Best Of
Re: Can we have a forum for "older" people with bc?
betrayal, not a knowledge of characters as such. More an admiration of how much English culture— even in Vancouver— has changed in the past hundred years.
mcbaker
Re: Prophylactic Mastectomy
Hi😃. I’m actually going tomorrow for the first phase of my prophylactic mastectomy. I decided to do the DIEP reconstruction instead of implants. My PS is starting me with a breast reduction/lift surgery. My bilateral mastectomy is scheduled early April.
Re: My Husband, My Life, My Love, My Family, My Cancer
I love all the chatter here. It warms up my day!
@chicagoan I agree with the others. Those are confusing comments from an expert. I have no knowledge or experience to add to your decision, but I would seek a second opinion if possible. I have never done this, but now sounds like a good time. It sounds like he is only concerned with the hip pain and sort of compartmentalizes the mets. But we are a whole body!
@irishlove It's hard to spend precious energy on cooking only to have to throw it out. As we retire, we have more time to experiment with cooking yet less tolerance of the outcome, at least that is the case in my life. Hope you are feeling better.
@mara51506 My DH says it is national pancake day so we are having pancakes tonight (with eggs and fruit, etc.) Not as nutritious as your meals, but as he will help with the cooking I'll take it!
We had our first low temperature in the 30s last night although it is supposed to reach mid 70s today. The Rockies are gearing up for winter! Sigh…
Re: How are people with liver mets doing?
Threetree- I hope you have a good appointment. And I understand you wanting to have a consultation with the histotripsy doctor, as more knowledge is power. But I too have hesitated in having "procedures" done- Y90, ablation, etc (there was not histotripsy back then). In my cancer journey I have had MO's that wanted me to consider such procedures. And I have read of others on here that have had procedures done (and to each her own). I have not done them, as I too thought they may buy me some more time, but they are not curative. And they sound painful, with a couple of weeks recovery, and I do not have a good support system to help me during recovery. So I have just done the meds. And, so far, I am 8 years into MBC with liver and bone involvement and stable on the meds. I may have to reconsider procedures at some point, but as long as I am stable, I will continue the treatment with meds.
Re: 2017 BC Diagnosis…how are you doing?
Insurance coverage is so variable. The insurance I had before I retired (my medigap is through them) still classifies FES as experimental. Medicare couldn’t tell me whether they would pay but they did. I was a bit concerned but my MO told me she had a solid case if it was denied. Was your cancer ILC? FDG seems to be unreliable picking that up. I’m glad you got the FES before the cancer left your lymph nodes. You’re in for some serious treatment but your MO sounds positive about the outcome. We’ll all be pulling for you.
maggie15
Re: My Husband, My Life, My Love, My Family, My Cancer
Chicagoan- I understand how you would be confused/disappointed in the ortho onc appointment. That is strange that he seemed so blase. A 4cm tumor is nothing to take so blase, I would think. I will be interested in hearing about your Oct 18 appointment with the other ortho.
Another thing, would the cancer in the hip cause the bone to be brittle??? As I am sure you know, during hip replacement they drill into the femur to place the rod portion. I would be concerned that the cancer could cause problems with the drilling. I don't have cancer in the hip- not that we have seen on MRI's anyway- but I question if my bones would be unstable for hip replacement, as I have bone mets anyway (just not in the hip area). My doc just says I have osteoarthritis and need a hip replacement. But I have documented bone mets in the pelvis and lumbar spine.
Is there another ortho onc you can see to get a second opinion? I don't know if I trust this guy's opinion.
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove Oh, you will hear from me anyway. I am looking forward to the treadmill being back myself. My posts will probably be happier, who knows. I am sorry your recipe was so salty, never tastes good because of that. I do find that dry seasoning is much higher in sodium so when I want extra flavour, I tend to use liquid stuff like salad dressing, sour cream and flavoured mayo, I measure it as well. My BP can generally be low but get higher when at hospital appointments. Only thing is that when I do not have enough sodium, the muscle cramping in my body sucks the big one so have to stay close to what is recommended.
Re: My Husband, My Life, My Love, My Family, My Cancer
Good early morning ladies. @chicagoan Well that's gotta be frustrating as all hello. Stress takes such a darn toll, too. I'm not sure what qualifies as true progression, do they need more than one site to consider it such? I don't know. Time for another opinion? I do know that the radiologist report some of the "things" they see that half the time the MO doesn't. I just don't have a lot of faith in findings. Kinda take them with a grain of salt. However, I see how you wanted to move forward with everything and get back on the road again, so to speak. I'm sorry for this mixed news, fear and just plain unfairness.
@mara51506 I thoroughly enjoy your sharing daily rituals. Guess we won't hear from you as much if you finally receive your treadmill. lol. Just kidding. Actually make sure not to over do it. That "bowl" sounded so good. I see that different types of bowls are very popular at restaurants. My DD bought the "fixins" for a gourmet chicken noodle soup. I pulled the chicken off a rotisserie chicken and followed directions. DH and I ate two tablespoons and it tasted like we ate a shaker full of salt. I tried to tone it down with chicken broth that was low sodium, to no avail. Gee bet the armadillo, raccoons and other critters enjoyed it. DH threw it over the fence into the woods. What a waste of money.. We love Dale's seasoning and found it in a reduced sodium receipe bottle. It's great in veggie beef soup, steaks, etc.
@???? Gee, there goes my brain again. I don't want to lose this post so I just wanted to wish you the best on scans today. In your pocket!
Today I noticed some improvement from the injection. Maybe I need a few days for it to really kick in. I'll take it, happily. The headache is gone and my vision is not quite as blurry. Like others have shared, I don't work just want to read a good book, garden and and be as independent as possible.
Saying good night and in everyone's pockets for all your needs.
Laurel
2017 BC Diagnosis…how are you doing?
Hello Friends:💐
It’s been awhile since I’ve checked in. I’m curious how my 2017 friends are doing. Have you had a recurrence? Is all going well? I’d love to know how everyone from 2017 is doing.
I’m doing well. This site has been a huge support to me and I just want to thank you all again for your support.
I look forward to hearing how everyone is doing. Have a wonderful day!
Re: How long have you been Stage IV?
I'm sitting here with scanxiety, not able to open my results until I get my courage up, so all good wishes for these Oct PET scans.
