Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
here we are bedtime again. Wish me luck. I’m never sleeping too good lately. I’m so fatigued dying the day I need to nap. Maybe cut it down. Sigh. I don’t know anymore. Life with cancer sucks. Plain and simple! Goodnight
micmel
Re: My Husband, My Life, My Love, My Family, My Cancer
Candy - You so get it about those reports! I also remember reading a DJMammo post here some time ago, where DJ explained that radiologists actually write the report for the next radiologist who will be dealing with the same patient - not even for the PCP or MO, etc., much less the patient. We and our regular doctors are not the audience the report is directed toward at all, so no wonder they read strangely to most of us. Also, I too have even wondered sometimes if I even have cancer! In my situation, I think it is wishful thinking, but I get it, and why someone would wonder, after to you read all this stuff.
Cookie - Thanks, and I am hoping the oncologist will have something helpful and uplifting to say tomorrow. Intolight's did, am I really glad for her. Also, Buster is soooooooooooooooo cute! Thanks for sharing the wonderful photos. Especially like the "on the water" one. He looks like he's wearing a corsage and ready for a date.
(I love it when Candy and Cookie post close together - makes me think of "cookies and candy" and who wouldn't have their mood raised by that alone?)
Mel - I am so glad that you have Theo. He seems to bring you so much joy and comfort. Hard to believe he is a whole year old now. May you have many, many more together!
Re: My Husband, My Life, My Love, My Family, My Cancer
Good morning from Buster..sending you doggie love…..
cookie54
Re: How long have you been Stage IV?
In one month, I hit year 13! I’ll quote The Grateful Dead, ‘What a long strange trip it’s been…”
exbrnxgrl
Re: How long have you been Stage IV?
Originally diagnosed 2A when I was 37. Diagnosed Stage IV at age 42. Mets to spine. I’ve been Stage IV for 8 years and counting.
Re: How long have you been Stage IV?
3 years, I have been working part-time and have mostly been fine except for the side effects from the treatment which are manageable.
The pain in my hip has become consistent in the last few months. The scans show everything is stable so not sure what is going on.
Re: My Husband, My Life, My Love, My Family, My Cancer
My oncologist just called. She conferred with other radiologists and they all think it is just a finer resolution of what has been there before. Different types of scans show things clearer and in different types of tissues, etc. It fits with our discussion of CT, vs, Pet, vs MRI vs bone scan. So she wants me to keep on with my current treatment and she will rescan in three months. I am good with this. I have had liver metastasis since my first scan eight years ago so I think this may be right. My cancer also seems to grow slowly and my markers are unchanged with no new symptoms. Different scans have showed different things in my liver in the past. Thank you for your prayers and letting me take you with me on this wild journey.
Re: Ibrance (Palbociclib)
@Greatly blessed thank you for your prayer. I've actually been feeling terribly depressed. And this coming hot on the heels of a good CT-SCAN report?? It's like Murphys Law is tailing everything i do. I even started asking myself if it's a curse 😢😢😢. Its a long story. That's why I appreciate your prayers.
Yes I do have different side effects from IBRANCE each month. Makes me wonder whether the medication and disease are battling for supremacy all over my body. Since December the infections have been regular and really bad, and then May was ok. Even managing to go for Zumba, which I stopped coz of my arthritic
knee. Normally the fatigue is overwhelming.
Cancer is completely unpredictable. Sometimes I feel like it has ears, and is keeping tabs on what we say. Silly me 🤣🤣🤭.
It's a relief to discuss with people who truly understand when you discuss side effects etc. Everyones experience here has taught me something valuable that I've applied to myself, especially @brutersmom with the alternative IBRANCE scheduling. That has been a lifesaver for me ❤❤. My Oncologist had to agree to it, albeit reluctantly. I realised they dont like ideas coming from patients coz as doctors, they believe they should be the initiators. But I've also realised these support group discussions expose us to more varied treatment options and management of side effects than even our Oncologists are exposed/aware of.
Sending prayers, love and hugs to all in this group from out here in Nairobi, Kenya 🙏❤ 🫂
