Best Of
Re: Thinking about refusing chemo...anyone else?
Thank you all so much for your help and research that you have posted here. It is going to be really helpful once I get my score back.
Dorothy-Thank you for such a detailed account of your experience so far with radiation. That was exactly everything I was wanting a first hand account of and I appreciate you sharing!
Re: Thinking about refusing chemo...anyone else?
Dorothy, that chart on page 6 is a perfect example of the apples and oranges comparison.
The top chart shows a significant difference between the orange (hormone therapy + chemo) and grey (hormone therapy only) lines at a 25 score. But when you shift to the bottom chart (which uses the newer TAILORx results), that difference is gone and suddenly at a 25 score, the orange and grey lines are right on top of each other. Also notice that the grey line, hormone therapy only, represents about a 12%-13% metastatic recurrence risk on the top chart, but only about a 7% metastatic recurrence risk on the bottom chart.
The problem for the Genomic Health people is that with the TAILORx results, while they know more about the 18-25 scores, they now have a huge and obvious gap in information for the 26-31 scores. Those scores used to be "intermediate" but were reclassified as "high" for the TAILORx study. Now the question is whether those scores are really Intermediate, or are they high? Genomic Health are using pretty and complicated charts to hide the inconsistency in the data. But the inconsistency is right there on the page.
Re: how about drinking?
I asked my surgeon about taking both off. She said NO. She felt that would be too much for me after what I'd already gone through. I had the lumpectomy, then she didn't get it all and after lumpectomy I had an infection.
After seeing how difficult the single mastectomy was, I can see why double would have been pretty bad as far as recovery.
Re: Can we have a forum for "older" people with bc?
Ketchikan show and clan house interior.
Re: Can we have a forum for "older" people with bc?
Endicott Arm Fjord and Dawe's glacier.
Re: Can we have a forum for "older" people with bc?
Mendenhall Glacier and Nugget Falls plus Red Dog Saloon interior.
Re: Can we have a forum for "older" people with bc?
Sandy, my condolences to your DS and DDIL on the death of her father.
Like your friends, I am amazed that you were not able to participate in your kitchen design nor the paint choices. The adjuster we had at SF just sent checks and did not want any involvement in what happened with the restoration of our house. I chose the paints used, supervised the floor installers and finishers, etc. True, I was on site, which made this easier.
I had my appointment with my new PCP, who is family practice, and not an internist as my prior one was. We reviewed my medications, reasons for using and PMH which contained a lot of inactive dx which she archived. There was a lot of duplication in dx, such as osteoarthritis multiple times, which she was able to delete. It was an opportunity for a meet and greet where I discussed what care I needed and we discussed it. I will miss my old PCP for sure, but I am willing to make it work.
She was formerly with a healthcare system which just shut after poor management, and it resulted in the closing of 4 community hospitals, one of which was the only trauma center in the entire county and another where I took my students for their clinical experience. It displaced many physicians and thousands of hospital employees including their RN's. I have heard from former students who did land new positions elsewhere but many have yet to find employment.
I asked how long she had worked there and she replied it would have been 20 years in June. All of their former patients are scrambling to find new physicians, and many are coming up empty, with no one to order prescription renewals or inability to get a timely appointment. Long story short they were bought by a flimflam company named Prospect who has a reputation for buying hospitals, increasing their debt, they sell the land they occupy, and then leasing it back at a gouging price.
My DD and I had the trip of a lifetime. We had excursions to the Mendenhall Glacier, a Juneau tram ride to Mount Roberts top and then dinner at the Red Dog Saloon. I have a coat I bought many years ago from there and they no longer make them. I was hoping to get a replacement though mine is still in good shape. DH wanted a shirt but they had no golf type shirts which is what he prefers. I did find a denim shirt with their logo on it and a Red Saloon hat which pleased him. It was foggy, so not much of a view of the surrounding area.
The next day we had a catamaran excursion in the Endicott fjord to the Dawes glacier and saw it calve 4 times. I will post pictures from my phone, it is easier than trying to transfer them in. On Thursday we went to a Lumberjack show in Ketchikan and then a tour of Totem Bight State Park. Our guide was very knowledgeable for someone who had only resided there for 5 months and was a newly wed. He made us laugh when he said milk was $10/gallon and as one who loves cereal, his wife was unwilling to purchase milk so he'd had to learn to eat dry cereal. She asked what he wanted for his birthday, and he asked for a gallon of milk. She paused and told him, "she would think about it". He said that there was a lot to learn while being a husband and one was that "I'll think about it" generally means "no" since he did not get any milk. It was raining that day so while the show and tour were pleasant, the weather was not. My fleece lined raincoats, plus layering, kept DD and I comfortable.
Unfortunately, our High Tea at the Pendray Mansion was cancelled due to low enrollment. We arrived at 8 PM and docked over 1/2 mile from town so we opted to stay on the ship. There didn't seem to be cabs in the area either. It was disappointing and I don't know why Victoria was a port of call. They advertised a tour of Bouchart gardens but the bus ride was an hour each way and it left maybe 45 minutes to explore the gardens under lighting. We were sailing at 11:30 PM. I would rather have gone to Sitka.
DD found a cats eye cabochon Alexandrite ring she loved. It is her birth stone and we did bid on it in the auction they held, but lost to a higher bidder. Then we found a one of a kind one (heart-shaped stone with diamonds) and were able to get it for a better price. It is being sized. I found my birthstone in a ring, in another case found the matching pendant and later found the matching earrings. The final price made it hard to say "no". I had to send the ring to be sized as well.
We explored Pikes Place Market on Friday when we arrived in Seattle to pick up the cruise and on the Saturday when we returned we planned to do the Underground Seattle tour. The former was great and I just love the flower market there. As far as the Underground, I was a participant until I found there were 17 steps to be climbed in addition to the hour long walk. The walk I can do, the steps, not. So I was able to get a refund and sat in Pioneer Square, people watching until she returned. There is a French cafe in this square that we decided to have lunch at. She had the goat cheese quiche and I had the chicken salad. Both were delicious and I was hoping to have room for the fig topped pastry shell dessert, but alas, I was full. We did purchase a pastry each for Sunday's breakfast, since we were a 5 AM checkout for our flight home and their dining room didn't open until 6:30.
Today was a trek to Costco to get tires installed on DH's car and DS joined us while we shopped. He always has a list though today, by past standards, it was a short one. He bought DH lunch, but I was still full from breakfast.
Tomorrow we go for the new Covid vaccine, with the flu shot to occur at the end of the month. I don't want to do two together, but want to have both before we set sail for the Panama Canal next month.
I hope everyone has had a great day. It is overcast and chilly here so I am glad we had an indoor outing. Waving "hi" to everyone I didn't mention.













