Best Of
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Long day and I've filled this up with memes all day anyway. VP Harris really has it going on — and I just read she definitely stole the Reps/Trump trying to put the border mess on us, right back on them. Wonderful push back and I think since she has just about everyone's attention right now — the more push back on what the other side is saying and doing the better. And who better with a prosecutor's outlook on things that are VERY wrong. Give the other side their load right back in spades. Give it back to the people it belongs too.
People are paying attention — lots of it. I think for now the Reps. still don't quite know what to do. How to make her wrong, incompetent etc. It will come at some point, but I'm thinking and hoping that it will be too late to do all that much damage.
Perhaps, while scaring a bunch of us A LOT, getting something of a fairly late start out of the gate might be just what was needed for the momentum to keep the worst dirt from having a deeply serious impact.
Tomorrow's news about Atlanta and tonight should be delicious and delightful with our morning coffee.
Re: Just diagnosed with ILC mets
ok. After multiple tests I have mets to my bones, liver, stomach and possibly peritoneum. More than I thought at the beginning of this journey. Interestingly enough my bone scan as well as my FDG PET states no bone mets, but my Chest/ Abdomen/Pelvis CT shows mets all over my skeleton. I know with LBC it’s a problem. Starting Letrozole today with Ribociclib in a week or so (upon processing through my insurance and specialty pharmacy).
I wish you all long life and Thank you for your support
laguna24
Re: Can we have a forum for "older" people with bc?
Betrayal, I would love to hear your bird sing. But I don't think we can post audio.
This morning the temperature was in the 60's, I think 68. We opened up the camper and circulated fresh air inside. When I came inside to take a shower about 3 pm, I closed up and turned on the a/c. It's still comfortable sitting on the deck with the box fan blowing.
DH had his appointment today with the wound care nurse. She tended to his leg and gave him more supplies. It was such a good idea to go to her. DH wore his new size 40 shorts. He's down from a 42 and I wouldn't be surprised if he goes down another size. I did mention to him today that he has to consume some protein. He has been eating mostly salad foods and melon because they taste good, while some other foods have lost their appeal. I'm wondering if one or more of his meds might be affecting his taste. He does have eggs for breakfast. I am eating less, too, trying to drop some pounds that I can well afford to lose.
Jackie, when you can manage it, post a picture of Lil Red.
Thinking of Puffin and Harley. And hoping Sandy is doing well, just busy.
Re: So...whats for dinner?
I'm finally getting "re-settled, laundry done and un-jet lagged". The airline to get from Phoenix to Show Low…so far it's 1 out of 4 flying with the rest being a 4 hour van shuttle ride. And, as soon as I got home, my other intermittent government job needed attention. At least the two agencies coordinate well enough that they don't simultaneously want me.
So, now I need to read up on what has been going on. I did some reading while I was back east but after 10 hour days/6 days a week working in a warehouse with indoor conditions in the 90F degrees and 80% humidity range, I didn't read much. :-)
The breadless Ruben sounds interesting. Sharon's WW plan somewhat discourages bread. We have homemade sauerkraut and thousand island dressing in the refrigerator, so all it would take is the corned beef.
eric95us
Re: how about drinking?
Good afternoon! The lounge is quiet. I'm looking forward to my vodka martini on the rocks with multiple olives at 5 pm. That's our ritual, cocktails at 5. DH will be making himself a bloody mary with his own mix that includes clamato juice. He adds pickle spears. Normally he has a gin martini on the rocks, also loaded with olives.
Hope everyone is keeping cool and feeling good.
Re: My Chemotherapy Journey
pneuma,
The word hormone is very broad. While your skin condition could be triggered by hormonal changes that doesn’t mean that chemo and hormone positive bc are a known cause of this condition. I did a search and can find nothing that associates chemo with your skin condition. It is entirely possible, and likely, that these are unrelated, but of course , anything is possible.
I continue to be baffled as to why you didn’t switch doctors long ago since you referred to her as a quack. That’s a pretty damning statement and am unclear as to why you would continue to see someone you would characterize that way. If I thought someone was a quack, I’d have switched long ago. It seems to me that most of your anxiety and lack of or misinformation comes from a poor relationship with your mo.
Lastly, with respect to tumor shrinkage. Wouldn’t finishing the course of chemo, and checking for shrinkage at that time, be a reasonable course of action? Chemo is given in several sessions over time. If a certain number of sessions is the recommendation, why would you expect results after only partial treatment? If results were expected with only a limited number of treatments why would the recommendation be for more than that? i.e. If things were expected to be resolved after 2 treatments, why schedule 4? I may have the numbers wrong on how many treatments but why declare failure when you haven’t completed treatment?
Let me also say, that I am unsure about whether you actually want people to respond to you or whether you’d just like this to be a place to journal without feedback. Please let me know!
Re: Coping with emotions
@godonnell welcome, so glad you are sharing your story.
I hear you and can relate to your journey. I too had a recent recurrence with skin eruptions this past January. The skin eruptions made me feel like a leper, and just when I thought my cancer might be done and dusted, it recurs as MBC just 6 months after surgery, and 1 month after I stopped chemo the first time. Oh my and the emotions too, hard to admit and hard to accept, and they come and go.
And through it all, I find that positive thoughts, images, meditation, excersise - lifestyle medicine uplift and sustain me. It’s what I can control when so much is not in my control. I do a few things , which if it is helpful you might try or ignore lol . Journal- I have two, at night before bed I use a gratitude journal to write down 3 things that went well that day. Small joys simple joys to remind me that life is not all cancer all the time. And sometimes reminding myself that a conversation with a colleague, or a great dish I made, or a walk in the shade was uplifting… intentionally going to bed with positive thoughts and I sleep really welll! Also during the day I journal about how I feel and what I’m looking forward to that day, it’s private and mine and I can slowly track my side effects from medicines too, record my workouts, etc.. in that journal I write positive affirmations too. “Every day and in every way I’m getting better and better” also “never ever give up and dare to recover” etc… good for my mind to remember and my heart to be fully engaged in my quality of life.
Dealing with difficult emotions is like a meditation practice, it takes time and practice. Aversion is so natural, turning away, I understand I do that too sometimes. But I have found turning towards , in small ways helpful. I would suggest go slow with them, that is what I do. I call it making a quarter turn towards what I feel, not a full turn sometimes a half turn lol… but a quarter turn to simply acknowledge that emotions are present and breathe deeply in and out around them just making space as best as you can, and no more than that. I really like mindfulness practices for that, which I find super helpful to make space for what is hard to acknowledge and it softens in the heart with the breath. Not trying to change anything, just accepting what is here to be known with small steps many times. As you can. And before you know it, you feel freer and happier. It is what it is.
I hope this is helpful , and if not it’s all good ! Either way, you are not alone. - Rhonda
Re: Can we have a forum for "older" people with bc?
Just to let everyone know — I sent Sandy a pm and told her we were all concerned and hoped she was just busy and wasn't in the path of any storms and getting issues from that as well. I did think of a way to look for her addy that I had, but I couldn't go back far enough to find it in some of the lists I have kept.
I'm hoping we hear something soon. She is pretty resourceful, but none-the-less there will be worry till we hear. If all else I might call my friend and see if he can do a quick installation of my older addy lists from the other computer. Already have to get him to do some pictures from the old — so it should be a snap.
Fingers crossed.
Re: Can we have a forum for "older" people with bc?
Cindy - Nice picture of your neighbors. Hope they aren’t the loud partying type.
Betrayal - love to hear that Bumble Bee and you are jammin’ to Janis Joplin. Your breakfast sounds amazing.
Rainy, gray and humid here today.
harley07