Best Of
Re: Financial planning after diagnosis at 40
I wouldn't assume no retirement, although there are no guarantees in life, some savings would be prudent and if invested can give you a useful cushion later. If you can discuss your situation with a financial advisor, they might be able to suggest how to come up with a savings plan that is balanced.
Everyone's circumstances are different. I'm in Canada where I've been with the same employer 25 years, decent benefits and a pension, and now stage IV. So I won't get to enjoy much of that pension… so much for planning for retirement. At least my medical benefits are there now that I need them. So I'd suggest looking into medical insurance plans, and disability insurance if you can find coverage, that might be worthwhile.
doodler
Re: Can we have a forum for "older" people with bc?
I think I mixed up Scarlet and Artist. Apologies!
I think I’m about 40-45, until I look in a mirror. This is my first year on Medicare. Always knew it was coming but it was YEARS out, if you know what I mean. Then no years out & it’s here.
It’s like with the passing of Bob Newhart, I had no idea he’d gotten so old. HAHA I loved Bob Newhart’s humor. I don’t think I’m old until someone passes and reminds me that the years just keep rolling along.
Good night ladies!
cindyny
Re: how about drinking?
Good morning! We had some rain last night but no weather drama. We went to see a wound specialist in town yesterday to help us with bandaging dh's legs. No matter how hard we tried, he would bleed through bandaging, thanks to the new med Eliquist. The wound specialist's nurse tended to dh's legs and gave us a big bag of supplies. We have our instructions and dh has an appointment to return in a week.
I have an appointment today for a hair trim.
Happy Tuesday!
Re: Zometa side effects
My Zometa infusion went fine. So far I don’t feel bad. A slight headache is all
AJ
Re: My Husband, My Life, My Love, My Family, My Cancer
Candy, I am with you, pacing ourselves is all we can do. For example, I know I cannot handle the heat, have not tried to walk outside, if I need to go somewhere, Paratransit is the way. Do bit of housework at a time an a quick vacuum and dust to my small apartment. The only chore I really enjoy now is laundry.
Re: My Husband, My Life, My Love, My Family, My Cancer
Shanagirl, I am always exhausted, I have also called in for appointments due to exhaustion. I am adding a marching exercise to Leslie Sansone, will use two canes for balance, the pace will work me out quite a bit. Sometimes it brings up the energy. If I am super tired and want to move, do my exercise in bed both for balance and movement. I nap as needed as well. I think that is why I try to do different food or housework things. Keep my mind occupied.
Getting a silly purchase but I do not care, was 60 bucks and did not buy groceries the past couple weeks. I bought a really small portable washer, saves my hands from handwashing, the detergent bothers my skin but I figure it is good to have if everyhing is busy on blanket day to get that done. I also received another throw blanket which is nice, easy to keep warm, even made the bed. Debating giving the blue large fleece blanket a try the new way I do blankets on Sat or Sun, those are the bedding wash days.
Not sure about food today, I loved the cheese sauce made with the KD and taco seasoning so that will happen again soon, keep the KD noodles for other meals. Have to open up some beans. I was also watching you tube and though I am not keto, I saw a number of interesting bread ideas, even a cottage cheese bread that I will be checking out. Today will be simple, planning meat pies, need to open more beans and having eggs later, may make a fried rice with cheese shreds, beans and garlic heated in the frypan. I'll see what my stomach wants.
I am hoping everyone has a good day, in pockets for everyone including myself, getting boxes from amazon broken down, when I do not order off Walmart, I do some pantry orders off Amazon and those usually arrive in a lot of boxes. Also need to get to shredding some documents as well.
Re: My Husband, My Life, My Love, My Family, My Cancer
Got my 60.00 portable washer, spins OK, cannot overload. It is a bit wobbly so put a yoga mat piece I cut to steady it a bit, draining in the bathroom sink. I will see just how often that is used, mostly on blanket or clothing wash day but will not complain about it. It was cheap and works as I want it to. So far I give it 7.5 out of 10. It did come with a spinner that goes inside but I will just wring it out and spin in the bigger spinner. Did I need this no but I did want it. Will fold down so I can store in the linen closet.
Re: Are you currently (or have you been) in a Clinical Trial?
Saulius, There are not any trials of Celebrex or related drugs that I know about specifically for MBC cancers with PI3KCA mutations, which I find very discouraging given that the link with PI3KCA was reported in NEJM long ago ( 2011), and has been borne out in papers looking at different cancers since then. So many women could have potentially benefited in the meantime! However, I did see where it was included a clinical trial for colon cancers with PI3KCA mutations (testing in combination with another trial drug for PI3KCA) that I think started this spring. If I can find the trial, I will come back with the link.
For me, when I had some starting progression in a couple of scans and couldn't find a trial to take, I added one Celebrex at night (standard 200 mg dose) and my TMs dropped, so the standard dose was sufficient. I was still on Verzenio at that point and didn't want to add a second dose (regimen is supposed to be 2x/day) but then later on I dropped V and added the second Celebrex and my TMs dropped even more significantly (probably the V had stopped working), and it has been stable since so far. So all I did was add one pill, test TMs a month later, add the second pill, see if it helps…
Re: My Husband, My Life, My Love, My Family, My Cancer
So many have husbands/others to help- Shanagirl, Mel, Intolight. I live alone, as does Mara. I pace myself, but it all falls on me- meal prep, laundry, housework, all of it. I cannot afford a maid or someone to come in and do things. So I just do on my own. What choice do I have.
Intolight- When the nurse asks me if I am depressed, I say OF COURSE. But I follow up with No I am not suicidal. Good grief, we have MBC, who wouldn't be depressed.
