Best Of
Re: ER-, PR-, Her2+ Roll call
Welcome, @beekaycro24. We're so sorry you find yourself here, but we're glad you've joined our community - this is such a wonderful place to come for support, guidance, and advice. The first days and weeks after a diagnosis are so scary and overwhelming, but you are most definitely not alone! We're all here with you and for you.
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Re: ER-, PR-, Her2+ Roll call
Hi @beekaycro24! {{{hugs}}} Welcome to the group! I’m sorry for your diagnosis.
It’s normal to feel numb at first— I did. There’s so much to take in. I’m also ER/PR negative and HER2 positive, and I’ve read over and over how it’s true that HER2+ cancers often respond well to chemo, which is a good sign.
Your oncologist will give you more details at your appointment. Mine laid out my whole plan. So try not to let Google scare you too much! (I make that mistake a lot!) I’m trying to focus on gathering info from the doctors, but the waiting is always hard.
My husband took it harder than me from the beginning. I keep needing to remind him that freaking out does not help! 🙉
Know that you’re not alone. We’re here to support you 🩷
Re: Can we have a forum for "older" people with bc?
It is 92 just now. Hotter than I like it but I do see our flag flapping pretty good now and then outside, so I hope that means we have enough breezes to make it tolerable. Likely do banking tomorrow in the morning. Too hot to make Red stay in the car today too much.
Sorry you had to wait on your PT release, but I think it really sounds like she wants to follow you closely and make sure all bases of your care have been covered and probably to give you a green light where she is concerned when you get home from your trip.
I love salads and I prefer to make mine at home myself. Just mainly to have full control over what goes into it. There are minor amts. of salt, but in a restaurant, you really are much more at the mercy of where they get their supplies and what they might use as far as flavorings etc. If out with others I will order salad and be cautious in my use of dressings. I really have gotten to where I don't use near as much salad dressing and like the stronger flavor of the lettuces and veggies toughed lightly with the dressing. None of the flavors are covered up very much and I'm far happier — just had no idea I would be.
Hmmm, it is getting a bit darkish out and I'm wondering if it will rain or something. Anway without further ado, my Pet Scan stayed gray. No sign of pink anywhere. My lung nodule is now NED and hopefully will stay that way. In four months, I will have a CT to see if things are staying stable. It is certainly high on my hope list that ends up being the case. A further bonus is that in having this scan with no changes at all, my mammogram scheduled to happen in less than two weeks should be fine as well. My Pets are done from top of head to thighs — so my whole chest was gray — which should indicate a good mamo result as well.
We had Red with us and three ladies, and the Dr. came out to interact with him. He seems to 'steal' the show whenever we take him out and I told Dr. K that he was my good luck charm.
Harley I'm sure its exasperating to want to GET done and then have things put off again. Hopefully though you can use the time to capitalize on good times with family for now. I do hope though you can get that last one done so you too can move on.
Betrayal, I sort of feel for that lady you talked to who has the somewhat different program and it sure sounds like she wasn't given the best information at all. I can't imagine thinking you will be able to do something so soon. Well, maybe you can actually do it — if you are willing to have a whole lot of discomfort and pain and likely feel almost as disabled as before you had your surgery. I'm also wondering I guess why she got a yes (maybe a different surgeon from the same group) for her surgery and both your knees as bad as they could be (or so I thought) and you got a no. Just interesting. Anway, I hope she is able to go with the flow. She will find out just what it will take on her other knee if she ever needs it done and if she is a tennis player she likely will.
I'm thinking of all of you, posting or not today. Hope you stay well and continued prayers for Puffin.
Re: Can we have a forum for "older" people with bc?
DH had a free entree coupon for a local restaurant that only does breakfast, lunch and brunch so we went to use it before it expires. He had Grande Huevos Rancheros and I had the 1/2 Cosmopolitan salad (chicken salad with craisins, grapes, walnuts and greens with citrus lemon vinaigrette) and mac n' cheese side. It was delicious but it seems when I eat restaurant salads my GI tract goes into rebellion. Happened after I ate part of DH's salad at the Capital Grille and again today. Both dressings were a form of vinaigrette so I may have to avoid salads on our trip. I can eat salads at home with no issues though. Sorry if this is TMI. Gut hasn't been the same since my bowel resection surgery.
Illinoislady, hope you get good news on PET scan results. Lil' Red sounds so cute and at his current weight I have 3 cats who outweigh him! Tawny is the heaviest at 13 lb and the other two weigh around 8.5 lb each. What will he weigh maximum?
Harley, sorry you could not get the last dose of chemo and hope your numbers improve so you can get it soon and mark it done in your check list.
