Best Of

Hello all you lovely ladies. I caught up on each post. Now to remember, lol. @sondraf I wish your sweetheart was there beside you to enjoy the beauty you have bought into your home. Keeping engaged and motivated may hopefully lessen some of the pain of your loss. @micmel It is difficult to hear of friends and family vacationing and we are stuck at home. I try to find crafty things to do, or a great book. Sometimes I wonder the plants twice a day just to get out the door. If I can swing it, tomorrow I want to hit a thrift store or at minimum Ross's. Money's tight, but I saw some cute ideas using Dollar General and thrift finds. In pockets for all scans and change of meds and hoping for excellent results.

I had two nurse visits at home today. I'm so exhausted as one came early and one came nap time. lol. But one is working on trying to find lymp massage therapist for me. They both want me to crank up walking an hour a day. Little weak and dizzy, but I'll give it a try. I do better in the pool, but I need someone to watch me. DH saw his GP. Lungs are clear, but he still sounds froggy. So GP agreed to Xray and blood tests. Interesting tidbit about covid, GP said most folks do not die of covid but infections that occur afterwards as they are too weak to shake those infections.

May your tomorrow be bright and pain free.

Laurel

Hey Mara, any ideas for no carb diet? I have to prep for PET scan ugh 😩 I have eggs, black beans, cottage cheese, fish, lettuce. I'll probably live but I'm bread a holic lol. No sourdough toast with my egg! The torture!

I'm nervous about the scan.There was progression to liver so I was taken off Verzenio, changed treatment to everolimus and now off again because of the mouth sores. I've felt worse in general lately. The heat and smoke haven't helped.

@goldensrbest I hope your surgery goes well and have a speedy recovery.

@sondraf I can relate to the treatment change roller coaster and hope yours goes well.

A hug to you Mel and all others going through so many things.

Here's the wicked witch queen of the sugar syrup and all three rose of Sharon bushes. Mean little bird thinks she owns it all, chases everyone else away!

I’ve been here checking on you all. Haven’t had much to share. My best friend just went in this amazing vacation with her family. I saw all the fun pictures of excursions and things they did . I am so sad I can never be that family . It makes me so mad. I sit in my chair or lay in my bed , drive to the store on rare occasions . I do nothing. Nothing. Nada. It gets to me and I get in a funk . I’m in my funk now. Just know I’m here and love all you ladies. I’ll snap out of it in a few days! Hugs to all. In pockets as needed though! Sondra. Thinking of you.

tanya - there is a new strain circulating now for which the old vaccines won't cover so frankly, getting a vaccine now won't cover much. Im also waiting for the updated versions for fall and in the meantime doing the handwashing/sanitizing and masks as needed.

Infusion went well - I fell asleep lol. Got a bunch of post infusion meds to take next three days and it was a lot of instructions but I think I can handle it. Bonus in that the new chemo suite menu FINALLY appeared (there had been rumors!) and changed from the god awful stodgy sandwiches/wraps of the past to something a bit more healthy/interesting. I had lemongrass risotto cakes with sweet potato keralan curry and ate 3/4ths of it - was really pretty tasty. Hey, you got to take your wins where you can get them! :)

@goldensrbest Glad your scans are good and you are ready for your knee replacement. You are brave!

@sondraf Sorry you need a treatment change. We are all on a roller coaster of treatments.

@tanya_djamila I have been thinking about getting a Covid booster in the fall also. Didn't get one last year and I am real hesitant as I tend to not do well with them although I get a flu shot every year and do fine.

I am still feeling really crappy and wondering how long it should take for the lower dosage med to feel like it is making a difference. Perhaps I should have taken a short break but it is too late now.

Reading along.

Sondra- Sorry to read you are facing another treatment change. My thoughts are with you.

Intolight- I get MRI's of the abdomen, since my previous MO said MRI's are better at visualizing the liver, and my current MO continued ordering the MRI's when I started with him. Who knows really. Hope your pancreas thing is nothing.

I have always worried that my MO's are not looking at my bone mets enough. I get a CT of the chest to look at the lungs, and there is a "bone window", I guess thoracic spine and breastbone. Then I get an MRI of the abdomen to see the liver mets and the other internal organs (no other mets elsewhere thank goodness). I have only had 3 or 4 bone scans thru all this. But the bone scans light up due in part to the arthritis I have all over. So they don't order routine bone scans anymore. I could be having stable liver mets, but progression in the bones, and I would never know. I cannot go by symptoms, as my arthritis hurts all over- hands, shoulders, low back, hips, knees. But my labs are ok, and maybe they can tell on the labs if there is bone progression- calcium level, etc. Who knows.

sondraf Glad you finally enjoyed what sounds to me as a delicious easy high calorie drink. Thinking of you as your off to your infusion and sending positive thoughts for a smooth day. Hugs.

intolight Glad your scan was good! I hope it's something to hang your hat on for now to boost your mood.Yep there is lots of CYA in radiology. Always have to read between the lines…annoying

Mara Hope your Herceptin goes well today and the Paratransit ride is smooth. In your pocket today and always.

Thinking of all here and sending strength and sunshine to you today.🌺

Goldens, so good to hear good news about your scan results! I would be wondering the same thing if they were delayed...

Intolight, also great to hear about your scan results! I feel like I read the notes with a grain of salt now, and wait to talk with my MO, since the radiologists don't always get it right.

Sondraf, thinking of you, and hoping that enhertu can work well for you. You definitely need a win!

Tanya, I'm waiting for the new covid vaccine coming out this Fall, the latest covid strains have different symptoms and I want to build up as much immunity as I can. My last dose was last Fall.

I miss my husband. My house painting is done and I'm slowly putting the artwork back on the walls - feels hard to get inspired when he's not here to see it. My next set of scans are next month, and if they're okay, want to plan another (short) trip with my Mum.

So it took forever as my scans were last Tuesday but results just posted to my patient portal as I was on my way to meet with my MO this am. Good news is that I remain stable for which I’m so grateful. My mind started playing tricks thinking CT is being held because something is bad. It’s part of the worrying that we all do with this stinkin’ disease. I’m all set for my right knee replacement on Tuesday and will get a break from Ibrance for 2.5 weeks. Since I’ve been on it for 5 yrs my blood work is starting to drop a bit more when I get labs done. Looking forward to that little vacation 😅.

Sondra - so sorry you had progression again. Fingers crossed that the new med will kick the beast within and help your pain.

Here for pocket duty for all in need🥰