Best Of
Re: Starting my 24th year of MBC de novo!
Forward to your 25th Year, a quarter century, @denny123
Re: What topics/experts would you like to see on The Breastcancer.org Podcast?
@missymoo I'm sorry to hear about your old oncologist. That's so unfortunate. I'll definitely post here when I have it scheduled so you all can contribute some questions. Thanks!
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree Sorry to hear you're dealing with some SE with Xeloda. In my experience they started me at a high dose then decreased along the way . As I decreased my SE's became more tolerable for sure! I am currently on 1,000 mg per dose and at my highest dose was 3,000. Hoping that you and your MO can come to a mutual agreement on your dose and your body will adjust. Hugs.
@mara51506 Hopefully you will get back on track with your appointments soon.Seems like they are definitely getting closer to solving this kidnapping I hope she is alive and doing ok. Just awful to put her through all this, fingers crossed she's found safe,
@tanya_djamila It's nice to see you and I hope you're doing well.
@shanagirl You're so sweet caring for all the animals, you have a big heart. Ugh well that stinks dealing with the nagging cough and belly issues again! Waving my magic wand over you that you catch a break soon! Oh I hear ya with the dogs it's been so difficult for them with the ice. Thankfully we are warmer this week and I do see some melting going on. Hope you start to feel better today.
@irishlove How are your ribs feeling? Does t seem like a muscle pull now?
@chicagoan Go chicagoan ! Glad to hear you are getting back to pickleball and lots of walking. Enjoy your night out at the opera.
Quiet morning here, hope to get out for a walk today dodging the snow piles. In everyone's pockets for a good day💐
cookie54
Re: De Novo Stage IV
Hi all! I’ve been mostly reading without logging in, but wanted to check in on everyone.
@denny123 24 years. Congratulations! What an inspiration you are! I hope the rest of us get to experience that milestone.
@superdenovo37 I’m also happy to hear that Enhertu is working well for you. I hope it continues for many years so you can make more memories with your sweet kids!
@jobbibo I’m happy to read you’re doing well too. Great news on the negative scans for 2+ years.
I’m doing good as well. Maintenance HP every 3 weeks, scans every 3-4 months and repeat. I posted a question about my recent low-ish, but still normal, LVEF result from an echo on the HP thread, if anyone has any experiences to share. Thank you in advance!
Thinking of you all - @seeq @bsandra @cyathea @snow-drop @olma61 @illimae @threetree @heidihill and everyone else not on this last page of the thread, otherwise I will lose my post 🙃
harrow
Re: De Novo Stage IV
Bobbi Jo, have fun in Cancun! Congrats on the negative scans!
harrow, HP can get you very far from many stories I hear.
Celebrating 18 years of NED in February (if not today). That's a lot of negative scans, hehe.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 I think it is good that you gave that feedback to the hospital. Being ordered to take a laxative even though you were not constipated made your stay miserable and I hope your feedback will make a difference for other patients. It seems like hospitals err on the side of caution in labeling a person a fall risk. It's quite frustrating but I understand their reasoning. We don't need or want a break from you😉so I am glad that you come here to offer and receive support and encouragement. You have many online friends.
For myself, I have been building up my strength and stamina post hip-replacement. I'm back to pickleball which I love but we are on break this week. I've walked over 10,000 steps that past few days which feels good. It was sunny today-I just wore a light jacket and even took that off for a while. I will have a PET scan later this month. I switched from letrozole to Orserdu-so far no major side effects. My current progression does not get picked up on CT or Bone scans, just the MRI but now I have so much metal in my legs, the MRI is not a great source either. It will be interesting to have a PET scan to see what it shows. Looking forward to going to the opera tomorrow for "Salome." After a cold January, it feels like winter is moving along.
Re: My Husband, My Life, My Love, My Family, My Cancer
Hello ladies
@irishlove sorry you lost some plants. I did too due to my neglect of them. I didn't feel up to going out and covering them for a few days. My GS had the flu and I was literally hunkering down in my room. My GD got it a week after he did and that was a week ago. Could it be that the flu shot worked. Thank God. Wonderful news about the remission!!!!
@mara51506 I hope your herceptin appt goes well. My next appt is a PET scan next Tuesday. Your regular chores are a reminder to what I need to be doing … soon. lol
@cookie54 I have only watched a little of the olympics. I watched the opening ceremony which was really nice to see all the countries come together to compete and show off their beautiful flags and outfits.
@threetree I hope your appt with your onc about Xeloda is productive. sometimes a dose reduction or another prescription helps make it bearable. Sending long hugs sometimes they help too.
@shanagirl hope you're having a peaceful day replete with your pets.
@runor It was a pleasant surprise to read your post it's been awhile. You are such a natural humorist writer. I do miss all of your encouragement. It was nice to get that surprise pop in!!!!
Waving hello to everyone and sending hugs.
Tanya
Re: My Husband, My Life, My Love, My Family, My Cancer
It was good to catch up on everyone's goings-on. Wishing warm days ahead for all. I know I get a bit of guff about living in Fl. and fussing about cold weather. I think it's because my body is just not acclimated to it. Plus I have major arthritis and that disease sure doesn't like cold weather.
All is quiet here. Had to go to MO's office to pick up Ibrance. The RX to go pharmacy will not ship to the house. Pfizer did. I'm guessing it's due to all the porch pirates stealing, that has increased greatly in some areas.
In pockets for all your scans and praying for stability remission and a lovely evening for all.
Irishlove
Re: Can we have a forum for "older" people with bc?
Carole, hope you like what the hairstylist does to style you. I used to enjoy the pampering. Now, my Covid hair style gets a trim now and then. I need one soon.
DB came to paint dining room and has painted ceiling, did all the cutting in for the walls and at the chair rail, and has one coat done. He's so much faster than I am and I hate all the cutting in. I have crown moulding at the ceiling that is oak so you can't get paint on it. He'll paint the woodwork, too. He does nice work and I am loving the color I picked though DH wanted me to keep the old color which we have had for like 20 years. Time for a change and it will pick up this color in the rug, drapes and chair seat covers.
Misty decided to check out what he was doing and I hear him say, "check her feet because their are cat prints all over my tarps". Sure enough she walked through the paint tray with all 4 feet, had it on one leg and there were foot prints all over the wood floors, the island counter and anywhere she had walked. She was howling the entire time I washed her feet and because she has those tufts of hair between her toes, it took multiple washings to get all the paint out. Thank goodness, it was the ceiling paint which is white. I'll confine her to the basement tomorrow. What a terror she is.
It was supposed to reach 41 today, but my car registered 35 degrees. It was sunny. I had an appointment with pain management for my post procedure follow up so I used the stick vacuum this morning to test my back. I have had 3 episodes of back pain responsive to Tizanidine since the epidural and no pain after running the vacuum, so I did get good results. I hope they continue.
Hope everyone had a great day and waving "hi".
betrayal