Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
Hi all, here's a frozen forest and a warm cat. It was our anniversary so we went to our fav spot Gold Fork hot springs and that's the Gold fork river.
@shanagirl thanks for thinking of me, haven't posted in a while. Congrats on your ok scan. I've been ok on Trodelvy except a delay and boosters for low white counts. Been feeling down but I try to walk at the park every day. My husband has had two colds and drenched himself in Lysol wiping everything down and somehow I haven't caught it yet. I wear a mask everywhere but don't go out much. Isolating is very boring.
I got a giant stack of paperwork from SSA saying they are reviewing my disability status. I filled out everything online and hopefully all should be ok but it is nerve wracking to be told it's possible to be kicked off disability and Medicare and everything. Like we need extra stress.
@goldensrbest sorry you had the flu ugh.
@mara51506 glad to read your surgery went well. Wish you a smooth recovery.
@cookie54 hi ☺️
I'm afraid to scroll back and lose the post. Hugs to all dealing with so much as best as you can.
mkestrel
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Be thou the rainbow in the storms of life. The evening beam that smiles the clouds away, and tints tomorrow with prophetic ray.
betrayal
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
All the great things are simple, and many can be expressed in a single word: freedom, justice, honour, duty, mercy, hope.
betrayal
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Culture makes people understand each other better. And if they understand each other better in their soul, it is easier to overcome the economic and political barriers. But first they have to understand that their neighbour is, in the end, just like them, with the same problems, the same questions.
betrayal
Re: Can we have a forum for "older" people with bc?
Be thou the rainbow in the storms of life. The evening beam that smiles the clouds away, and tints tomorrow with prophetic ray.
betrayal
Re: Zoom Meet-Up Bonded by Breast Cancer: Place to Keep Chatting
A few years out of radiation and I am finally seeing changes to the size of the affected breast. Maybe the lymphedema was masking the shrinkage. Normally I wear loose tops anyway. I was always self conscious about having larger breasts than I would have liked. It feels rather odd to look down and wish they both were shrinking at the same rate. How weird is that? LOL !
Re: ANGIOSARCOMA RECURRENCE AFTER 20 MONTHS...
Dear @sdianel
Thank you for trusting this community with so much of your story. We are incredibly sorry for all you’ve been through—the loss of your husband, the shock of a rare and aggressive diagnosis, and now facing treatment again. That is a tremendous amount for one person to carry, and it makes complete sense that you’re feeling sad, scared, and exhausted.
You’ve clearly been thoughtful and proactive every step of the way, seeking second opinions and placing yourself in expert hands at Moffitt.
Please know that it is also okay to question how much more you can do. Many members here wrestle with that same question, especially after years of caregiving, loss, and repeated treatments. There is no “right” way to feel, and no requirement to be brave every moment. Taking things one step, one month, even one day at a time—as you said, 20 months at a time—is sometimes the only way forward.
We hope other members with experience in angiosarcoma or paclitaxel will weigh in, but even those who can’t share medical insight are here to walk beside you, listen, and support you. You are not alone.
We’re holding you close in our thoughts, sending strength and comfort your way, and wishing you moments of peace in the middle of all this uncertainty. Please keep posting —about treatment, fear, grief, or anything at all. 💗
With care,
The Moderators
Re: Lets Post our Daily Exercise
Ice is much worse than coldness!
Here's the Wednesday Walking Women.
ruthbru
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Happy to hear more good news for you! Yes everyone will hunker down this weekend and stay safe.🤞🏻🥶
@intolight May your chemo kick butt on those lesions! Hugs your way, losing your hair is never easy😞. Hope your daughter starts to feel better soon and is able to power through work.
@mara51506 Glad your stitches are out and you can get back to wearing wigs soon!
cookie54
Re: My Husband, My Life, My Love, My Family, My Cancer
I "posted" this earlier this morning, but now I see that it never actually showed up:
@shanagirl - Big congrats on your bone scan results! Stay safe and warm this weekend.
@intolight - Thinking of you and sending warm thoughts, good wishes, and lots of hugs 🤗.
