit on and do my hair and makeup. It did me good to get out and sit in the beautiful breeze on the Barnegat Bay and watch the 4h of July fireworks 💥. It’s always a. Celebratory event here watching the Boats all lit up and chatting with some of the young neighbors with their children in carriages there to see the fireworks that a lot of neighbors shoot over the water. Also we can see the Seaside Heights and other beach towns like Ortly Beach and Lavalette, and Oceangate all shooting theirs off too.. It was a long hot day and I said my goodbyes and walked home with DH. I got all comfy, got into bed with my pugs and IPad and TV and was glad to be home.
Since Wednesday I’ve felt so horrible with bone pain, headaches, coughing all night and feeling exhausted all day. I can barely get out of bed and walk with leg and pelvic pain. Forget the stairs. I am so slow going up and down I feel like a 95 yr old. Woman.🙄
I’m thinking it’s those injection SE’s and the bone mets in my spine and sacrum and also arthritis all combined together. Ah well, back to reality again. I need to go to bed early. 🩵
Re: My Husband, My Life, My Love, My Family, My Cancer
Can I rant here? I know some of you still work, but I can't anymore and besides, I'm retired now, but I miss shopping for clothes. I just don't have the energy. I used to go clothes shopping and enjoyed trying on new things even if I didn't intend to buy much. I shop online when I just need the shopping therapy, but it is not the same. My DD takes me out shopping every couple of months when I ask, but I don't last long. Anyone else feel this way? I don't really go out much anymore to even wear nice clothes, but I get tired of wearing the same tops and stretch pants even if it is at home or to the doctor's. And now I need to wear something convenient for labs or port access. Ugh. Something else this stupid disease has taken away from me!
Re: Bone Mets Thread
Hi everyone, I hope you're all having a good day today - I take it one day at a time.
My Pet/CT results came and the remaining small mets are getting less active, so the doctor is happy and we will put the next scan to 4 months instead of 3. I asked if we can take a break from Xgeva (had it for 6 months now) and he agreed to take it every 3 months instead of a monthly dose - I'm just trying to reduce the amount of needles I have each month.
@sondraf I'm bruising much more easily now, and having more paper-cuts and my healing is slower…my lab results are good so I think it's because of the medications I'm taking (Kisqali+Zoladex+Faslodex+xgeva).
@jen1 I think it's completely normal to still grief the diagnosis. Everytime I remember where I was 6 months ago I sob.
1) It's one of the reasons I asked my doctor to have Xgeva every 3 months instead of a monthly basis, I worry about my jaw bones. Actually I'm noticing a yellowish color and stains that are unusual, given I'm not a smoker and I don't drink coffee. I usually go for a cleanup at the dentist every 6 months, but I'm visiting the dentist tomorrow (3 months after my last visit) and I hope everything is fine.
2) I agree with others, you need to check with your doctor first…mine told me water sports, Pilates, yoga, spinning and high intensity training are good, especially for the menopause symptoms. I did a surgery in my back and I believe the only things I'm not allowed to do is: normal bicycles and anything with jumping.
3) I didn't do any radiation, but what helped greatly with my pain (lower back, going into my right hip and the back of my right leg > since before my recent diagnosis and treatment) is physiotherapy…it's like magic to me! I do a recovery session once/week (like a medical massage) and it helps so much. Stretching also helps. When everything fails I take a painkiller, but it doesn't work so much because I think the issue is that the muscles are very tense and squeeze the nerves, so relaxing the muscles is my key.
4) I'm working and I think for me it is key to remain sane. I need to be doing other things than being a patient. I'm turning 39 soon though, so I am not close to retiring age and I was already in the hiring process of a new job when I got my MBC diagnosis. I love what I do, I work remotely, and I'm not sharing my medical situation, so it's good for me to have a work routine, meetings, calls about things I care about, instead of cancer. What I decided though is to work 4 days/week and drop stressful tasks…
I do work related stress management strategies…and I try to swim and exercise as often as I can. I do psycho-therapy too, on regular basis…my mental health issue is mainly anxiety and not depression, so maybe also we tend towards what we have tendency for. I also take a herbal sleep aid because the medication messed up my sleep.
Much love to everyone <3
Re: My Husband, My Life, My Love, My Family, My Cancer
Mel, Theo is adorable as ever!
SondraF - yay for you insisting on a little common sense. I hope things have sorted themselves out and you are home and comfortable.
Mkestral- I love your nature pics. I'm so glad you had the opportunity to get out and enjoy. My DSD really wanted to get out and kayak on the lake today, but couldn't get anyone to go with her. Two years ago, she and I went out, but this year, I just didn't feel like it was something I could physically do. How the heck did that happen?!
Irish - Happy anniversary!
I know there are more that I wanted to respond to...but that was on the last page...
We've had a busy weekend here with all the (grown up) kids visiting. Lots of fun, sun, and food! We got quite a bit of rain on Friday, but it brought our temps from 104° to 64° in less than 24 hours. I can't tell you how wonderful that felt, rain or not. Warmer today, but still comfortable. The daughters are leaving tomorrow, and my son will stay one more day before he heads back. It's been so much fun!
seeq
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree well this trip was easy because my sister did all the cooking lol I only packed lunch. There was a lot of hammock and lounge chair time, bird watching. Here's some more pics
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
Here's a picture from Bear Valley where I went camping this week. We slept in hammocks, kayaked in the creek and relaxed in the cool weather. Now I'm back down into the 100+ ugh! I want to get more supplies and go back. I thought I sunburned my lips but it has been getting more painful and now there is a blister so it's the Afinitor.... feeling better after dexamethasone wash and some cream. Will see what happens and labs shots day Monday.
Wishing all a better day tomorrow
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
sfcakes, Ava is starting to pay less attention to it. It is not noisy unless I turn it to turbo which is loud and probably could freeze me where I sit even at 75 which I find comfortable.
tougholdcrow, I am glad you husband is doing better. Thank goodness for the meds we have nowadays but yeah, that can be a running joke for both of you with him getting a plague vs the terminal breast cancer.
Mel, must not miss commenting but Theo looks quite happy and well taken care of.
Re: My Husband, My Life, My Love, My Family, My Cancer
Hey all, happy post-fourth. I am on an island. Just before we left on this vacation, a very strange thing happened. My husband contracted an infection from a bacteria which is a close cousin of the medieval plague. Nobody can figure out how he got it. No, we did not sail here on a ship full of rats. I did ask, how could my husband (whom I do love madly) outdo me with a terminal breast cancer diagnosis. Oh, contract the plague! Who would have guessed? He doing very well now. Thinking of you and all of your wonderful stories and wishing you all a sorrow-free and plague-free weekend.
