Best Of
Re: How are people with liver mets doing?
@threetree , It must be distressing to have that liver progression. And facing a different treatment. My thoughts are with you.
aj
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 - Oh Mara, what a terrible thing to have happen, when you were so looking forward to a good walk. You have all my sympathy. I agree with Cookie that it was nice that there were so many helpful people around. I hear you about feeling so robbed of so much by cancer. I think I'd just cry and let it all out too, if it was me. Thinking of you and wishing you all the best. Maybe try again on a fall day. Don't give up altogether.
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 I'm so sorry to hear of your heat exhaustion today. Glad there were some responsive folks around to help.Cancer is a thief of so much in our lives slowly robbing us of the things we enjoyed. It is certainly mentally and physically exhausting . Some days are better than others that's for sure. Today was certainly one of those days for you, the struggles are real. I hope tomorrow is a better day and you feel mentally and physically refreshed. Wrapping you in a giant hug❣️❌⭕️
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
So I went to bed earlier and woke up feeling much more settled and having slept pretty well.
Decided to leave yesterday as a past unfortunate incident and not letting that cloud my thoughts and realize that getting uptight and staying in 100 percent of the time is dumb too. It will not help at all, need to be able to walk 10 mins and use the bus, no need to try and walk far. Those days are gone for me and that is OK. Still got a good appetite and can look after my own house and bills. That is all I need to do right now. My thought is to train walking around a short block to build tolerance to 10 mins and then be sensible and take the bus or Paratransit places. Only problem I have right now is heat tolerance and that is OK, no balance issue walking. I may decide to start going to the hospital half an hour earlier, walk there, walk around the grocery store kind of like doing laps. I will see. Come winter, walking will not happen at all anyway so all indoor exercise.
My prescriptions are being delivered today which is good, I am out of my tegretol and immodium is coming.
Laundry to be done and is underway, floors need doing, changing the litter genie, got a pile of things to do just that, they are pricy but they are the proper things to use in the litter genie.
Food will be the usual suspects, beans, KD noodles I am working through and another beef patty from McDonalds. Decided to stop ordering the fast food burgers as they are expensive. If I want a burger, need to take the bus there to get it. I am ordering some groceries, got a 35.00 budget and using a card that pays rent, it has a 37.00 rewards credit so will get them off that card. Paid 44.00 by the time taxes were added but still not bad at all. Got a few frozen meals that I like quite a bit, sour cream 2 cans of black beans and meat pies. Also got the queso pasta and chicken bowls, 2 of those. I am planning to stretch them a bit by mixing in some KD noodles. No chips or junk food this time. Items arriving between one and two pm today.
I do hope everyone has a good day, in pockets for all who need me including myself to not get so far down in the dumps because I had a fainting spell in the hot sun. Just need to adjust habits accordingly and be less reactive. For me if I dwell on what I am unable to do, of course that is depressing, think about what I am still able to do.
Re: Can we have a forum for "older" people with bc?
Harley - I had my pool filled in 10 years ago when it was due for re-plastering & new tile after 25+ years. I wasn't supposed to be spending time in the sun after 5 MOHS surgeries for skin cancer, so had no way to clean it regularly as my son had long since grown up & moved out of state. They jack hammered the concrete and ladders & all went in the bottom before they filled up the rest of the hole with dirt. It was a ridiculous cost & yes they did have a permit. The only draw back is the company recommended I don't plant a tree in the area that might grow large since the dirt will never be packed as tight to hold the roots in our normal Houston soil. In retrospect, I wish I had originally done a lap lane and a hot tub in the beginning.
minustwo
Re: Grade 3 long term survivors
I had my last oncology appointment this afternoon. I'm done with treatment after my last bottle of tamoxifen. I'm just going to be an as needed patient. I had him go over the oncotype and peri-tumoral lymphovascular invasion again and basically chemo helps with that at the time but obviously there's no way to predict the future. I will not benefit from continued tamoxifen. He said even if I continue it's only about 1% benefit and the side effects and everything else that tamoxifen can bring could be worse than that 1%. So I will be done with that after this bottle is gone. I asked about the signatura test which is a blood test that can detect if you still have cancer cells in you. He does not necessarily recommend it because of false positives. Sometimes the blood work comes back positive but the scans will come back negative. I asked if I should have my ovaries removed and he said just wait that out and see what happens once you stop the tamoxifen. I still feel like I should have them out at some point. I asked him if I should continue to have MRIs and he said yes but to only do it maybe every 5 to 10 years. He said yearly blood work is fine and then obviously contact him if something happens or comes up. My reoccurrence risk is 10% which is on the high end unfortunately but again he's like I can't predict the future He's like the fact that you made it 5 years though without anything is a good thing.
For a reminder I was diagnosed at 37yrs old, stage 2a and grade 3. Bilateral mastectomy with reconstruction, 4 rounds of chemo and tamoxifen for 5 years. Oncotype of 37 and BCI of 10.
Re: Abemaciclib Verzenio for Stage IV
@dutchgirl11 I want to see that study, too. My onco wanted to start me on 150 mg but I reminded her how sensitive I am to drugs so we started at 100 mg which provided huge drops in my CA markers, such as 88 points in one month. The monthly blood marker numbers are now much lower, but still going down slightly at 6 or 8 points at a time (worrisome) so I doubt I can reduce to 50 mg at this point. I have about half my hair, still thinning a LOT. I have been using a bit of mousse now and then which gives a thicker look.
tbos805
Re: How are people with liver mets doing?
3Tree, Ipatasertib is also used for AKT1 mutations, however it didn't do better than Capi
AI Google: Yes, capivasertib has demonstrated durable responses in clinical trials, particularly when combined with fulvestrant for hormone receptor-positive, HER2-negative breast cancer with PIK3CA, AKT1, or PTEN pathway alterations. Studies have shown significant improvements in progression-free survival (PFS), with median PFS values reaching approximately 13 months or more in relevant patient subgroups, suggesting sustained control of the cancer. Patients with certain mutations, like AKT1 E17K, have also achieved durable complete responses, with one patient remaining on treatment for over 35 months.
Re: Can we have a forum for "older" people with bc?
minus - I think our city’s concern is that if the pool is filled in then nothing can be put in that area (ie. Large tree, patio, deck etc). So the area must be initially filled with clay and compacted and then covered with dirt and grass planted. I live in northern Illinois and our soil is mostly clay. Our subdivision is built on what was formerly corn and soy fields.
harley07