Best Of

@goldensrbest Glad your scans are good and you are ready for your knee replacement. You are brave!

@sondraf Sorry you need a treatment change. We are all on a roller coaster of treatments.

@tanya_djamila I have been thinking about getting a Covid booster in the fall also. Didn't get one last year and I am real hesitant as I tend to not do well with them although I get a flu shot every year and do fine.

I am still feeling really crappy and wondering how long it should take for the lower dosage med to feel like it is making a difference. Perhaps I should have taken a short break but it is too late now.

Reading along.

Sondra- Sorry to read you are facing another treatment change. My thoughts are with you.

Intolight- I get MRI's of the abdomen, since my previous MO said MRI's are better at visualizing the liver, and my current MO continued ordering the MRI's when I started with him. Who knows really. Hope your pancreas thing is nothing.

I have always worried that my MO's are not looking at my bone mets enough. I get a CT of the chest to look at the lungs, and there is a "bone window", I guess thoracic spine and breastbone. Then I get an MRI of the abdomen to see the liver mets and the other internal organs (no other mets elsewhere thank goodness). I have only had 3 or 4 bone scans thru all this. But the bone scans light up due in part to the arthritis I have all over. So they don't order routine bone scans anymore. I could be having stable liver mets, but progression in the bones, and I would never know. I cannot go by symptoms, as my arthritis hurts all over- hands, shoulders, low back, hips, knees. But my labs are ok, and maybe they can tell on the labs if there is bone progression- calcium level, etc. Who knows.

sondraf Glad you finally enjoyed what sounds to me as a delicious easy high calorie drink. Thinking of you as your off to your infusion and sending positive thoughts for a smooth day. Hugs.

intolight Glad your scan was good! I hope it's something to hang your hat on for now to boost your mood.Yep there is lots of CYA in radiology. Always have to read between the lines…annoying

Mara Hope your Herceptin goes well today and the Paratransit ride is smooth. In your pocket today and always.

Thinking of all here and sending strength and sunshine to you today.🌺

Goldens, so good to hear good news about your scan results! I would be wondering the same thing if they were delayed...

Intolight, also great to hear about your scan results! I feel like I read the notes with a grain of salt now, and wait to talk with my MO, since the radiologists don't always get it right.

Sondraf, thinking of you, and hoping that enhertu can work well for you. You definitely need a win!

Tanya, I'm waiting for the new covid vaccine coming out this Fall, the latest covid strains have different symptoms and I want to build up as much immunity as I can. My last dose was last Fall.

I miss my husband. My house painting is done and I'm slowly putting the artwork back on the walls - feels hard to get inspired when he's not here to see it. My next set of scans are next month, and if they're okay, want to plan another (short) trip with my Mum.

So it took forever as my scans were last Tuesday but results just posted to my patient portal as I was on my way to meet with my MO this am. Good news is that I remain stable for which I’m so grateful. My mind started playing tricks thinking CT is being held because something is bad. It’s part of the worrying that we all do with this stinkin’ disease. I’m all set for my right knee replacement on Tuesday and will get a break from Ibrance for 2.5 weeks. Since I’ve been on it for 5 yrs my blood work is starting to drop a bit more when I get labs done. Looking forward to that little vacation 😅.

Sondra - so sorry you had progression again. Fingers crossed that the new med will kick the beast within and help your pain.

Here for pocket duty for all in need🥰

Sondra, glad you had a good visit and that they are coming to London tomorrow. I empathize about lack of appetite and also moving drug to drug takes a lot out of you. Hopefully sleep will come easy for you, in your pocket, could tell you more of my cooking ideas to send you off to sleep.

Have to shout out a random guy who used to live here, was taking out garbage which was 4 layer bag and bag of recycle cardboard. I rolled the garbage bag down the stairs, he saw me doing that so he grabbed my stuff and took it over. That was nice of him and I dropped the huge box the portable washer in as well. Glad it is out.

@snow-drop yeah, I do worry that we have been changing around so quickly,but the bone biopsy showing the shift to HER2+ was a shocker and neither of these tumors is very small and unfortunately they are a)growing quickly and b) impacting quality of life. I asked about cryotherapy again and both are too large for that, radiation isnt an option as it failed on the hip, and my providing trust is very very conservative so anything else novel like surgery wouldn't be an option. I want to get started on Enhertu and then send my scans off to the US for a second opinion read. My MO sat on both these tumors for too long and they just have not 'behaved as expected' - well geez, sorry about that but surely you have seen this before?

@illimae Im hoping for the best but been burned too many times this last year. If it can resolve the hip pain and allow me to walk more easily in the future ill be happy with that, despite the side effects.

Had hubs get some fancy chocolate milk for me thinking that would be appealing and calorific (it was go to when I was on the cycling team in college and we had low appetite from training/races but needed to eat/calories) and boy was it ever! Mixed that + some Califa coffee drink over ice this morning and it was like just inject this straight into my veins! Finally some easy fast calories I can tolerate without having to mix up some powders or blend anything.

Alright, off I go to my infusion, lets hope for no allergic reaction this time and that it works quick.