Best Of
Re: Can we have a forum for "older" people with bc?
Love the winter photo with the little deer. Glad you're entertained by the Olympics, Betrayal. I probably like the summer competition better. I do like the ice skating.
I have a hair appointment at 10:30. Not sure what direction/suggestion I will give to my hair stylist. My hair is longer now than it has been in years and is fairly easy to manage. Recently I got out a brush/dryer that I haven't used and started using it instead of relying on the dryer/round brush styling technique.
Guess I had better get moving.
Hi to all.
Re: Can we have a forum for "older" people with bc?
The function of education is to teach one to think intensively and to think critically. Intelligence plus character - that is the goal of true education.
betrayal
Re: My Husband, My Life, My Love, My Family, My Cancer
@chicagoan Great job on the steps.
@shanagirl I am really sorry about the stomach issues among others that you are suffering through. In pockets for a recovery as I do know how miserable they can be.
I've mostly been following the Anne Guthrie likely kidnapping and some politics, mostly related to both the Gordie Howe Bridge between Canada and Michigan that we paid for to provide extra lanes of traffic for businesses. Hopefully it opens without any issue. Canada collecting tolls to pay it off first then plans to split the tolls 50/50. We will see what happens with that.
Re: Stage IV MBC Fitness
@threetree Wow! It sounds like something certainly has a negative effect on your energy. Perhaps @soldanella ’s advice will be something you can investigate and will work for you. It’s certainly a bummer to feel so beat down when we are all trying so hard to be healthy and fit. Best of luck at your next doctor visit!
Hugs, Pam 💗
Re: Stage IV MBC Fitness
@threetree During my first cycle of Xeloda I was extremely tired. I no longer had the energy for daily activities. I complained to my oncologist who told me that my quality of life should be respected; So we reduced the dosage and things were much better afterwards. I still feel tired sometimes, but it's more manageable.
It would be worth discussing this with your oncologist and seeing if the benefit/risk balance allows for a lower dosage or switching to cycles of one week of treatment followed by a one-week break instead of two out of three. The decrease in my tumor markers guided our decision.
I hope you regain your energy soon and that your visit with your oncologist is positive.
Re: Am I being under-treated?
Hi, I have stage lla, grade 3 with a tumor of 2.1 cm. My doctor said I was on cusp of doing surgery first or chemo first. He recommended chemo first and I’m doing that. I’m at Northwestern University and also discussed my treatment protocol with oncologists at Mass General who confirmed they use the same protocol. I’m also getting a virtual second opinion from Dana Farber.
This is our body and our life and you are in control. You also need to trust your doctor and the treatment they recommend but it’s important for this disease to get a second opinion. It’s very common now and sometimes if another hospital’s treatment is different, your treating hospital may implement it.
Each woman with this cancer has different variables that must be taken into account when designing the right treatment. It sounds like you are on top of it.
marcasey
Re: Stage IV MBC Fitness
@threetree Gosh, I'm so sorry to hear about this fatigue, and the uncertainty is so hard to deal with. I hope it's just your body adjusting to the new med and that the side effects will diminish. Really good that you're walking despite it all.
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree I am sorry the Xeloda causing such fatigue and weakness. Hopefully you adjust over more time but is a lot to deal with.
@cookie54 Yes we are warming up starting mid week, we will be just above freezing so could get some melting snow here too. I got a phone call this morning for another CT scan that I have had multiple times, not interested in taking a cab over and do not want to go to the other hospital. Cannot do Paratransit as not enough time ahead to book it. Will do appointments scheduled next week for Herceptin and the heart echo and get them to print up a new schedule, everything has been messed up sonce about November with CT scans, MRIs, surgery and such, I basically took a month off to recuperate with the necrosis news. No side effects at this point. I will let my MO and RO make the CT and MRI appointments but want them at my hospital. If something comes up with the brain again then obviously would go there and decide on having surgery again.
Having pasta and cheese with some seasoning from one of my hamburger helper meals, added some garlic, used up my mayochup, had to add bit of water to pour it out since was almost empty. Will wait a bit with heat off of the burner, go back and take lid off to check, may have to add something else like a mini pot pie to make it more substantial, I will see. The pie would only add to the taste vs make it taste bad.
EDIT did not measure the pasta and the water it was put in to cook so it turned out very liquid even after noodles done up. I did put lentils and cheese in to melt with sour cream to fill in for milk. I did do the mayochup and seasonings above. Extra hard tacos broken up in and a squirt of queso crema and sour cream and lime crema. It was good but realize that I could have just put aside the extra sauce from the dish instead of putting down the drain, it would have made a good dip for something else. I also want to have some sort of potato from one of the cans I have, can drain
Other than that regular chores, bed made, cats will be sad they will lose their place to be, laundry as usual. Three cycles today, regular wash with oxi clean, lysol wash next to remove any germs since was a messy wash and the final vinegar and water with a bit of softener for the scent and then put them in the dryer. Dishes floor and that is about it.
I hope all have a good day, in pockets for all.