Best Of
Re: Can we have a forum for "older" people with bc?
Why the cruise opted for a 3 plus hour stop in Victoria is beyond me. The tea was to be at 8:30 pm and the tour of Bouchart gardens was under lights with the recommendation to "enjoy the scents" since let's face it were the flowers really worth a 2 hour round trip? I'd been there during daylight hours years ago so felt no compelling need to explore them or the city after dark. We were at least a 30 minute walk from town and I saw no cabs at the docks, so we scratched it off the list
DD was disappointed because she was looking forward to getting off the ship. She had been to Victoria before as well.
I loved the period clothing for the play. I love her books so I would like the play. I hope it does well.
Quiet day with muted sun and temp in high 70's. Did some light housework and pulled some weeds in fern bed by patio.
Medicare seems to have approved prescription for Lidocaine patches since I sent email to CVS saying I would use Goodrx and pay out of pocket. Pharmacist called to say Medicare approved so I will pickup filled prescriptions tomorrow. Also need to pickup an oximter for overnight study I have to have.
Tried again unsuccessfully to access pulmonologist portal since they are not EPIC participants. Have chest CT on Thursday so I wanted to see results. Called office fir assistance for accessing only to learn their portal is used only for emails? Why bother? So receptionist told me to call office for results which I will do. I have an appointment in November, but have no desire to wait that long for results.
I hope everyone had a great day and waving "hi".
betrayal
Re: Can we have a forum for "older" people with bc?
@betrayal sounds like a cruising screwup in Victoria. And yup Buchart Gardens are not nearby. How rotten for you. Nice to see the photos of Pike’s. I haven’t been there in decades but have fond memories.
Everyone this week is what is affectionately known as hell week in the theatre. We have our preview next Monday. Here are a few photos of Agatha Christie’s “The Hollow” here in Saanich a hood of Victoria.
Re: CT and Lung Nodules
Maggie you are right I was. Worried about my liver I guess it’s has went to mild and I think your right that interval decrease in centrally calcified granuloma is the lung nodule we been watching. I will ask tomorrow.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove - At first when I read your suggestion that we get Legos in our stockings for Christmas, I thought you meant like lumps of coal if we were bad; then I saw your actual meaning re handing them out to others (idiots). Oh, those Legos can keep us laughing for awhile. Thank you, Mara.
I'm so sorry that the epidural didn't seem to work, especially given all you have to go through to get it. Bummer! That hand massager sounds nice and I might keep it in mind for my arthritic fingers. Well, I wish you a better tomorrow also, and I agree that we all just need to keep the faith and trudge on. Sending a hug too.
Re: My Husband, My Life, My Love, My Family, My Cancer
Oh my gosh Mara, how about legos in our stockings for Christmas. Then we can put them in our pocketbooks to "share" with idiots. Thank you for the laugh, much needed. Hope they move along with your treadmill. I know you will make good use of it, some of us just park it in a corner and forget about it. That would be me. My DH found a great machine to insert your hand for a lovely massage. It has controls for male or female and lasts about 17 minutes each hand. It helps with osteo arthritic fingers and carpal tunnel, too.
I was lucky to get hooked up with a medical Dr. for therapy. She's out of Texas, and is a hoot. I'm limited by insurance to 15 minutes every 4 weeks. I adore her and well we make each other laugh. Then I get a bit more serious but she isn't a replacement for family in my home or life.
The epidural with meds has worn off. sigh. It might have been placebo affect or the timing of my pain meds that gave me the impression it was working. I am so disappointed, highly doubtful I'll try the 3rd time. The migraines are horrific and I believe related to the treatment plan.
In pockets for all of my sweet friends for a better tomorrow. We sure walk thru hell, don't we? Gotta keep the faith in God and in ourselves.
Laurel
MRI for higher risk cases (for my daughter)
Hello, dear All
I am this time trying to find out what to advice to my daughter, who is healthy, and she is 46 years old. But as my daughter(i had a breast cancer in 2019, had lumpectomy and radiation, taking exemestane for 5 years), she was told she has 20% risk to get breast cancer during lifetime. No BRCA gene issue, i was tested.
Now her gyno says because of elevated risk, she should have mammo once a year(no issues here) and also MRI every 6 months. So for example mammo in January and MRI in July, and this is every year.
Please let me know if this is reasonable, because i have never heard of this type of testing.
I myself have mammo and sonogram every year, after my diagnosis, and if something suspicious, i am checked in 6 months(it happened once since 2019, and was not cancer).
I just want to understand if it is too much testing for my daughter or it is what needs to be done. thank you for your experiences. and wishing health and healing to everyone.
Re: I WANT MY MOJO BACK!
I can’t point you to the specific study but the practice has changed recently bc the data shows no risk. My MO who was always opposed to this gave me the thumbs up for local estrogen cream like a year ago in light of robust new data. So check with your MO
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove Remaining positive that number 3 will help, fingers crossed.
@mara51506 Yup the caffeine in chocolate seems minimal but obviously you're sensitive. Moving schedule up should do the trick!
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Well, just got my butt out of bed, did have some trouble sleeping but that was my fault entirely. I have got to eat my last meal earlier and no chocolate. I had some M&Ms in the evening and bang, it was 4 am again. Need to get in gear more. I am no longer a teen who thinks it is cool to stay up all night.
Got laundry on the go, one load done, will be washing up the litter mat as well but need a vacuum and mesh bag for that process. I will decide
Garbage night tonight, will take out at least 3 bags, I realize I should make them a bit lighter so it is easier to take them over to the bin.
Not sure about food, got the mix of beans and beef to finish up. Adding some KD elbow pasta and not sure what else. Later meal probably an egg sandwich. I did just notice on my amazon site they added Door Dash right to the site, another thing to stay clear of. No need to be tempted to order Mcdonalds since I have done pretty well at fewer fast food purchases. I am still endeavouring to eat real food, be just as quick to have that made and less money. Also, the cost of the Mc D stuff is prohibitive when I can put together an order budgeted at 35.00 and get more food that way. Between a Walmart 5.00 gift card and 5.00 rewards, I was able to get a good amount of food. So it was 37.00 which is not bad. I got lots of frozen meals, queso bowls times 3, couple of penne alfredo and chicken, 4 cans black beans along with canned ham, multiples of each. I am also going back to black beans and if they need to be in some sort of sauce, I can take one of the many sauces I went overboard on.
I do hope all have a good day and in pockets for all including myself to get all my stuff done.
Re: How are people with liver mets doing?
@maggie15 wholly moly! Good for you for not giving up and following through on all that. I agree that information is really invaluable. Thank you again for sharing such detailed information.
I had my ascites drained this morning and feels so much better. 😊
dulcea