Best Of
Re: CT and Lung Nodules
sorry for taking so long to reply. Between being sick, school starting, and my son playing football I feel like I am all over the place!
maggie15 and margecandoit,
Looks like we all have some upcoming scans this month and in October. I pray and hope we all have some good news from this upcoming scans!
Maggie I hope you get positive news with your MRi and image results. I had to go last month because I could hardly walk. Luckily no cancer, just the nurses hitting my sciatic nerve with the Faslodex injections. I took almost a full seven weeks before I could turn over in bed or walk halfway normal!
Unfortunately I had to add Metformin to my drug list because the Itovebi did increase my Glucose levels (we knew that was a high probability) to almost 300. It is amazing how something like that can make you feel so dang bad! And of course with the Metformin I know have a prescription for GERD! I have a PET scan and Signatera test in October to see if the new meds are working I did do five radiation treatments to my left rib and left iliac and finished that in August. Hoping we can get me back to stable.
Really ready for some fall like weather to hit us down in Louisiana!
Re: CT and Lung Nodules
Hi kks_rd!
I agree that Maggie15 provided a great explanation. The best thing you can do is keep up with scans and doctor appointments. Also, if you feel like something is wrong please speak up to your doctor. Advocating is the best thing that you can do in uncertain times dealing with lung nodules. If you have a pulmonologist that works close with your Onco then that is a great way to keep a close eye on things since nodules can be tricky.
Re: Newly diagnosed with bone mets
There's no more SCCA. It all got incorporated into Fred Hutch and UW.
Re: How are people with liver mets doing?
@threetree I was diagnosed with bone and liver mets 9 1/2 years ago. My liver mets continue to hang aground although we have been able to keep them somewhat controlled since then, but they have never gone away. So it is possible to live a long time with them. Currently, I am on Orserdu (pill) for them because they found a specific mutation in my biopsy. Do they list any mutations? For my report there was a long paragraph listing possible mutations which I only had one come back positive. It was in a big paragraph. The med I am on is actually the easiest one I have been on in all these years. And Orserdu does not need an AI so no more shots too. I get scanned tomorrow to see if it is actually working. Good luck!
Re: My Husband, My Life, My Love, My Family, My Cancer
Well, slept well last night as usual, gradually getting earlier with bed since have Herceptin next week.
I want to pick up a couple of prescriptions myself today, not too hot and could wear my cooling stuff. Not too sure when to go but need to finally step out, if not will get up earlier tomorrow and have them both delivered.
Laundry, sweeping and breaking down of boxes that should go out for recycle will happen. I put some stuff that probably went through the different cycles yesterday but I prefer to keep track by starting fresh. Opening the third of four of the nicer boxes to store cat food and litter. Have to wait for more packing tape I spent the equivalent of a dollar for, had some interest that hit my account. Got 4 cans of the bean fiesta in mild chipotle, man I love those beans and was happy to see them back at Amazon.
Will budget boost with mobile games, you will never get rich but is fairly easy to make a couple of dollars here and there.
I plan to have eggs, beans and either rice or pasta from one of the KD boxes. Need to locate my soft tortillas as I may also want to have a quesadilla with greens and something else, will decide later. I did manage to eat all the beef dogs, I ate them after heating, just by themselves as they were so good. I will post if anything else comes up.
I hope everyone has a good day and in pockets for everyone who may needme.
Re: Abemaciclib Verzenio for Stage IV
thank you for this @marcials1. I'm sorry to hear you will be navigating a new drug but always with the hope this one will be the right one for you. Thanks for the tips on Verzenio. The big D isn't a huge issue for me its mostly the painful gut spasms but probiotics and better timing here I come. Please let us all know what you learn from the PET scan.
Re: Newly diagnosed with bone mets
Thank you, @tbos805. I feel much better reading your story. I feel much better knowing that the biopsy anesthesia was terrific and that I will be okay!
Since I wrote, I've seen the onc. She ordered a biopsy and radiation consult. She also started me back on an AI and an oral bisphosphonate once weekly. If the biopsy comes back with the original ILC ER+ PR+ markers, I will then start on Kisqali and IV Zometa. I've been put on crutches until I get past the radiation. It's helping the pain tremendously.
I've scheduled two radiation consults this week, so that I have a choice. I'm still waiting to hear from interventional radiology about the biopsy. I hope that doesn't hold things up.
By the way, my son and DIL live in Seattle. When he first moved there, I went for sort of a 2nd opinion at Fred Hutchinson/Seattle Cancer Care Alliance. I loved that place. I'm now living in Portugal. I was wondering if you are going to SCCA.
mary625
Re: Newly diagnosed with bone mets
Hi, @mary625 and all. I (age 66) have a very similar situation to yours, Mary, diagnosed at the end of January this year - BC recurrence from 2010, bone mets only. The absolute worst part for me was the two weeks between the "bone lesions consistent with metastatic disease" MRI report and not seeing my oncologist until over two weeks later after more scans, tests, and the biopsy she wanted before seeing me. NOBODY telling me I was going to be okay, there is treatment for this, etc. I had visions of mastectomies and chemo (again) running through my brain. So let me be the one to tell you YOU ARE GOING TO BE OKAY!!! I started two weeks of daily radiation immediately on the two painful areas on my spine and that took care of the pain within a few weeks (I had mostly spine and pelvis and ribs mets but did have a spot radiated one time on my femur). Laying on my back on that hard surface in radiology brought tears of pain to my eyes and the radiologist did tell me, "You are going to feel better!" And he was right. The markings for radiation are even easier than 15 years ago. My biopsy was in the hip/pelvis bone, laying on my side, awake but the anesthesia was terrific, no pain, and really no pain afterward, either. I have been on twice-daily Verzenio 100 mg, monthly Faslodex injections, and 3-month Zometa bone infusions since completing radiation. I have been coping and managing with the G.I. and diarrhea issues, to be honest, since starting the drug treatments on Feb. 21. So I am a little over six months in with the drug treatments, have been in physical therapy to rebuild strength and stamina (after a year of decline from pain we all thought was caused by worsening scoliosis from bone loss due to years of Tamoxifen and Arimidex) and I am doing my home exercises, progressing, getting stronger, walking 2 miles a day and building on that, keeping up with my normal activities again. I'm just hoping my G.I. issues are under better control and I can travel again soon, injections and infusions schedules permitting. You are going to be okay!!!
tbos805