Best Of
Re: Ibrance (Palbociclib)
@sully01 sorry about the loss of your beloved pup. I hope he went straight to pet heaven. And thank you about my progression. At first I was overwhelmed at the thought of a whole new treatment plan and dealing with a whole new set of side effects. But I've kinda pulled myself together and relaxed as I contemplate my next PET-SCAN. Ive read some very encouraging stories here of women braving so much. Surely I must also try 🙏🏻🙏🏻🤗🤗
@wren44 Sorry youre dealing with progression and I hope the Doxil and Faslodex plan does the trick. Did the biological markers of your metastasis change?
@chicagoan I hope the cryoablation goes well, but keep us posted. Ive also been otherwise stable, despite the new breast lesions. Im keeping an eye on things to see if i really need a change of medication. You've shed some light on a grey area. I take it the breakout tumour was a new development? Im sorry about that.
@brutersmom 73 snd still working out. Way to go girl. I try to do "something" everyday, but the fatigue sometimes gets the better of me. Thanks for sharing that very detailed guidelines on how to manage Faslodex. Ive saved it for future reference. I do wish meds came with some kind of information to help us manage the process with minimum side effects. But, at least we have each other
Love and hugs to you all 🤗🙏🏻❤️🫂
Re: Ibrance (Palbociclib)
@chicagoan thank you I’ll check out your thread.
@brutersmom thank you for all that info about Fulvestrant shots. I’m so worried that will be in my future even tho it is an effective treatment. I have zero fat on my bottom, now don’t ask about my belly lol
sully01
Re: My Husband, My Life, My Love, My Family, My Cancer
Thank you everyone for your support. It really means a lot. I have an appointment next Thursday with the orthopedic oncologist. I'll find out what the he advises and keep moving forward.
Re: Second time around questions
Hi @crossh -
Sorry that you didn't receive the news you had hoped for and you are right…things could be worse.
You WILL get through this!
We are all here to help you.
Take Care.
mandy23
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Jimmy Kimmel was at the No Kings rally here in Torrance. He was so nice about having his picture taken and interacting with the crowd.
mom2bill
Re: DCIS: choosing surgery only, followed by monitoring
Hi joce, Congrats on your low score. It help may inform your decisions but not make them "walk in the park" easy. For comparison, my score was 7~~ 4% recurrence, 3% invasive risk. I was grade 2, 95% ER/PR+.
If you read through my posts you will see, I got the most aggressive push back from the radiation therapists. Did that have anything to do with the $150 co pay, per visit, above what my insurance covered at the time, for the 5 day a week/ 7 week tx they were pushing? We'll never know. I do know they would not adequately address my concern that if I did have a DCIS recurrence after RT, another lumpectomy would not be an option, pushing me into a full MX instead of more conservative options.
Regarding medication. The hormone blocking drugs carry their own set of risks, as do all meds. It's important to know your family hx & overall cancer risk. My mom had early uterine ca, treated first w/ D&C, then full hysterectomy in mid 40's, my dad- prostate ca in his 70's & my brother testicular in his 30's. All successfully treated, as in life altering but not fatal. When I looked at the risk w/ meds for uterine or endometrial cancers, the percentages were higher than my recurrence risk, which for me was unacceptable.
When I went to speak with the MO, after the push from the RT, I went armed like a PHD student defending a dissertation. I even said point blank "if I'm being stupid about my risk you need to tell me bluntly and explain exactly why". He listened to all my research and concerns regarding multiple tx scenarios and said he was comfortable with intense monitoring given 3 things. My low Oncotype number, the amount of research and reasoning that was done and my family history.
Be your own advocate and make the best decision for you alone, your body, your life. Good luck!!
Research: Google the LORIS project out of Europe, some of the research on DCIS from the UK and newer info from NIH.
yogamom2
Re: Can we have a forum for "older" people with bc?
We made it to DC. Long day but worth it.
There was a small group of protesters outside the White House. Few National Guard, mostly at the Jefferson Memorial. We walked over the 10k steps, over 4.6 miles. My feet are tired
We’re here until Sunday night. Plenty more to see.
cindyny
Re: Can we have a forum for "older" people with bc?
You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.
betrayal
Re: CT and Lung Nodules
kk,
So good to hear about your CT. I am still waiting for my resolves and it hasn’t been out in my patient portal. That sucks. I see my Dr in a week so I should see it then. Am I the only one who doesn’t get this in there portal.
Marge
Re: CT and Lung Nodules
Marge, It’s too bad you have to wait for your doctor’s appointment to get your CT results. My pulmo usually has something to add but It’s nice to know what the radiologist reported in advance. I hope you get good news.
Yesterday I had an appointment with a neurologist where ambient listening technology was used. AI is used to transcribe and analyze what is said to come up with notes. The appointment included a complete neurological exam with tons of measurements which were recorded in tables. One relevant factor wasn’t mentioned but compared to all the cut and paste notes that usually show up in after visit summaries it was much more accurate. I also got a portal message with a short visit summary, plan, differential diagnoses and next steps. I was skeptical about the use of AI but this seems to be an improvement.
maggie15