Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@seeq Great scans for sure, I am so sorry about your fall that broke your ankle and cancelled the cruise plans. In your pocket for speedy healing. Bubble wrap could be the way to go. 🙂 I am hoping to get the treadmill back soon, apparently they use it so we will see if there is any resistance, if so, will have a Paratransit trip booked to purchase another after I save up money toward it. They would handle delivery and set up. Many treadmills on Amazon but that requires me to get it out of the box. I do not want to argue about the other one.
@chicagoan I am sorry about the hip pain but hopeful that if it is replaced, feels as good as others have mentioned.
Nothing too much on the go, I had a mystery stank on laundry yesterday, found out it was my fault, did not keep up with clearing filters in the one and that was causing the stank. I am also going to use the odour blaster oxi powder. I use 1/4 tsp as very tiny amounts of the other stuff clear it up nice and leave fresh. I am washing the stuff that still had some stank. Does not bother me any to have extra laundry to do. I have enough machines. Glad I am not scouring Amazon for that stuff anymore.
Nothing else on the go for me today, rainy out, do some walking on the spot stuff, quick steps, both feet lifted. I could also bring a chair out if want to lift legs higher but that would be later, will see about that.
Not sure what I want to make, no frozen pasta left so could just take some of the KD noodles, 1/4 cup or a ramen, add beans and queso possibly. I enjoy the walmart queso bowl and I realize that I do not need to buy it but can make an at home approximately. Just take some canned chicken and add other stuff and add actual queso. Starting to feel hungry thinking about it. Need some eggs as well, could add to the KD whilst boiling and whisk it around. Add chopped beans and cheese with garlic put in as well, sounds like a busy meal but a good meal.
Adding to yesterday's post that I forgot to post. I did have beans, cheese, garlic and egg heated together with the noodles. I did not care for the egg made with noodles. Better to make eggs in the mini grill chop up with cheese. Can add some peppers that I keep in freezer. I think today will look that way for me.
I did sleep well, waiting on cat food from Amazon, some bits of laundry and that is about that.
I do hope today is going well for people and I am in pocket for all.
Re: My Husband, My Life, My Love, My Family, My Cancer
@eleanora Thanks for the information and encouragement about your hip surgery.
Hope everyone is finding things to enjoy this weekend whether it is a good meal, a good conversation with a friend or a hug from a loved one.
Re: Stage IV MBC Fitness
@AJ - Lincoln Park? I so remember that pool from long, long ago. Had a first couple of swim lessons there when I was about 6. I thought I'd heard something many years ago though, about how they were going to have to close it down? I could be wrong, but hope it's still there. It's a real local landmark sort of thing. Glad to know people are still enjoying it. I used to just love that whole park. I lived in an apartment complex a few miles south of there in the 1950's and groups of mothers there would organize trips to the park for some of us. My mother didn't drive, and I was always a "tag along", but sure remember loving that place. Thanks for letting me know.
Re: Ringworm drug for dogs (Fenbendazole) might also cure cancer
How are you doing now? Taking fenben and iodine? How much do you take?
med5827
Re: Stage IV MBC Fitness
@AJ - Is the pool you're talking about the saltwater one? If so, it's a classic! Good for you for both the swim and the walk.
@brutersmom - Interesting about the interval training being best. Unfortunately, it's the kind I like the least. I like that gentle flow sort of stuff, like walking, and can see why those who swim like that too.
@tougholdcrow - I too walk slowly, but it's not because of a dog. In my case, I'm the one who wants to stop and smell all the flowers, observe the birds up in their trees, stop for a few seconds and look down the hill at the territorial view, etc. Like you though, I have put 2-3 relatively challenging and spaced out hills into my walk routine, so like you said, that heart rate does get up.
I can't seem to do anything just for the sake of pure exercise. I have to get something else out of it like completion of an errand (walking clothes to dry cleaners) or stopping to watch the birds, appreciate the foliage, etc. I find "pure exercise" for it's own sake grueling and boring. I am still wanting to go back to PT though, and that comes close to "pure exercise", but I think I can manage some of that, and maybe it will help.
I'm still suffering from some form of additional fatigue these past few months but don't know if they are from the drugs, a post shingles/viral syndrome, or even cancer progression at this point. The oncologist and NP told me there is no test for post viral fatigue, so it's not a solid yes or no from them about it. They do acknowledge that many people do report such a thing and that it can't be ignored, however. Two of my three scans that I got on Friday have come back and showed an essentially stable situation, so unless the third one (chest CT) that isn't in yet shows something new and different, I don't think this fatigue is from cancer progression either. I did get my fulvestrant shots last Wednesday and I tried my usual good long walk on Saturday, following the shots and a scan day Friday (with contrast and long periods of lying still on the table, etc.). That did not work out well at all, and I reached point where I really wanted a place to sit down for awhile before I made it back home (never happened before), but there wasn't one, so I trudged on and made it, but was totally wiped out and had to lie down for about an hour to recover enough strength to get up and do anything else. Consequently I stayed in yesterday, but am going to try the walking again today, but maybe do a shorter, flatter round.
Re: TNBC MBC Stage 4
@rlschaller Glad to hear you are enjoying the things in life that make you happy! Agree it's so important to try to stay present at this stage as it's not a sprint but a marathon. Bummed that you are having discomfort with these darn skin mets! We all wanted you to have total success with Navelbine sometimes it's such a challenge to get there. I am remaining optimistic that your MO will put together a successful plan. I will continue to pray for your strength and healing.❤️
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
Shanagirl - best of luck with your RFA. I pray 🙏🏻🙏🏻 it works for you. I had it 2x for my SI joints and both times it failed.
Miss Mariah turned 7 today and spent a great day at day camp where this beautiful photo was taken:
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
There is a large contingent of women who are prescribed Kisqali with letrozole, and another contingent who are prescribed Kisqali with Faslodex. I am in the second group and I don't understand the MO's reasoning for choosing one or the other. If your MO switches you, there is a wealth of information on the Faslodex Girl's thread as to how to make the injections easier.
You are in that chaotic place between diagnosis and treatment plan. I am so sorry for what you're experiencing right now, but it will settle down and we are all here for you as you go through this.
❤️
eleanora