Best Of
Re: Can we have a forum for "older" people with bc?
Well, east coast lost Super Bowl. It was a good game. We enjoyed the gathering, food was great
We did go down to Bonita and heard some good music. Sun was so hot we took our chairs and went far back from the stage to sit in some shade. We’re never happy - too cold vs too hot. 🤷♀️
My stitches from the implant all came out. My follow-up is Wednesday and she would have taken them out if they didn’t come out on their own.
Olympics - Lindsey pushed it and sadly paid a price. She will be recovering for sometime. We turn the Olympics on after the Super Bowl and caught the skiers from earlier, replay of Lindsey.
cindyny
Re: Can we have a forum for "older" people with bc?
Gold medals aren't really made of gold. They're made of sweat, determination, and a hard-to-find alloy called guts.
betrayal
Re: Weigh in: What do you look for in a mastectomy bathing suit?
Lands End has lots of mastectomy choices in swim suits. I’m a uni and made a fob out of netting for the side I’m missing. They also make swim foobs
wren44
Re: Am I being under-treated?
Amerli, you may still wish to get a second opinion. The availability of virtual appointments makes that far easier and faster now. It's great that you have a planner ready to help you organize appointments, track symptoms, etc.
Lyn
vlhvlh
Re: Am I being under-treated?
@vlhvlh Thank you for shoring up my and my MO’s decision. It gives me some peace of mind going into surgery. I am very much a planner so believe it or not the first thing I did was to buy a dedicated planner and have been documenting everything in it. The thing I find most encouraging in your post is that it is possible to one day begin to forget some of this ordeal. I will hold on to that because right now I feel like I will never be free of this.
amerli
Re: My Husband, My Life, My Love, My Family, My Cancer
I know it is superbowl for fans or just a get together with really good foods and a choice of halftime shows as there are a couple to choose from.
I just woke up, nothing on the agenda for me as usual. We are going to be warmer into next week, all this cold was a bit much. Nice and sunny here though today which is nice to see.
I plan to cook up some ground beef to go along with some crispy lentils and rice. I am also trying to pick up a 3 pack of lean ground beef, expecting they will not have any but will find out. I do think it is worth getting lean ground beef since the regular stuff is just too greasy and bad for the digestive system. Later can add an egg into rice, cheese, seasonings and crispy lentils.EDIT They apparently had some of the lean ground beef stuff, 3 chubs for 10 bucks, now am paying tip but also should have ordered other stuff, next time keep minimum order to 35. I only placed order 15 mins ago and it is on its way already.
I hope everyone have a good day, in pockets for all and may the food be good.
Re: All about Xeloda
@eleanora Please update us after you have your meeting. Don't worry about your hair. Remember that early stage ladies are more likely to have lost their hair, too. Although I was the only Stage 4 lady in the group that I ran, I enjoyed the admiration that I received. And I also could share information about the various treatments that were available and how to deal with the side effects.
After my group was shut down, I was on a zoom BC group for several months during Covid. And it was kind of neat since we were all in different stages. But once the initial Covid scare was over, they stopped the Zoom and now just meet in person in Pittsburgh, PA…..35 miles from me. I don't like driving into Pittsburgh at all, so I don't go.
Denise
denny123
Re: All about Xeloda
@airlinegal I am so sorry about your heart attack! I hope that all is well now with no lasting effects. That is so scary!
I have been on Xeloda for over 8 years and it reacts adversely to foods that are high in folic acid. Those foods should be eaten in moderation because they are the reason for the bleeding, burning and infections in our hands and feet. I read about it early on, ignored it, and suffered greatly for 2 years.
Finally, when my feet were so bad that my onc wanted me to stop Xeloda, I remembered the folic acid advice. I had been eating huge spinach salads, and a lot of broccoli, etc. I cut way back on those and for the last 6 years, my hands and feet have only been dry. So just eat those high-folic foods in moderation and you don't have to stop eating them completely. I also stopped taking my multivitamins since they have folate.
I use Aquaphor at night on my hands and feet with socks and food service gloves. Aquaphor and socks during the day, and Gold Bond diabetic cream on my hands during the day. Remember to take the pills a half hour after you eat to avoid nausea. Xeloda has been very easy for me, now that I know how to eat while taking it.
Denise
denny123
Re: STEAM ROOM FOR ANGER
@kathrynw1thasea Could you allow yourself to just feel your anger? Just feel those feelings without wondering if you are right or wrong. Maybe do some journaling to let it out and process it. It would be very hurtful to be left out of the decision making process regarding your parents but at least it is done. I remember about your quilting machine-I'd be angry about that too but maybe at this point you should buy one for yourself if you can afford it. It sounds very much like you've been shut out of everything and that has to hurt. Maybe this can be a new chapter where you can visit your parents as you are able and avoid Sister #3 whenever possible. Nice story about your ex-even though things did not work out, how nice that he is still in your life as a support and that your relationship helped him to be a better husband to the woman he eventually married. Peace to you.
Re: How are people with liver mets doing?
I had a single liver mts in 2017. After 6 months of exemestan (which at that time worked on sing vertebra lession) and liver lession litttle bit grew I had ablation. They were able to do it laparoscopicaly (it was 2.8 cm big) and the recovery was very fast. I exercised yoga after 1 month. Next 8 years - I had liver clean (couple bone progressions) up to November 2025 when 8 new small lessions appeared. So for me ablation was the best thing for my liver st that time.
maaaki