Best Of
Re: Stage IV MBC Fitness
@bright55 You go, girl! Your adventures sound amazing.
Hugs, Pam 💗
Re: Stage IV MBC Fitness
@bright55 I visited Australia once and remember the beautiful creatures there. Thanks so much for sharing this full life you are living, despite all.
Re: Stage IV MBC Fitness
New year greetings from Sydney region Australia 42C day yesterday and now 20C cooler wet day today.
Managed a cool day bush walk with family early December and startled this beautiful goanna lizard near a rocky ridge with aboriginal rock carvings of a warrior, kangaroo,stingray and fish and stone sharpening grooves
Have to cover up for beach swimming as on Caelyx chemo . Planning UK Orkney archaeology site trip in April. Still able to garden and complete household tasks and drive ...love to complete history inspired fashion with sister for events.
Now 70 and in year 11 MBC still stable with lung mets and CA 15 markers reduced to 24…feel lucky to have great medical team and continue free access no cost public outpatient scans and oncology day treatment
All the best everyone
Bright in hope
bright55
Re: My Husband, My Life, My Love, My Family, My Cancer
hoping to find answers Monday. Thanks Chicagoan. I’m from Park Forest. I love Chicago…..just too cold. Nite nite everyone ❤️
xsuzx
Re: My Husband, My Life, My Love, My Family, My Cancer
xsuzx-Why did your insurance company deny Verzenio? It's a pretty standard first line treatment. Hope it all gets straightened out soon.
Re: My Husband, My Life, My Love, My Family, My Cancer
That is so nice of you, @intolight to just make your self known with hugs. It's perfect and makes me feel really good to be thought of. I want to send some hugs right back to you too, as you have also been through a lot these last couple of months, and are also hoping for a new drug to work well.
@chicagoan - I so appreciate your comment; it's very helpful. It looks like you sure had a good run with Ibrance. That's great, and I do hope I can get a good long run with some kind of drug here!
Re: My Husband, My Life, My Love, My Family, My Cancer
@chicagoan They gave me 20 immodium. So far so good.
Re: My Husband, My Life, My Love, My Family, My Cancer
Mara - I agree you sound great! Hope your recovery continues to be speedy. Lots of prayers answered!
Irish - sorry about the Rx mixup. Hope the weekend is easy on you until you get some answers.
Re: Afinitor/Aromasin
hi @beachbumblonde I see this thread ended with you back in April. What is your status at this time? I hope you found something that works for you.
To other ladies on this thread I am waiting to see if I can take Afinitor and Aromasin after 1 1/2 years on Verzenio and Letrozole. @mkestrel I did see your comment on being pulled off already. I notice not much activity on this thread and hope you are all holding your own and having the best life we can have. I did have only bone mets in hip, pelvic bones, spine, ribs and skull. “Only” might not be the right word! But at least was contained to bones. I had very little progression but suddenly it metastasized to soft tissue. Possibly peritoneum and colon and now maybe liver. I am having some bladder issues and now rising liver enzymes for some reason before even starting the new medication. Waiting for liver MRI. I know a clean liver is an absolute necessity to be on Afinitor. So I have some concerns other than all of the other lovely side effects. Just wondering if anyone had liver problems on this medication. I was a big wine drinker until a few years ago so I have some concerns.
Need to update my profile: orig dx 2013 hr+ her2- lobular. Double mastectomy. No treatments at all. Metastasized to bones 2024. Verzenio and Letrozole. Zometa every 3 months. Progressesion to soft tissue 8/2025. Boooooo hiss!
Any comments good bad or otherwise are appreciated. Best to you all!
Re: 🌟Starting radiation in January 2026? You don’t have to walk this road alone.🌟
Hello@tribblesmom Thank you for taking the time to respond to my post. I appreciate your suggestions and wish you well on your journey.