Best Of

@sunshine99 Sorry ro hear you are struggling so much with eating issues. Holding you up in prayer.

@micmel and @goldensrbest It is hard to watch others travel. My kids want to do a Christmas cruise but I just told them no for me. I can't even imagine a long flight then seven days of constant activity on a large ship and a long flight back home. No more cruises for me. I need no stress and a restful environment. For me that means home. And yes, I read daily. My son has amazing in-laws who are able to do things with his three sons that I long to do. But I am happy they have this experience with great people. It does make me cry…

@irishlove Glad your DH will continue to get more help but sorry he is still fighting.

Still fighting so much fatigue. I did get out yesterday to order new glasses and eat lunch out. We just have to push through. I agree with Mel that I am in a state of constant funk. And I look around me at the myriad of things I need to do and try not to get depressed about it. It is what it is!

@mkestrel good luck with that PET - Everolimus was a total beast for me that appeared to be working the first month with a drop in tumor markers but had a wicked sting in its tail with that lung pneumonitis. I hope your sores clear up soon and your scan is good though, and you can survive without bread for a bit (look up keto bread for an approximation although it may be more hassle than its worth!)

@micmel I hear you on the funk of always sitting or laying down and rarely leaving the house. It gets to me every day at a certain point (usually before pain pills are due) and I get upset to varying degrees. Lately Ive come to accept it a bit more, but I still struggle with letting hubs do so much for me.

I dont think we are going to travel out of the country again until I have a more functional leg and then it will be to Europe mostly (via train) and for longer than a 'long weekend'. Maybe Asia. Anywhere I dont have to fear a giant medical bill if I get ill but we can park somewhere quiet and restful by a beach. Hubs is going home alone end of September to Sweden because it was a tough trip in the best of times, even worse now I can barely move and all the flight delays and malarky, its just not worth it no matter how much I would love to go. I dont mind, and he can book as cheap a hotel as he wishes lol.

Edit - Can anyone point me to the main Enhertu thread? There are so many, but I think the main one WenninWI was posting in recently and I cant seem to find it. Thanks!

Hang in there ladies. You've got lots of folks quietly rooting for you all.

Your supporters get in a funk too, but I know it's different and probably not comparable to what you all go through.

I find some truth and solace in the lyrics of an old, not very popular Emmylou Harris song called Red Dirt Girl. "One thing they don't tell you bout the blues when you gottem, you keep on fallin cause there aint no bottom."

I hope those of you who are currently fallin do find the bottom and start rising back up.

Mel - I'm so sorry to hear about your funk, but I can really relate also. I get the same thing. It's just so good that we all have each other, because as Tougholdcrow just said above, nobody else can really get it and know what we experience. Hugs and warm thoughts to you.

Nobody who isn't in our shoes can really understand just what this fatigue feels like. I find that acupuncture really works to relieve fatigue and promote a general sense of well being, if you can find a good person. @irishlove I always traveled through books. You can go anywhere, and you don't have to put up with all the hassle. You can go back or forward in time and around the world. You can live lives you've never dreamed of. And you learn much more about the people in these places.

Mel - I know exactly how you feel! Our DD and family travel frequently (in fact we gave them our time share after dx w/MBC and she makes great use of it). I won’t travel out of the country and have no desire to get on a plane for travel in the US. I have too much fatigue and pain to want to go. Plus my lab values are always low and I don’t want to catch something. And yes it hurts to see them enjoying themselves, especially when the other grandparents go. I’ve accepted it for the most part but it still makes me blue.

Sending hugs with wishes for good days for all🥰

Goldens- Congrats on good scans.

Tanya- I don't know about PET's and arthritis. I have only had 2 PET scans in the 7 years with MBC. I cannot remember if they lit up in the arthritic areas. But I know bone scans lite up with arthritis.

I am going to wait until Fall for the next Covid booster. We are having cases in my area now, but I will wait to get the vaccine. I am masking and doing good handwashing for now.

@goldensrbest, so good to hear your news about scans. Thinking of you and wish you the best outcome for knee replacement. In your pocket should you need support.

@mara51506, your ingenuity with so many things is an inspiration. You are truly a "can do" person.❤️

Mel hanging with you until the funk passes. It’s a dark cloud that hangs around.

Thanks for responding about the Covid vacs. I will take your advice ladies and mask and wait. I asked on my patient portal bc I think they should suggest what’s best for us. I don’t want anything extra just enough thanks.

Sfcakes sending hugs don’t know what to say. I hear you though and care.

Tanya

Hello all you lovely ladies. I caught up on each post. Now to remember, lol. @sondraf I wish your sweetheart was there beside you to enjoy the beauty you have bought into your home. Keeping engaged and motivated may hopefully lessen some of the pain of your loss. @micmel It is difficult to hear of friends and family vacationing and we are stuck at home. I try to find crafty things to do, or a great book. Sometimes I wonder the plants twice a day just to get out the door. If I can swing it, tomorrow I want to hit a thrift store or at minimum Ross's. Money's tight, but I saw some cute ideas using Dollar General and thrift finds. In pockets for all scans and change of meds and hoping for excellent results.

I had two nurse visits at home today. I'm so exhausted as one came early and one came nap time. lol. But one is working on trying to find lymp massage therapist for me. They both want me to crank up walking an hour a day. Little weak and dizzy, but I'll give it a try. I do better in the pool, but I need someone to watch me. DH saw his GP. Lungs are clear, but he still sounds froggy. So GP agreed to Xray and blood tests. Interesting tidbit about covid, GP said most folks do not die of covid but infections that occur afterwards as they are too weak to shake those infections.

May your tomorrow be bright and pain free.

Laurel