Best Of
Re: ANGIOSARCOMA RECURRENCE AFTER 20 MONTHS...
Dear @sdianel
Thank you for trusting this community with so much of your story. We are incredibly sorry for all you’ve been through—the loss of your husband, the shock of a rare and aggressive diagnosis, and now facing treatment again. That is a tremendous amount for one person to carry, and it makes complete sense that you’re feeling sad, scared, and exhausted.
You’ve clearly been thoughtful and proactive every step of the way, seeking second opinions and placing yourself in expert hands at Moffitt.
Please know that it is also okay to question how much more you can do. Many members here wrestle with that same question, especially after years of caregiving, loss, and repeated treatments. There is no “right” way to feel, and no requirement to be brave every moment. Taking things one step, one month, even one day at a time—as you said, 20 months at a time—is sometimes the only way forward.
We hope other members with experience in angiosarcoma or paclitaxel will weigh in, but even those who can’t share medical insight are here to walk beside you, listen, and support you. You are not alone.
We’re holding you close in our thoughts, sending strength and comfort your way, and wishing you moments of peace in the middle of all this uncertainty. Please keep posting —about treatment, fear, grief, or anything at all. 💗
With care,
The Moderators
Re: Lets Post our Daily Exercise
Ice is much worse than coldness!
Here's the Wednesday Walking Women.
Re: Can we have a forum for "older" people with bc?
Justforher- a warm welcome. I echo what others have said. We will be happy to be a virtual shoulder to lean on so please come here as often as you need. Give your self grace as you go through treatment.
Best wishes.
Re: Can we have a forum for "older" people with bc?
Statistically speaking, it is highly unlikely that my BC would re-occur. However, like 25% of females, I still have the chance that I might get totally new BC. I will be getting mammos long past the time other women do.
Stay with us. We will support you through everything.
And the other medical issues will pop-up in a continuous train. I found a simple way to use k-tape to restrict movement of the offending joint on my left hand. It works fine, and with the assistance of a ring for guiding the yarn, I am knitting those mittens. I have the right one 3/4 done! Did a questionnaire on my left thumb for the doctor this morning. The right thumb is in relative comfort, except for the metacarpal-phalangeal, next to where the basal joint was.
Tippy got a haircut day before yesterday. He told me "hair-cut, thank you" yesterday. I relayed the message to his new groomer.
Re: Can we have a forum for "older" people with bc?
@betrayal , thank you so much for replying. And I love your cutie dogs. I adopted two dogs and two cats last year. Sadly I will not be with them for a while since I have to stay in a bigger city in a temporary apartment during treatment. Still, seeing photos of animals being happy genuinely makes me smile in the middle of all this.
I'm proud of you for having the endurance in your journey. You're a strong woman and hope nothing surprising occurs and you are healthy in your late late granny days :))
About your question. When I look it up, my specific cancer is usually quoted as having a 75 to 85 percent five year survival rate. What I was trying to say is that survival is not always the same as living a normal, full life. Many people eventually develop metastasis and spend those later years not really at their best. I think I was just questioning the way these numbers are presented and the constant optimism around them. Maybe this is simply how I cope. I really admire people who choose not to look ahead and stay optimistic. I think I am someone who needs to understand the risks and be mentally prepared for every possibility.
Another thing I realized is that my doctor was not fully honest with me. I found out more by pushing my husband and reading on my own. Both my husband and my doctor said I was stage 2, but it turned out to be more complicated. I live in an Eastern European country where full disclosure is not legally required in cancer cases. It often depends on what the doctor thinks will protect the patient’s morale. I can handle the truth, so I do wish they had been more direct, even though I understand their intentions.
Like you said, I try to hold on to the brighter side. The slower growth rate is a real advantage. I am also looking at how much treatment has advanced even compared to five years ago. There is a new drug currently in trials for ER positive cases that looks promising. I am hoping it becomes available in time.
@teka , thank you for sharing. If you are comfortable, would you mind talking a bit more about your journey, specifically what was found, at what stage, and what type it was? I cannot access your profile to see whether you have already shared this in other threads. Ten years is a long time to live with this diagnosis. Congratulations, truly. When I see women who are much, much younger going through this disease, my heart hurts, but it also puts the illness into perspective for me.


