Best Of
Re: Can we have a forum for "older" people with bc?
Sunshine, I’d be lost without the help of my cousin and I know it!
MM, your Kielce sounds like a peach.
Puffin, it’s a good idea to move the kitchen chairs. Anything to make life easier is a good thing.
Jackie, the puppies are adorable. It’s a good idea planning for the times you need to leave him home alone.
Carole, I too would probably get a dog if we lived in one place. Someday but not now. Happy 55th anniversary!
Sandy, good to hear from you, although it sounds like you’ve got your hands full. Need a parking fix before winter is right!
Betrayal, congrats on getting a new canary! I hope he sings as well as expected.
Wren, the painting class sounds fun. I’ve always thought of myself as artsy, but truly do not possess a painting skill, among other lacking artistic skills!
Petite, nice that you’re getting another vacation, you’ll have a blast. Key West is a hike and a half from the panhandle. You could take the Key West Express out of Fort Myers Beach and sit back on the boat for 3+ hours to avoid the extra drive. I think it’s $185, plus parking. But if you drive you do get to see the Keys old bridges on the way, and the colorful waters as you go; but it was a hike from Fort Myers when we drove it. Just something to consider.
Today I went with my niece and grandniece to a local amusement park, Six Flags in Lake George. We walked about 5 miles, had a refillable cup that we refilled 10x at least, and I even went on a few rides. I’d show you a picture but each one is funnier than the one before it. The faces I made, in the nanosecond my niece snapped the pictures …epic.
I’m the one hanging on for dear life.
We took some water rafting ride, where they bump the “boat” into the walls and water sprays all over you at various points. My jean shorts were soaked as was most of my body. It was a good thing it was sunny but not horrifically hot. I did one other ride which started out ok, but by the last 1/4 I was thinking I couldn’t move my neck - gravity tossed me to the left side. And yes, I am too old for this.
Hope we all have a good weekend.
Harley, thinking if you and hoping you’re doing well.
Re: Just diagnosed
@keepthefaith - the approach for treating State IV is that we're in it for the long haul. Once you're on your treatment plan (and especially when you get confirmation that it's working), you settle into a "new normal". It's really scary and frustrating in the beginning. The best thing my first MO told me was to think in terms of years and not months. My mantra is, "I'm OK until I'm not OK," and we go on and live our lives as well as we can. I'm still on my first line treatment that I started 4 years ago today.
@vermonster - my liver was a mess when I started, too - though I was dx'd de novo. The CDK 4/6 inhibitor (I'm on Verzenio) and anastrozole cleared it up in 7½ months. I see you've already been on anastrozole, and are switching to Faslodex. I hope it works just as well for you.
One last note: Be careful with Google. The new drugs in the last several years have really changed things. If it's from before 2015, take it with a grain of salt.
Let’s Talk About Taxol
I am in my dose dense AC era right now and looking ahead to starting Taxol.
My oncologist has given me the choice of 12 weekly Taxol or 4 dose dense Taxol every other week. I’m so wanting to get this over with. Has anyone has experience with dose dense Taxol x 4?
My understanding is treatment outcomes are basically the same, but that side effects - especially neuropathy - may be reduced.
Thoughts? Experiences? Feedback?
Thanks!
Re: how about drinking?
yep! The modular home floor plan we picked has only one floor and would have the laundry on the main level but I didn’t want to have a huge problem in case we had a water leak from the washer, so that will be converted to a pantry and the laundry will be in the basement. Already looking at paint colors for the rooms, not a fan of all white or grey walls.
Re: So...whats for dinner?
Carole, hope your anniversary dinner was great and happy anniversary!
DH and I will go for Vietnamese for our 31st anniversary (we'll go tomorrow but our anniversary is on the 14th). I think I'll order beef basil.
I made frozen pizza tonight.
Eric, glad to hear you can sleep in :-)
Re: So...whats for dinner?
My flight was cancelled. At least this time I received 24 hours notice. The last cancellation was made by the gate agent that arrived 15 minutes AFTER the scheduled departure time.
Re: So...whats for dinner?
We have a dinner reservation at Boulders restaurant in Walker tonight to celebrate our 55th wedding anniversary. We would go there more often but it's about a 40 minute drive. It has a relaxed elegance that we enjoy and is known for its cocktail menu. I plan to have their Cosmo which is beautiful and delicious.
The frozen pizza cooked "in" the grill last night was ok.
Now we know Sandy is doing well in her new circumstances. Still concerned about Minus down in Houston.
Re: Just diagnosed
Hi @vermonster,
We're so sorry to hear this news, but we're glad we can be here for you. Would you want to create a new discussion to introduce yourself and share your story in the Stage IV MBC forum, where others can welcome you and support you?
In addition, we're sharing these threads you might find helpful:
Also, we have some amazing members who join us weekly in our weekly MBC Zoom Meetups — we'd love if you could register and join us for face-to-face support from others in a similar situation. You can see the times/days and register here:
We hope this helps and that you find the support you need here — we've all got you!
—The Mods
Re: Just diagnosed
Just joined this club - never wanted to be here - still waiting on molecular sequencing, and as of yesterday the insurance pre-authorization for Faslodex and Kisqali. Waiting sucks.