Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Goldens, happy anniversary, glad you had a nice dinner and in your pocket for the upcoming surgery.
Candy, I empathize with the kind of fatigue you have mentioned because I have it almost all the time as well. Does not matter how much I sleep or anything, I get tired while getting dressed at times so I do top half and bottom half, I sit while I run the hospital bath out of my sink. Laundry and dishes are broken up as well, breaking down boxes, 1 or two per day if a lot of orders. I need breaks during tasks all the time, all that matters is getting the stuff done you want. Speaking for myself, I just have to tell my brain to stop worrying about it now as that will not help me and the energy level is the same no matter how much I sleep or eat.
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl I live on loratadine lol so will consider that one thanks.
My PET scan was stable no new mets but the blazing crater in my liver is scaring me. I have been started on the lower dose of everolimus so hopefully it will help without causing more mouth sores.
Happy anniversary and rapid recovery wishes to @goldensrbest
@candy-678 I think being social is exhausting on a good day and cancer fatigue amplifies it even more! I will be doing something and then hit this wall where everything feels heavy and like malleemiss said slogging through mud (but that brown stuff isn't mud! 💩 💩 💩 💩 ) Also add the brain fog to it. I have to stop, but sleeping won't help.
A couple weeks ago I was shopping and had a massive hot flash, felt dizzy and almost fainted, had to sit for a long time. That was the afternoon after goserelin shot though.
@intolight I hope you feel better. Faslodex shots hurt for days and I don't miss them at all.
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
@candy-678 omg yes! That I my fatigue SameSame.it hits like a ton of bricks all at once, my mind fogs up and actually i feel dizzy. I also get anxious if someone talks too much or a house full of relatives stop over with wine & 🍕. Candy I are all hate feeling lik this but when I finally do get my quiet time to lay down it’s such a relief. Hanks. For sharing that‼️
@goldensrbest In your pocket for a good outcome with your knee surgery. I had both my knees done 5 year apart. I had such good outcomes. They get you up right away and physical therapy starts immediately. You have to be commmitted to it so your mobility comes back. I was doing. 3 mile walks with DH by the8th week after. Ha! Can’t do that anymore since bone Mets& treatment😳
Re: My Husband, My Life, My Love, My Family, My Cancer
@goldensrbest Happy belated anniversary. Praying for a successful knee surgery and recovery.
@irishlove My dermatologist also recommended ceraVe. We love it now. Great product.
My nurse hit something when I got my Faslodex shots yesterday. By the time I got home I could barely walk. It is only one leg affected, but wow! She was so sweet and took her time and was careful in her placement, but I guess it was just one of those things. Boy I hate these! I am somewhat better today but still sore. I will try to rest up, use heat therapy, etc., so that I can manage my MRI tomorrow. Thinking of all you lovely ladies with weddings and grandbabies coming… there is joy when we look for it.
Re: How do you lift your spirits, even briefly...
Being outside with things like water, trees, mountain views, fresh air, etc. helps me a lot. I'm convinced the outdoor air does "extra special" things for us that haven't even been discovered yet. I also understand that plants outdoors (and probably indoors as well) emit chemicals and things that are really good for us in more ways than one. I'm not a gym person at all and one of the reasons is that I think the outdoor air combined with the exercise (walking for me) is key. I'm in the city, and don't have the advantage of a "real" woodsy hike, but I try to make my walks around the urban neighborhood as "hike like" as I can. I go where there are the most trees, fewer side walks, more hills, and shoulder to walk on. I also simply enjoy seeing others out walking; walking the babies, walking the pets, walking the family at times like Sunday mornings. I think the good vibes that other people out walking are feeling and showing, are contagious in a sense. It all just uplifts me. Music is also something that does wonders for me. There is a huge difference in my mood if I just flip the radio on. It lets my mind follow something other than any negative thoughts I'm having. Socializing with friends is also a big help. I don't do it a lot, but if I can spend an afternoon having lunch and conversation with a friend or a group of friends, I feel very renewed. It really allows you to "get out of yourself" and think of other people and subject matter.
It gets harder to walk with these drugs, and I really feel for people like AJ who are having so much difficulty with a drug that they can't walk. It's the one thing I really want to hold on to as long as possible!
Re: My Husband, My Life, My Love, My Family, My Cancer
Candy, yes like that. It hits ya sudden like. And if I'm gone from home and I get back I can't wait for a nap.
Dr said it's my faslodex. Some say it's just cancer. I thought it was my antidepressant. That's working good for anxiety right now. I just hada mammogram cause I want some fat grafting done on lumpectomy site. Results inconclusive. Come back for more images. Ugh. Makes one think of all I know struggling with cancer.
God bless you all.
gailmary
Re: My Husband, My Life, My Love, My Family, My Cancer
Yesterday was our 46th anniversary. Celebrated with dinner at a favorite restaurant, St. Paul’s Fish Market. Knee replacement is at noon today. I’m really concerned going into this one as my fatigue is much worse (although I do get a nice break from Ibrance - 3 weeks!). I start PT on Friday. The PT I worked with for my other joint replacements has moved to a different practice. I really liked her as she understood all the health issues I had and did her best to accommodate them. I’ll be working with the same PT my hubs saw when he had a knee replacement in January.
Sending positive vibes to all in Mel’s living room, with wishes for good days for all! Welcome to our new family members. This is the best place to be.
