Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 agree about the upheaval of another drug change - this will be my fourth in 15 months. But I felt relief that we are switching as the anxiety of knowing things were not improving on this drug and wanting to move to something that will was upsetting. I want to get the show on the road here!
Re: My Husband, My Life, My Love, My Family, My Cancer
Safe journies for those testing and for loved ones coming to visit. I hope the MO's figure out a game plan and implement it without difficulty. By now I should have adapted to living scan to scan, but in reality I haven't. Aha, there's a pill for that called lorazapam, I'm allowed to take 1/2 tablet if I find I am getting too anxious. It does work and doesn't leave me loopy.
@illimae Oh I love the crow stories. My two or three adults come every morning sqwaking for food. They love the dry cat foot that I put out for raccooms and possums.
Today mom and pop cardinal were mouth feeding there juvenile. It was so sweet to see. A dove decided to use the birdbath and that too was adorable. The best up squirrel makes he was up the pole to the bath area and enjoys a good fresh drink, too. They sure keep me entertained.
I'm gonna switch gears here to share a brief portion of a health related clinical trial. I can't recall all the info but what caught my eye made my head spin. The teams were looking at women who have developed Non-Alcoholic-Fatty-Liver-Disease. I looked the subject up since my last scan mentioned I have steachosis of the liver (related) and this shocked me. Turns out they found certain drugs can create this problem, including tamoxifen as it's used to reduce estrogen. No further information on other SERDS, but I'd say it's a fair bet that any SERD will do this. Good question to ask MO what they can do to protect our livers?
May each and everyone of you have a blessed day and pain free too. In pockets for good scans and Shanagirl hope your trip wasn't too exhausting. Laurel
Re: My Husband, My Life, My Love, My Family, My Cancer
@sondraf I’m sorry you had bad scans but I’m encouraged that you’ll be able to get Enhertu. It has been challenging but my results have never been so good for so long and I wish the same for you.
Re: My Husband, My Life, My Love, My Family, My Cancer
@sondraf So sorry you have to make another change. Here's praying this one works well for you.
@irishlove Thanks for the info. I have a fatty liver and have wondered how it happened. Maybe…
I received my CT scan results already (yes, they are fast here and post quickly on the portal.) It appears everything is good except for some confusing language around my pancreas. ("It could be this, or that, or something else…") They also said my liver issues would show better on an MRI…I got the CT because the MRI showed something on the liver and it was suggested I needed a CT scan. Argh! I thoroughly believe the radiologists are just covering themselves and it is a game going back and forth because noone wants to commit. I will just need to wait for my oncologist to respond but I think I am good for now. I am glad since I just reduced the dosage on my Verzenio. Still don't feel any better, but maybe emotionally I will improve now.
Re: My Husband, My Life, My Love, My Family, My Cancer
Sondra May Enhertu get rid of the stragglers inside and perhaps the change in drug helps your appetite as well. In your pocket either way. I can empathize with the drug changes for sure causing upheaval as well in your body, I hope this one sticks and you are moving to one that works with few SE.
Cookie, yes, the fellow was very nice to help me, it sure was appreciated.
The tortilla with leftovers of breakfast yesterday of egg, lentils and pasta was really good being covered with cheese. Tortilla was well done on the edges but was fine Today was just a peanut butter and chip tortilla, feeling lazy and hungry. Will have a boost shake this morning for the nutrients, likely have mini pot pies tonight.
Got Paratransit booked for Wed for Herceptin, did that on Sunday and called today for a friday routine Echo as well today. Will not be so busy next week.
I hope everyone has a good day, in pockets for everyone who needs me.
Re: What brings you joy in your summer? Weigh in and share your experiences in the topic below.
Sitting by a body of water makes me smile, the ocean really takes me to the highest joyous level
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove, great bird story!
Our local Raven pair (Edgar & Elvira) must have shown their young where to get a quick meal because a group of 3 have been flying around our cabin, squawking and briefly landing next to the bird bath feeder on our deck railing. They’re fun to watch and play much more than the adults do.
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Will be thinking of you today. Going for my CTscan checkup of my liver today. Not at intrusive as yours but still stressful. Been "off" the last couple of days looking for some joy somewhere…
Re: My Husband, My Life, My Love, My Family, My Cancer
Good morning lovely Ladies of Mel's Livingroom🥰
No news to for me today. I’ve been a little lazy about following along everyone’s latest struggles and good news. Just skimming and checking randomly individuals that catch my eyes like @irishlove and some of you other lovelies🩵. Weekend. Was uneventful for me. Today I have my 6 month follow up with GP and tomorrow I go for my Surveillance ultrasound Mammogram for 2020 diagnosis of LCIS in my remaining breast. 🙄Ihate this appointment. It’s such an intrusion on my sense of security and my time. A 21/2 hour drive up Paramus NJ at the Breast Center….. I really hate going for all these appointments for tests.
Love to you all today and wishing everyone nothing but good 😊💕
Re: My Husband, My Life, My Love, My Family, My Cancer
We made it back to London and it was a very nice visit indeed. Everyone calmed down eventually and I was able to manage my anxiety with some herbal items lets say, so that helped too. It was very hard to say goodbye to my parents but they are coming to visit next month anyway. I experienced some incredible kindness of strangers on our return, including two men who made it their mission to get me a chaise lounge in the Flagship Lounge and wheeled me straight over and another man who helped lift my leg on. Or the people asking if they could get me a plate of food or anything, just really lovely. And the tedious mobility bus thing at Heathrow I got stuck on almost ran over one of my electronic music heroes who I spotted coming off the LA flight, so that was extra cool too, I was 2 inches away from him!
My scans were bad today as I expected so I'm moving off abraxane and on to Enhertu. Thanks to my insurance I have access to this drug as its not currently approved on the NHS. I'm very grateful and really hope it works and also I don't get lung pneumonitis again. I've lost more weight and thr nurse and onc both commented on it (my cheekbones are insane!) but I just don't want to eat. Its so very frustrating to know I only have two hot spots of cancer in the bone that just aren't responding to anything, everything else is clean as a whistle. Just need a win and some hope again, hope is getting low in the tank for sure.

