Best Of
Re: August 2024 Surgery Support thread
@psychgirl24 Wow! It sounds like you have been through a lot. I took has some trouble deciding on my treatment plan. Although it was different options. I had to get a mastectomy. I don't have any advice on what to do on your specific situation. But one piece of advice I received that help me is once you have made your decision, don't go back and second guess yourself. There's is no "right" decision. That's too much pressure. Just make the best decision you can at this moment with the best info you have. That is all you can do. Best wishes on your decision. Others in this situation may have done better feedback for you.
cmre00
Re: My Husband, My Life, My Love, My Family, My Cancer
This years baby deer are being brought in by their momma’s, so cute!
illimae
Re: August 2024 Surgery Support thread
@eileenmk64 Congratulations on a successful surgery! I'm glad she didn't need to take too many nodes. That's great news! Rest up! You are one step closer to putting cancer behind you.
cmre00
Re: August 2024 Surgery Support thread
@eileenmk64 so glad your surgery went well. I too did not have pain the first day, but I sure needed medication the next couple of days, especially so I could do the arm exercises prescribed by my breast surgeon. Take care and rest.
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish, lentils do not have a strong taste, they take on the taste of whatever it is put in. Nice thing with them is there is no real work to add them to something. I even add to eggs or rice at times or on a pizza, whatever you wish. I also prefer canned lentils as I do not have the patience for dried.
Shanagirl, I don't honestly have a good reserve of energy, just take breaks every few minutes, even when I dress or put my makeup on. As long as I get stuff done, don't care how long it takes.
Had my RO appointment, virtually identical to the call in appointment is MO last week, stable for the blood pool in head, no change in brain.
I am going to have meat pies for dinner tonight, simpler meal since am going out with DB.
My first post did not go through so hope everyone has a good evening and in pockets sending sleepy thoughts when you go to bed.
Re: Zoom Meet-up for Those With MBC: Place to keep chatting
What a beautiful view, Ilimae! ☀️🌈
Re: Anyone starting brand drug, Enhertu?
Appetite seems to be coming back, we are making chili this weekend and I was drooling looking at recipes and then doing the online grocery shopping. Got stuff for sundaes and new high protein smoothie recipes. Had chicken dippers nugget things, baked potato and cottage cheese, and a milkshake for dinner like a five year old. Got a week before next infusion so hoping I can pack on a bit here and at least stay level weight hopefully. Also had a scan of chest as MO wanted to check lungs. Overall feeling pretty good just a bit tired from activity today, I think my right glute is functioning for the first time in 18 months!
sondraf
Long term survivor examples.
Just an idea came across my mind.
Can we share stories and examples of long term triple negative survivors. They dont participate in such forums. So its only by word of mouth that we get to hear about them.
But I also see few of them in this website, who themselves are long term survivors. I feel so happy to see how they have moved on so beautifully with their lives.
I know two such women. Both close to 10 years out of diagnosis. Both without any family history of cancer.
One diagnosed in 2003 and another in 2004. Both were in their late 30s then. Those days they were not aware that they were triple negative. But they say that tamoxifilin didnot work on them, they had only surgery chemo and radiation. So in all probability they were tnbc patients.
One was stage 1, another stage 2b. One had 6 rounds FEC and another had 6 rounds TAC. They both have yearly check ups now and are leading completely normal lives.
I also know another woman, who got diagnosed 5 years ago but stage 3, body didnot respond to tamoxifilin and had complete mastectomy. She had 6 rounds TAc, plus rads. Living a normal life...and put the entire episode behind her.
If you also know someone having similar treatment and diagnosis years ago and is still living ...please share. It will be very insipiring.
Love u all!!
BanR
How has normal, day-to-day life changed for you after diagnosis? Share your “different normal.”
We're using the phrase "different normal" instead of "new normal" here.
A person's transition out of active treatment into this "different normal" varies. All people and situations are unique. There are no right or wrong answers or timeframes.
Share your experiences here!
Re: Terrible pain from tissue expanders
Hi JennyJenny! Hope you’re feeling better.
I’m two weeks and two days post op from a double mastectomy and with expanders in filled during surgery. I got my drains out today.
Do you think your pain may be your nerve ending waking up. It sounds like it and that’s a good sign.