Best Of
Re: Can we have a forum for "older" people with bc?
Mama fox squirrel has been building a nest. She works on it during the evening. She brings twigs and puts them in the pile, then gets more. She goes back and for with these small twigs. Nature is interesting. I hope an owl or hawk doesn't get her babies.
petite1
Re: My Chemotherapy Journey
Welp. Total reset. I went from deciding to just have surgery now because I was disappointed with no significant change on my tumor. To… delaying my chemo. But my Dr. seems apprehensive to delay it. And since I feel better today anyway, and the recommended hot compress on my boils did its job. I agreed to do the chemo today.
I did say I did not take the steroids which I was supposed to take day before and today. And didn't wear the proper clothes for infusion. But they made it happen.
What they did was give me a steroid infusion instead today with my chemo and just gave me zofran pills. No tylenol or benadryl today coz I told my Dr. it knocks me out everytime. Even though she ask if I prefer to have benadryl and I said I prefer to be knocked out, LOL. Oh well.
So far so good. I also now decided to take that dreaded generic prilosec. AND my anti nausea meds.
I like my conversation with my Dr. today. I particularly liked that she checked my boils eventhough it's embarrassing because it's where the sun doesn't shine. But…. it has to be done.
I also told her that I called the infectious Dr. she recommended but they're not taking new patients. She said it's ok I talked to her on the phone. And I said what did she said? She said she recommended giving me antibiotics. That's why she take a look at my boils so she can decide if she will give me one.
But when she sees it and I told her it's getting better and the hot compress is working. She decided to not give me antibiotics. And this is the one that made me laugh - she said - well, you don't take anything I prescribe you anyway!! - LOOOOOOOOOOL.
Anyway, she also said she generally does not like prescribing antibiotics and when I ask why she said - she does not like that bacteria can be resistant in the long run.
I have decided to take her prescribe meds because I like her explanation about the side effects which is my biggest fear for not taking big pharma meds.
I also like that she scheduled me for 2 hydration infusion days. Which I like coz it help pop my boils and fix my nausea. Not so much about watery diarrhea and nose bleed. But those I know how to control.
It also seems like they shorten the gaps of my chemo days. Instead of 31 days. It's like 20 day gaps? Plus my hydration infusion in between.
My plan how to treat my boils. Since my husband said it's probably bed sores. WELP. Guilty as charged. I really am not active even before my diagnosis. I am a gamer so there.
Well, my solution is STILL video gaming but…. the wii sports!! LOL. At least I am not laying down on my bed while playing. And I still will do my exercise machine thing. AND… I will do my walking laps on a walking trail near my house.
I basically will be active. No more lazy days in bed. See if my boils will improve. OR not show.
As of now… Hope is taking a peek.
pneuma
Re: Bras while waiting for exchange?
Hi all, reviving this thread as it seems like the most recent active one dedicated to post-surgical bras. I have tissue expanders following a bilateral mastectomy, and I expect I will have to wear round-the-clock bras for the next several months, beyond my implant switch. I tried a few from Target but ultimately didn’t feel like they were supportive enough. I am kinda overwhelmed by the options. I don’t hate the Marena ones I came home from the hospital with, but I hear there are more comfy ones and cheaper ones that folks like. Anyone have additional favorites? Particularly at the awkward TE stage? Thanks!
Re: Anyone starting brand drug, Enhertu?
mikainsb,
I just completed infusion #8 at 80% dose. I keep tract of side effects and "pains" after each cycle and have had mild bone pain and also mild upper right and upper left abd pain. So far always mild and not long lasting, but I understand the anxiety that any pain causes.
My recent CT scans after 7 infusions (2nd set of scans since starting Enhertu) showed some liver lesions stable, some slightly smaller, nothing new. Bone lesions were considered stable. So Enhertu looks to be working. I'm repeatedly told "stable is good"
I think your oncologist is correct about waiting 3 cycles before scanning. Even after 3 cycles (i.e. 9 weeks) that's sooner than the usual every 3 months interval for scans. I had my first scans a bit early too.
weninwi
Re: Ibrance (Palbociclib)
@Rosebessie I never felt anything during surgery but I have heard that some people do. Save that bear for your knee surgery. There are usually a day or two that hurt initially, then it gets better.
@Sunshine99 I am sorry you are still having issues. Sometimes waiting for tests is the hardest part.
I had my second visit with my new oncologist. I ask a question about my diagnosis. Her explanation was the first time it actually made sense. Even my daughter felt the same way. I have a question I am having trouble tolerating the heat and humidity this summer. Also I use effexor to control all my psychological side effects from letrozole. My new oncologist suggested I change to fuvesterant. She believes I would feel better and would need less effexor. I don't know what I think. Everything has been working well for over a year and ½. Will I rock the boat by changing. Will I really feel better. Will I have few side effects. Should I try aromasin first. Some many thought and questions. I don't need to make the decision but I have been asked to think about it.
Re: Ibrance (Palbociclib)
Rosebessie, wow! You and your stuffed doggy make quite a picture on the operating table! I’m so glad you are recovering well from the cataract surgery! I love that your ophthalmologist is your friend and was your classmate! Sounds like you are in good hands!
Re: So...whats for dinner?
I made the sushi rolls tonight and the first one fell apart but the 2nd was only minimally damaged. I’ll have to pack the rice better and refrigerate a bit longer but they were absolutely delicious, especially the Philly roll.
illimae
Re: So...whats for dinner?
Carole, I have made breadless Reubens which were good but I did use leftover brisket. I’m glad you escaped the hail.
Eric, It must be good to settle in at home even if you need to do some work.
Talk of taco salads inspired me to make a small one for lunch with the ground beef left over from last night.
Dinner tonight was chicken and asparagus in a cream/white wine sauce.
maggie15
Re: So...whats for dinner?
Dinner was mac and cheese and tossed salad with mayo dressing.
Re: how about drinking?
I also want a bloody mary - but I make them with V-8. Maybe tomorrow afternoon.
Reader - fingers crossed that you don't get a headache.
NM - I will try mixing the brandy & the peach schnapps, but since I don't favor sweet drinks, I'll pass on the grenadine. And I'm not a big fan of club soda, so I'll likely just skip that too. I'll report back after I try this.
minustwo