Best Of
Re: Awaiting results for stage 4 mets to liver and lung
@rink23 I'm really sorry you're having to go through this. The biopsy should show what kind of breast cancer it is and that will determine treatment. You might also want to request a more thorough genetic test (ie. Signatera, Tempus) to see if there is any relevant genetic expression that might be driving your cancer. Some kinds of breast cancer mean rounds of chemo. Others mean that you start with an oral treatment. You will know when you talk to your oncologist. Until you know what kind of cancer it is, you won't know quite how to proceed, but there are many here with triple negative, ER+, HER2+, etc, who can give advice then.
Re: I am not grateful to my oncologist and care team
Mgradie,
For neuropathy, I got great results taking a sugar-lowering drug, Jardiance. Peripheral blood sugar irritates nerves and this drug works so well for diabetes-induced neuropathy that they are considering moving it to the first-line treatment recommendation. My MO was willing to prescribe it for me, although I am not diabetic or prediabetic. I had significant neuropathy for several years and assumed it would be permanent, but now its pretty much gone, no pain, and just a bit of numbness in one area if its really cold out. It seems that even if the problem was caused drugs rather than by high blood sugar, as is the case for diabetic neuropathy, it may still help a lot (ie way better than gabapentin or accupuncture) to try to lower the blood sugar.
Re: Can we have a forum for "older" people with bc?
Busy day so far and it is still early. I made a list of phone calls I needed to make and have been trying to plough through them. I have been trying to schedule an annual appointment with GI since my appointment in May. I have made multiple calls and emails via portal with no luck. Today I get an email from them to call the office to schedule an appointment timed 7:45. At 9:30 I call, get a very helpful rep who has to update my Medigap info, I am on hold multiple times as she has to check things, only to find out at 10 that she has no access to the appointment schedule. I did express my frustration with how this is becoming a game and I don't know the rules. I am concerned about my prescriptions running out and even with their assurances that they will continue to refill them after this time, I am sure I will get a text from CVS telling me otherwise. Although I have only been seeing her for 2 years (after my previous physician retired), I have been with this practice for nearly 30 years and this game playing is stressful. So no appointment and now I am told I will get a call from an administrator about an appointment, meaning I will most likely miss it because I have a life and don't relish being a prisoner to get a return call. Ugh!
Next call was to drapery company to come pickup my drapes, sheers and the valance from the dining room since DB told me he will be here next Monday to paint it. So I will need to box up contents of china closet and move all other room contents to the living room for temporary storage. The table will have to remain because there is no room for it. It will be so nice to once again have organized rooms once he is done painting there and doing the ceiling in the guest room. That will be the final project for the guest room since the closet is now not only organized, but culled.
Once the dining room is done, we can relay the rug there and the living room one, too. While I am unpacking the china closet and its storage base, I will sort through what is stored there and think some of its contents will be donated and others consigned to the attic storage. I have extra china stored in the base as well as displayed in the china closet and the overflow can go to the attic. I have better uses for the space it is currently occupying. So disorder will reign again so order can e restored.
I thought I would get to DD's closet and will still plan on trying to get to it this week. If necessary I will just do one hanging section (3) at a time and the focus on the shelving that separates them. I use this for closet for summer clothes and those that I reserve for travel. So I do switch out summer for winter clothing from my daily closet as the seasons change. It means I will have to try on clothing, so this does slow the process some. I already have one large leaf bag, several boxes and a very large box ready to go to a charity.
petite1, sorry to hear about your friend and wish her a speedy recovery. I hope that whoever moves on either side of you are lovely neighbors. If I lived closer, I would offer to buy you a drink for all you have had to deal with lately. I don't, so I'll just send you a huge (((HUG))).
wallycat, I'd make you the same offer, so will a huge (((HUG))) suffice? I hope things go smoothly for your DH and it takes care of what ails him.
cindyny, your Mr. Handy skills continue to amaze me. I don't like the ice maker on my new refrigerator because it has a tendency to overflow into the back of the drawer where I cannot easily reach them. we don't use much ice this time of year, so I need to dump it more often because the contents resemble an iceberg otherwise.
sandy, hoping the show was a huge hit and your group received a standing ovation. I am sure it was fun and another chance to demonstrate your musical and vocal skills.
After multiple gray, dreary days, we finally got sun and some warming temps for a change. It is supposed to hit the mid 40's today and I hope to get out to the grocery store and to the pharmacy. I need to purchase a beef roast I can cut up to make vegetable soup and pickup a few other items for the pantry. I have a question for the pharmacy regarding a prescription I just finished. When I went to peel the label off the container prior to recycling, I notice it felt quite thick. Lo and behold, there was another label with a persons name and prescription number under mine. What made it distressing was this person lives in the northeast part of Philadelphia, her prescription number is not even close to mine and there was some sort of other label to hide this behind my label. WTH! So I intend to ask why this would happen. It was the correct medication in the container and her prescription was for it as well, so are they recycling meds? Lots of questions with no answers.
I vacuumed primary bedroom this morning and the upstairs hallway. I remembered the bin this morning so I can pack up the fragile Christmas bird ornaments. Called the dentist office to follow-up on bill being submitted to insurance. Added to grocery list so I can make soup, and all before breakfast. Feel like I've already run a marathon and still have more to do.
Hope everyone has a great day and waving "hi" to everyone.
Re: Can we have a forum for "older" people with bc?
We are what our thoughts have made us; so take care about what you think. Words are secondary. Thoughts live; they travel far.

