This never gets easier. I'm glad Emac shared the picture of her as a rodeo queen. It makes it easier to imagine her as restored and healthy, riding into that great rodeo in the sky. I feel so sad tonight.
It has come to my unfortunate attention that our sweet sister Emac has passed away on June 4th. I know we’ve all been wondering about her and many have been posting about it. Someone very kind took the time to let me know she had been aware of her passing. I’m sick. She was one of our sweet sisters here and I feel devastated for such a waste of a beautiful woman. I am sending love out to her friends and family. I guess we can only say we are glad she’s not suffering anymore and no longer has cancer to fight. Rest in peace sweet friend.
Hello All - I've had a hard time keeping up this last week due to anxiety over this liver issue, etc. I know many have directed some comments to me, and I thank you very much. I'm not necessarily commenting back, because I lost track a bit, but I do read and appreciate everything. I also read about others' struggles and wish everyone well. I've been following the disability stories. Wow, what a mess! I would think that just being stage 4 would be enough to qualify.
I got my fulvestrant shots last Wednesday and then on Thursday had the MRI for my liver (with contrast). Between the shots and the MRI procedure, I've been absolutely exhausted for the last few days. Slightly better this morning, so trying to catch up here a bit. MRI results came in yesterday afternoon to MyChart and my reading of the report says that this radiologist too, saw what he called "multiple metastases" on my liver, just like the CT reading radiologist did. He did note that the size was the same as it was in March, and not as large as the CT seemed to show last week, but that was about the only difference. What I don't understand is this is also what they saw in March on the CT, but were still not calling it metastases. For the last couple of years or more they have referred to stable "lesions" on my liver; one being a cyst, another being a likely hemangioma, and then others "too small to characterize". Well, now they're still indicating a cyst, but calling everything else a "metastases" and I don't quite know why. If it's all stayed about the same size that it has been for a long time, why is it suddenly unconditionally "metastases" in need of more immediate treatment? I also saw where this MRI radiologist said that everything on my liver was "stable", so again, I'm not sure why all the new concern and thoughts about sending me for radioembolization.
I'm sure my oncologist will have more to add to this that is meaningful for sure, but I won't be seeing him again until the first week of July. The stress and fatigue that all of this brings on is unbelievable! Thank you all for being here so I can sound off to people and not feel all alone!
@candy-678 Go ahead and have your pity party…you have earned it and we all commiserate with it! Yes I long to be "normal" and to enjoy my retirement that I worked so hard to earn. My son and his family will be here next week and I so badly want to feel good and enjoy the side trips with my three grandsons. That is my pity party for the day! Thanks for letting me join yours.
@sondraf I hate fighting my thin hair everyday as my hairdresser cut it way too short this time. It sticks up because it is so dry and I am not the spikey type…perhaps I should try it though! It is too hot for wigs and scarves…ugh!
I had a mini pity party this morning. I cried. I just want to be healthy again. To be a healthy 54 year old. To come home from a full-time job, manage my homelife, be active in church. Be normal. Not receive a disability check. Not even have to think about the suggestion of going back out in the workforce part time while managing side effects. Not be exhausted all the time. Not feel useless as an unemployed person collecting a Government check.
I know I have to make the best out of the situation I am in. My pity party didn't last long. But I had to post that I did have that pity party.
I/we did not ask for this diagnosis. And if given the choice, we would not have chosen this way of life.
I hope you can enjoy your weekend. I am going to do laundry, read and watch TV, and go to church on Sunday. And be grateful that the cancer is quiet, for now at least. Things can always be worse…. and will be at some point.