Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Sondra May Enhertu get rid of the stragglers inside and perhaps the change in drug helps your appetite as well. In your pocket either way. I can empathize with the drug changes for sure causing upheaval as well in your body, I hope this one sticks and you are moving to one that works with few SE.
Cookie, yes, the fellow was very nice to help me, it sure was appreciated.
The tortilla with leftovers of breakfast yesterday of egg, lentils and pasta was really good being covered with cheese. Tortilla was well done on the edges but was fine Today was just a peanut butter and chip tortilla, feeling lazy and hungry. Will have a boost shake this morning for the nutrients, likely have mini pot pies tonight.
Got Paratransit booked for Wed for Herceptin, did that on Sunday and called today for a friday routine Echo as well today. Will not be so busy next week.
I hope everyone has a good day, in pockets for everyone who needs me.
Re: What brings you joy in your summer? Weigh in and share your experiences in the topic below.
Sitting by a body of water makes me smile, the ocean really takes me to the highest joyous level
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove, great bird story!
Our local Raven pair (Edgar & Elvira) must have shown their young where to get a quick meal because a group of 3 have been flying around our cabin, squawking and briefly landing next to the bird bath feeder on our deck railing. They’re fun to watch and play much more than the adults do.
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Will be thinking of you today. Going for my CTscan checkup of my liver today. Not at intrusive as yours but still stressful. Been "off" the last couple of days looking for some joy somewhere…
Re: My Husband, My Life, My Love, My Family, My Cancer
Good morning lovely Ladies of Mel's Livingroom🥰
No news to for me today. I’ve been a little lazy about following along everyone’s latest struggles and good news. Just skimming and checking randomly individuals that catch my eyes like @irishlove and some of you other lovelies🩵. Weekend. Was uneventful for me. Today I have my 6 month follow up with GP and tomorrow I go for my Surveillance ultrasound Mammogram for 2020 diagnosis of LCIS in my remaining breast. 🙄Ihate this appointment. It’s such an intrusion on my sense of security and my time. A 21/2 hour drive up Paramus NJ at the Breast Center….. I really hate going for all these appointments for tests.
Love to you all today and wishing everyone nothing but good 😊💕
Re: My Husband, My Life, My Love, My Family, My Cancer
We made it back to London and it was a very nice visit indeed. Everyone calmed down eventually and I was able to manage my anxiety with some herbal items lets say, so that helped too. It was very hard to say goodbye to my parents but they are coming to visit next month anyway. I experienced some incredible kindness of strangers on our return, including two men who made it their mission to get me a chaise lounge in the Flagship Lounge and wheeled me straight over and another man who helped lift my leg on. Or the people asking if they could get me a plate of food or anything, just really lovely. And the tedious mobility bus thing at Heathrow I got stuck on almost ran over one of my electronic music heroes who I spotted coming off the LA flight, so that was extra cool too, I was 2 inches away from him!
My scans were bad today as I expected so I'm moving off abraxane and on to Enhertu. Thanks to my insurance I have access to this drug as its not currently approved on the NHS. I'm very grateful and really hope it works and also I don't get lung pneumonitis again. I've lost more weight and thr nurse and onc both commented on it (my cheekbones are insane!) but I just don't want to eat. Its so very frustrating to know I only have two hot spots of cancer in the bone that just aren't responding to anything, everything else is clean as a whistle. Just need a win and some hope again, hope is getting low in the tank for sure.
Re: My Husband, My Life, My Love, My Family, My Cancer
What a cute bird story, would love to have seen that! I was out in the garden this morning listening to the quail. The doves were chasing the kestrel around.
Re: My Husband, My Life, My Love, My Family, My Cancer
HI sweet ladies. Hope you all are keeping cool and painfree. Mara I love pizza with just about anything on it, except snails. Don't like snails on my pizza or in my flower garden. lol. Shanagirl, thanks for the heads up on cough syrup. GP recommended Desym (Sp?) but we didn't feel it made a difference.
The RN home care nurse was 4 hours late. I felt really bad for her as she had a "difficult" case. I told her she could cancel but she insisted on keeping the appt. Going to start P.T. at home to get these legs strengthened. I don't know how to work thru the pain, but I guess I'll just figure it out. No sightings of Booty but another black and white persian was just turned in today at the local Humane Society. I'll head up Monday to check.
Cute bird story for you. I was watching the bird feeder when this strange bird came up and couldn't plant the landing right. He was hanging on for dear life and I notice he had a long beak. He gave up and went into the crepe myrtle tree. Aha, his Mama was waiting for him and she flew down to the feeder to show the juvenile woodpecker how to maneuver bird feeders. I laughed so hard. He came back and managed a few seeds. Hilarious to see him hanging on to the feeder.
In pockets for all your needs.
Laurel
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi everyone. DH has finally turned the corner. It's been 3 weeks. His cough subsided for the most part and he's not so winded and gray looking. His O2 level is in low 90's, so improved. Thank you everyone for your support with a stubborn man.
I had a 7 a.m. appt. with neuro. I don't get up till noon. Then a 1:30 appt. with GP. Neuro looked at my MRI scan and felt my problems are not MS. Hmmm, MO looked at scan and felt my problems were not cancer. So after 10 rounds of radiation completed just 2 1/2 months ago, I'm right back where I started from with terrible lower back pain, over hips and genitalia area and femurs. I have decreased strength in legs and a whole lot of burning and off balance. MRI of brain scheduled for Aug. 23. Home health coming tomorrow to evaluate Phys. Therapy and other needs. I'm wondering if a brace may help, or cortisone injections. Guess we'll discuss it tomorrow. GI issues cleared up since lowering Ibrance dosage from 100 to 75. Hurray for that win. The air temp feels like 105 here, over in Orlando 115. It's so brutal I can't go out, especially with MS. My legs just melt under me and I get confused. Also noticed my tremors have increased substantially.
We put a stool in the kitchen so I can sit on it to do a little cooking. Today was crock pot bbq sweet baby ray's sauce, chicken. DD made perioges and we had a nice meal. Too hot to heat up whole kitchen. In pocket's for all and all your needs and thank you for you love and support.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove Is a virtual urgent care appointment in your system an option for your DH? It would at least get things rolling for them to get him the extra help he needs without having to go in. I have started there and found it really helps. I keep it in the same health system (For me it is UCHealth) so they can quickly refer me to my MO or PCP and they can read the portal. Just a thought.

