Best Of

@gailmary Any word on your biopsy? Did I miss it? I have small memory capacity right now…

@irishlove It is so wrong that the insurance companies get to make our medical decisions. Hope you can find some stress relief while you wait for your scan. Also pray you are your DH are feeling better.

@sunshine99 Praying Xeloda treats you well and is the right drug to help. You deserve a win!

@sondraf Ugh on the UTI! I get several a year no matter how hard I try, and they are not fun. Your mental breakdown resonates with us all. I am stressed about my latest scan and fear I will cry when I see my onc next… I just know I am losing ground. I am struggling with this latest Faslodex shot and can't tell whether the dose reduction has helped any or not. Stupid, stupid disease!

Thank you everyone for the incredible warm welcome. Good morning. Beautiful day in Hoboken, NJ. Up with the sun ,though tired.Stayed up to watch Kammala Harris accept the nomination for President. Way past my bedtime, but I like the energy surrounding her. Not to get into American politics here, just saying I like the vibe of positivity. It draws me always, brings out my inner YES WE CAN. lol… I should have been a cheerleader, but growing up in NYC and being an artist that was very uncool. So at 65 I’m finding my inner teenager and Pom poms. So funny watching the mind and the heart react to life. But I have to say, I wake up happy, a new day , possibilities and unknown to greet me. Grateful for the beauty of my home, my hubby, the birds outside my window. It helps of course that I feel good. Always easier to be positive when the body cooperates. The invitation is to be present when it’s not. That’s when I reach for my books and meditation practice to support me, breath and let go, let be. I find it nourishing. I go to the kitchen. Cooking is such a happy making process for me, Ilove the chopping and the colors, the mixing, and the tasting. Vegetarian cookbooks have awesome pics and my food never looks like that lol, but its tasty. Garlic and turmeric, kale, peas, mushrooms and carrots in a tempeh stew… love cooking and I love eating! And when the treatment takes away that, I make juices. Have tons of juice recipes and smoothies as my go to when appetite is gone, happy to share. Love my old Jack La Lane juicer and 20 year old blender. Today is kale and pineapple with a touch of mango. Plus Ithink I’ll make fresh apple and ginger as well. It’s Friday !

Big hugs to all who are suffering this morning. This life with cancer is not for the weak of heart. Amazing the resilience that rises in each of us as we sit with what is here to be known. Making space for the tears so important. I cried when I had to learn to self administer the Zarxio shots. I’ve cried each time my treatment plan failed and onto a new drug. Crying is an old friend, sitting at the table with a cup of coffee saying let it out girl. Crying is so good for the soul, it all gets to be too much I know, just throws us out of wack. We are each others strength and love to all - in your pockets with energy to take it one day at a time one treatment at a time, and enjoy the sunshine as you can, best you can. I am your cheerleader too - with love.

@sunshine99 - I'm sorry yesterday was emotionally overwhelming for you. I hope the Xeloda will beat the cancer back down and make you feel better (and be able to eat). How nice that you and your hubby both met with the palliative care nurse and made a connection.

@sondraf - sorry about the cardboard cutout experience, but so glad you have a couple of really special nurses that came to comfort you. That Enhertu is really supposed to be great, so hopefully you'll see tangible results soon. I'll commiserate about the UTI. Until June of this year, it had been closed to 30 years since I'd had one, and now - two months later - I have a second one. No fun!

@mara51506 I had no idea your given name wasn't Mara. I am a Catherine, also. I also wanted to say that I think it's cool that you are so creative and persistent in earning that little bit of extra money. It sure adds up over time, and I get the idea you see it as a (fun) challenge.

Not much going on here. Trying to get guest rooms clean and beds made. My DD is coming for a visit this weekend. :) We met her for dinner the night before our cruise, but it had been a month since we'd seen her before that.

hello Rhonda! Welcome to our little home! We care deeply for each other and make time to give that support only we can understand. Please make yourself at home and become part of the family. Big hugs.

Sending you All love 🤗

Rhonda, welcome to this group, so supportive of each other. I will confess that you will learn that while I am always supportive, I am also obsessed with food, saving money on it and post about it on the daily as far as what I am eating. I also obsessed with laundry. I am glad you are here and in your pocket if you ever need support.

Irish, in your pocket if you have not yet had the MRI, both for the test and the results of that as well.

I had an unexpected trip out with DB and SIL, Costco trip for them, I did pick up some tea but that was it. Went nuts at Walmart, got 3 of the breakfast bowls I enjoyed before, a LOT of reese chocolate, I am pretty disciplined so that will last a while and also purchased a broccoli, cauliflour and cabbage mix, not using for salad so much as bumping up some of the bean heavy meals or adding to tortillas. I have many options I think. I was happy to see both my DB and SIL though.

Oh Carol, I am so sorry to hear this for you. Of course you broke down when faced with another treatment change and you are likely nervous about not being able to eat as well. I am glad that your POLST is being addressed and that DH is with you. I am in your pocket always sending my love.

Catherine

Had visit with MO yesterday. Afinitor's not working, cancer is moving toward 3N, starting Xeloda, stopping Faslodex. I broke down in the treatment room before getting my Zometa infusion. I've never done that. I even cried a bit during the MO appointment. This is getting real. Intake is down to about a cup of rice, split into two portions, and 1/2 bottle of Ensure Clear.

DH went with me to my palliative care appointment. This was my first face to face with her. DH and I really like her. She listened and asked a lot of questions. Filled out the POLST (Physician Orders for Life Sustaining Treatment.)

Will cross post this.

Love to all,

Carol

Hello sweet ladies here at Micmel's front porch. Welcome @rischaller. Everyone here is so loving and caring, that I think you will find great support and comfort. I know I do. As @intolight said "blessed to have all of you in my life". Thinking of you Chris and I know your faith will carry you onward. @mara51506 Thank you for the sweet offer of support should the MRI be scary. Thank you all for your sweet words of support. In pockets for all of you and your needs.

Saw the optometrist today. He sent a referral to my GP for a referral to Opthalmologist, ASAP. Possible glaucoma. I've really tried to get this done and have met nothing but NO's from each office I called. Heck one office hung up on me. Part of it is Humana isn't well liked in this area. Well one good thing is my MRI is at the new hospital. It's beautiful and clean. Plus a tech named Tony is really good at IV's. Take care all.

Laurel

Good evening ladies. In pockets for all your needs.

@intothe light, prayers sent up for a good MRI and hope you find relief after that shot. They are just awful.

@goldensrbest Belated Happy Anniversary. It sounds like a lovely dinner. Best wishes for a speedy recovery on your surgery.

@micmel Oh I wish your husband was home with you. Dogs are fun, but then husbands are, too. Hmm, which one is the most fun?? LOL

Anxious for eye exam tomorrow and Brain MRI Fri. I have cancer in the orbital bones of my Right eye. I'm beyond concerned about spread. It's painful, but not seriously so. Well, the answers will be coming soon enough. I have a wonderful PT coming to the house 2 to 3 times a week. She is head of the city's plant swapping program. She saw our SIL's Madagascar Palm, it's about 6 ft. tall and called me just after she left. She was so excited and asked to swap something for a section. Of course he said yes, so she's giddy with delight. Hmm, wonder if someone could fix me up with a passion flower. Can't find them in local nurseries. Hint to nurse and SIL. LOL

DH finally went for XRAY. It stated he had inflated lungs and other items, related to covid! It' been at least a month and he sounds awful when he coughs. I noticed a wheeze when I cough. Wasn't there before covid. Take this strain seriously folks.