Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@cookie54 I try to get the last night but I swear I went to the washroom 4 to 5 times. That will be OK though. I am glad you are watching football.
Got to make my bed, do my laundry, sweep and finally finish laundry. Bed is done already,. just have to change litter, sweep floor and see if I can mop. The spray bottle would not fit in til end of day. My couch is almost done which is good. By noon, planning to get those done today
Unsure about food as of yet. Yesterday I had beefless ground, potato cubes in a can, put all in the magic bullett. Today will figure out what I can do instead.
I was going to have a Mcdonald's breakfast BUT it was not opened til til 11am. Instead, just microwaved two eggs, beefless ground. Will take out of oven, let cool off and put a binder on. Probably have yogurt with MIO after or yogurt with Jello and mio.
I do hope all have a good day and in pockets for all.
Re: Stage IV MBC Fitness
@livinglifenow: I echo @sunnidays reco - hiking poles do help! Also, you might try some gentle stretching after the walks / hikes.
Re: Side effects from aromatase inhibitor other than joint pain.
I just had an appt with my Onc's PA. I tried to talk to her about my concerns about the long-term side effects of Anastrozole and she did everything but pat me on the head and give me a lollypop. I am so tired of having my concerns marginalized. All they want to talk about is joint pain and only those in your hips or back, even though joint pain in wrist and ankles are evidently common. She then tried to scare me into starting Prolia. The possible SEs of it are more scary than osteoporosis. I actually know someone that had the femur break while on it but they act like those things don't happen. They want me to take the Anastrozole for 10 years which at 67, means I will probably take it for the rest of my life even though I have no confidence that it is actually doing anything helpful. If I start the Prolia I will also be on it the rest of my life. I swear I think these medical professionals all have stock in these companies or something. I just read her notes in my Patient Portal and I'm not going to say she lied but she and I definitely have a different understanding of what was said on more than one thing. This is my second Onc so I'm not going to bother to find another but it is all just so frustrating. Sorry for the rant.
july31
Re: I am not grateful to my oncologist and care team
It’s rarely acknowledged, but there are some medical providers who do not listen to things like patient goals or do not care about patients as individuals. Others are too sloppy in their practice to factor in patient goals beyond the initial “lip service” discussion. There may be various “reasons” why such providers are this way, but when you’re the patient, the plain truth is that it sux. When others are grateful for the care they received but yours was disappointing, it can leave you feeling alone and in a world of hurt. (I experienced this with hospice “care” for a parent that was beyond negligent—it was borderline criminal and was certainly inhumane and contrary to clearly stated goals. Yet everyone in the world is “grateful to hospice”. I still find it hard to live with, some six years later.) When you’re the outlier, no one wants to acknowledge your increased suffering. That can pile devastation on top of awfulness. And then we’re supposed to be in Grateful Mode. It’s. Just. Too. Much. I commend you for posting and articulating your true feelings. They are VALID.
Re: Feeling isolated after comedocarcinoma
My friend (who died of a stroke caused by complications of a double coronary bypass, precipitated by poorly controlled T2DM, longstanding & unrelated to cancer) was diagnosed in 2016 at age 72 with multifocal DCIS, grade 3 with comedonecrosis. ER/PR-. That's more common in DCIS than in IDC. They did not test for HER2, explaining that most hormone-negative DCIS is HER2+, which is usually not a factor because the histological profile and wholly ductal location of DCIS makes it highly unlikely to become invasive, much less metastatic. Because it was multifocal and in both breasts, and she was flat enough to have not worn a bra in 30 years, (and uninterested in dating after having been widowed for 17 years), she opted for a BMX with no reconstruction. Once the drains came out, she said she felt liberated.
chisandy
Re: Can we have a forum for "older" people with bc?
Microwave wraps, etc take less electricity and are less messy.
Your Orders | Hilph Thumb Wrist Ice Pack Wrap...
This is my preferred splint, pre-op,
Note that the bones of it go on either side of the inflamed real bone.
mcbaker
Re: Can we have a forum for "older" people with bc?
For a young person, it is almost a sin, or at least a danger, to be too preoccupied with himself; but for the ageing person, it is a duty and a necessity to devote serious attention to himself.
betrayal
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Ugh that is certainly a pia for sure! Hope you are all cleaned up,now and taking a rest. You're so selfless in looking out for DB and SIL. I'm sure they don't mind helping you but that's so sweet to let them know you got it from here. You are one strong cookie that we all admire. Seems your back to whipping up some creative meals , glad to hear you're enjoying it!
I'm relaxing with playoff football in the background. I feel like I'm fighting something off today, it's coming in waves. Hopefully I can ward it off. Made some chicken soup because I'm not feeling like a big meal, We had snow showers earlier today, thank goodness it only stuck on the grassy surfaces. DH took Buster to the groomers so I'm waiting for my handsome boy to come home. He will be exhausted from being stressed so it should be a quiet evening.
May everyone have a peaceful night!
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Currently dealing with numbness in parts of face and hands, more of an annoyance than actual problem. I blame healing nerves post surgery for the weird numbness. I keep dropping off to sleep, anassthesia gets my blame.
I had a microwave frozen beef and tomato pasta dish, add beefless ground to it add bit of queso and bit of sour cream and lime. Threw my bowl into a sink full of hot soapy water letting it soak long rnough to just rinse off.
Re: My Husband, My Life, My Love, My Family, My Cancer
Good morning ladies! And SFcakes, nice to meet you! My last radiation was Monday. 💃 Had CT scan for my appt in 2 weeks with my oncologist yesterday . Also a bone marrow biopsy planned in 2 weeks. Does this fun ever end? I am grateful I have no medical things for 2 weeks. This all seemed to come in so suddenly after my 8 year hiatus from left lumpectomy., didn’t realize it could metastasis to my bones. Oh well. I am hoping I become stronger after radiation as I am so tired…..no appetite. I am hoping that comes back. Do any of you take a great vitamin to help build up your energy or body? I am putting you all in my pocket surrounded with love. I am not sure what the pocket thing means but hey…,as a newbie I’m getting in on it! Was able to get down a child’s burger from MCDONALDs. Not best nutrition but I needed something. Love you all❤️❤️
xsuzx