I won't have internet access while in Europe to be able to read so I will have a lot of catching up to do when I return.
At PT on Wednesday, I met someone who had her knee replaced a week after me. She was complaining about continuing pain and swelling ( part of the recovery and ongoing for up to 6 months or longer for some) and mentioned her orthopod doesn't believe in post-op PT. She just started PT at 7 weeks post-op (I started at 3 weeks) and was bemoaning the fact she can't resume playing tennis yet! Said her incision was tender to the touch (as is mine with some textures). I think I know which system she used for her surgery since I approached them first and was turned off by first the surgeon who knowing that both knees were bone on bone, and I was having ambulation issues dismissed me with "wait to have surgery". They also present you with a handout on PT exercises to do on your own and do not order out-pt. PT. I contacted my PCP and she recommended the orthopod I used. I tried telling the woman that it the norm is 6 months before some of the SE's are minimal and a year before you forget you had the surgery. She did not want to hears this and insisted she was told she could resume tennis at 4 months post-op. My PT called out sick today so I will ask at our next visit how it ended.
So do I love my PT? Absolutely because I was scheduled to be discharged today but she had the receptionist call me to reschedule for Tuesday. At first I was reluctant because her Tuesday appointments are from 12 -8 and I was not originally on this schedule. Then the secretary tells me that she didn't want another PT to discharge me because they don't know me and she was willing to come in at 11 AM on Tuesday to fit me in. I didn't want her to have to do that but she was insistent about being the one to discharge me. So I will rearrange my schedule and go on Tuesday. Then Misty spills DH's coffee all over my PT handout for the trip so I am asking her to send it to me so I can print it. All 14 pages bear evidence of the coffee spill and smell.
Plan for today was to finish living room and dining room and start to pack non-essentials. I need to get a start on this. So I am waving hello to everyone, hoping recovery and aches/pain are minimal and that you have a good day. It is overcast here, in the low 70's and the promised rain has yet to show. We need it desperately so I am hoping it isn't a total wipeout for the weekend but we get enough to offset the drought.
Happy Labor Day weekend to those who won't check in over the weekend.
Re: So...whats for dinner?
Mae - sorry for the rough week but kudos for the Betty Crocker. For many years I served those au graten potatoes at least once a month. Not the same as my Mother's home made, but were great after working all day & then having to create a meal.
Maggie - I had to look up "radiatori pasta". Not something I'd ever heard before.
Special - my ex-DH grew up in Salida after his Dad decided he needed to learn about the land and moved them from Houston. We sort of headquartered there for every summer vacation & roamed the mountains. Love Chaffee county. I too hope your results are not remarkable.
Nance - so glad to see you more often. Are you through with doctors for the time being?
Wally - I envy the fishing. I prefer salt water fishing or mountain steams - but much Texas prefers lake fishing. I am going to try the pork/veggie combo.
Hi to everyone else.
Dinner was an omelette with mushrooms & Havarti paired with an English Muffin (and butter of course). I had planned pork chops, but the day got away from me. So chops tomorrow. I have three sauces lined up un-opened that I had to replace after the storms: Bibigo Korean Marinade & BBQ, Trader Joe's Sweet Chili, and Hoisin sauce - as well as a new one I haven't tried yet - Bachan's Original Japanese BBQ Sauce.
Re: So...whats for dinner?
The leaves are starting to change where I live, too. Fall is my favorite season so I’m happy. Of course, I don't have a long trip south ahead of me.
Nance, Shortcuts are smart cooking. I eat quiche for the filling, not the crust.
Doodler, I’ve been to the Bourbon St. Grill in Waterloo and it was a crazy mix of cajun/creole/asian dishes. I guess there’s something for every taste and, as you said, someone else does the cooking.
Dinner tonight was chicken breast pieces in an artichoke/sundried tomato sauce over radiatori pasta.
Re: So...whats for dinner?
After a very tiring day, week (heck, year), I decided to skip cooking supper and went to a mall food court.
I went to a place called Bourbon Grill, I think. Assumed it was southern style BBQ type cuisine, which was most of it. But it also seems to have a menu resembling a Chinese take out, with egg rolls and Asian-style noodles? Southern/Chinese fusion takeout? It was different, but it was OK for an evening when I wanted carbs and zero cooking effort!
Re: So...whats for dinner?
Glad you got to share dh's meal, Maggie.
DH was up at 6:30 (golf day) and turned on the heat pump to take the chill out of the camper. It will be warming up during the days but the nights will cool down. We're starting to see change of color in leaves.
The pot roast and veggies tasted good and leftovers for another meal.