Best Of
Re: Grade 3 long term survivors
Approaching 7 years this fall. I was stage 1/grade 3/node negative.
Just scheduled my annual oncologist appt and mammogram. The past year has been more about being a caregiver for my husband after his CAR-T treatment for multiple myeloma. I have to remind myself to stay on top of my own healthcare.
Buttercup
Re: De Novo Stage IV
I haven't posted for awhile. Just stopping by to say hi & share my most recent PET/CT scans result couple days ago : still stable on first line anastrozole & ibrance since Feb 2019. I was diagnosed de novo bone mets in Nov 2018. Lumpectomy, no chemo or radiation, went straight to Ibrance. It's not easy, but still alive & trying to get used to the new "normal" daily life. I reached my goal of seeing my son graduated from high school. He is now a college sophomore, so my new goal is to see him graduate from college. Wishing everyone lucks on whatever treatments you are on. Hugs!!
42young
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi all, I am not a regular but admire you all from a far!
@kbl and all, I am sorry to hear about Sunshine99. She was such an encouraging woman on the Ibrance thread, funny, kind and supportive. She is in my prayers and thoughts as she is cared for by hospice. I remember how comforted BestBird was by Hospice Care and hope it is the same for Carol. I think of her in her beautiful craftsman style home in the San Diego area with no pain and some quality time with her husband and one of her sisters. She was also a terrific writer and encouraged us all to keep track of our various lab info/numbers on a spread sheet.
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl, amazing photo - I could not help but think that gorgeous puppy is standing as a guardian for your wellbeing. He looks just like a sentinel guard. You look wonderful in that blue.
@tougholdcrow, enjoy the paddle - one lake at a time and you will get there. Stay hydrated. I hope the weather is perfect for you.
Re: Summer/Fall 2024 Radiation Support thread
I had my first consultation with Radiation Oncologist and was given two choices for treatment. I decided to get the SAVI catheter 5 day internal radiation therapy. Since my surgery was on August 7 hopefully my breast surgeon can get me in next week to place the catheter. Apparently this treatment needs to start before the breast tissue becomes too healed. Once the catheter is in place I will have 2 treatments a day for 5 days at the location where the DCIS was removed.
The alternative would be 4 weeks of radiation treatment 5 days a week to the entire breast.
Since my DCIS was 3 cm below the nipple at 6 o’clock, I am reluctant to radiate my whole breast. When I can have targeted radiation on my lower breast tissue. Which will have less side effects of redness. This will allow me to get back to a more normal work/ life balance.
I feel lucky to have two options available. Fingers crossed insurance will cover SAVI catheter as it is apparently new treatment for DCIS.
Re: Are you currently (or have you been) in a Clinical Trial?
It would be helpful if the mods could bring in a guest breast oncologist from time to time, so we could ask a few questions, after the first couple of lines of endocrine therapy, the best steps forward and sequence of events can be far less obvious
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
I had to stop back and see reactions to the debate. I did watch it although I hadn’t planned to. Living so close to Philly how could I not watch? It was exactly the way I expected it to be, one very intelligent adult and one toddler.
I didn’t go all the way back, started at page 1001. Love the memes!
taco, is Mutz a Cairn Terrier? If so, I will have to PM you because I have a lot of questions for you! We adopted Kelce 4 months ago and I think a lot of her behaviors must be breed related. We love her!
Exbrnxgrl,
Kelce wants to know if she can join the club too!
Re: Anyone with enlarged mediastinal lymph node?
Tangandchris ParakeetsRule Thank you both for responding. I have been in a bad place mentally. The thoracic surgeon they referred me to said my node is in a very risky area for biopsy and scheduled me back in 3 months for another scan. Since I didn't get a definitive diagnosis of metastasis,my medical oncologist has decided that it won't be included in my staging and therefore she does not intend to prescribe chemotherapy or proton radiotherapy. I am beside myself. I have sent them multiple research studies on my specific presentation and they won't hear me out or even read them. I feel like I'm going to be under treated and end up stage IV because of their stupidity. I guess when they say you are fighting, they don't just mean the cancer.
They diagnosed me as stage I on my chart, but I have an enlarged (2.5cm, round) mediastinal lymph node that they refuse to take into consideration. I am beyond frustrated, extremely scared and decidedly pissed off!!
This is the latest study pertaining to my case. Crickets from my oncology team….
Well….Not allowed to post the link…. Google: