Best Of
Re: How are people with liver mets doing?
Maggie, thank you so much for the info you shared. It’s valuable, knowledge is power, especially when the healthcare team sometimes misdiagnoses us. I’ll dig into those symptoms since I have some of them.
Dulcea, thank you for opening this discussion. we learn so much from each other here, information we rarely get from our care teams.
Threetree, have you decided what treatment you prefer for your liver mets?
Re: How are people with liver mets doing?
@maggie15 thank you so much! I have actually considered that it was the Enhertu increasing the issues with my liver and the ascites, especially since the first time I had the ascites, was a week after my first infusion. The increase in my liver numbers were thought to be a combination of both the Enhertu and the cancer. With your information though, I can do more digging and ask more questions along that vein. And now that you mention a statin, someone at the hospital had mentioned that to me. I think we all just assume that since I have cancer in my liver, it must be due to that.
Thank you again so much!
dulcea
Re: How are people with liver mets doing?
@dulcea, Have you been checked for drug induced liver injury? It’s rare but I ended up with sudden cirrhosis not related to cancer or anything else caused by a statin. There is a long list of drugs that can cause DILI and Enhertu is one of them. It puzzled four other specialists for eight months before it was diagnosed by a gastroenterology fellow specializing in hepatology who monitors my Barrett’s esophagus. Stopping the offending drug and taking steroids has helped. Your problem could be something else but it wouldn’t hurt to ask. Good luck finding the cause.
maggie15
Re: Can we have a forum for "older" people with bc?
“All life is a circle. The atom is a circle, orbits are circles, the earth, moon, and sun are circles. The seasons are circles. The cycle of life is a circle: baby, youth, adult, elder. The sun gives life to the earth who feeds life to the trees whose seeds fall to the earth to grow new trees. We need to practice seeing the cycles that the Great Spirit gave us because this will help us more in our understanding of how things operate. We need to respect these cycles and live in harmony with them.”
― Rolling Thunder
betrayal
Re: Scans- the anxiety never fades
Hi Candy. Yeah, I need to fill out my profile. Yes, I’m bone only. My CT results just came in- all stable. Now I can exhale. My MO is fine doing it only once a year, but always gives me the option to scan pretty much whenever I want. I usually do every 6 months. I’m still on Ibrance and Femara and have been since 2017.
The crazy thing is, when I was very first diagnosed stage 2A, Ibrance was still in clinical trials and would not have been available. When I was dx stage iv in 2017, I started on it right after having a spinal fusion. They found a tumor wrapping itself around my spinal column. My neurosurgeon told me that if we had waited only a week to operate, I would be in a wheelchair now. It had wrapped itself around so tightly that it would have taken my ability to walk. I’m grateful every single day that I can get up and go about my normal day on my own two feet. Pretty scary when I sat and thought about it.
Re: Can we have a forum for "older" people with bc?
Quiet day here. It was sunny and temps in 70's, but I was keeping busy indoors. I clean the bird cages on Sunday and then have to vacuum the kitchen area because of the feathers and seed droppings. I tried my new Shark stick vacuum and love it. Took a minute to figure out how to empty the collection chamber, but finally figured it out.
Back still goes into spasm, so after vacuuming I soaked in the tub and did my knee exercises. Then I just dusted the primary bedroom and swept the stairs. So just minor housekeeping today.
Tomorrow I have pain management visit to see what they can offer for the back spasms and I am hoping for relief. It's been 3 weeks since they started and while they can quiet for an hour or 2, they still recur.
I was watching The Pitt on HBOMax and it is a great series. There are 15 episodes that cover a day, hour by hour, in an emergency room in a large city hospital in Pittsburgh. Goves you an insight and look at why ER's become backlogged. Season 2 won't be available until January 2026 and I intend to watch it then.
carole, glad you rang in and I wish you a safe trip home.
Hope everyone had a great day. Waving "hi" to everyone.
betrayal
Re: Can we have a forum for "older" people with bc?
I have been reading but not posting. We plan to head south next Monday, the 29th. I am ready to get back to my house. I never look forward to the transitions, packing, traveling, unpacking, settling in.
We had a text this morning with sad news that dh's cousin, Cal, in Holland, MI, passed. He was 94 and was ready to go. He was one of dh's few surviving family members older than dh. Sadly, Barb has Parkinson's now, after a long life of needing no medications. Her exercise was swimming.
Taco, I empathize with the challenges of being an older person, an older wife.
The leaves seemed to start turning beautiful colors almost overnight. Golden hues are predominant, but some gorgeous reds are mixed in.
Hi to everyone.
Re: Can we have a forum for "older" people with bc?
Chris, hoping you get some relief soon. I had a thumb release post carpal tunnel repair and it was painful. Use your pain meds as ordered.
harley07, hope your issues resolve quickly and you can pursue your favorite activities.
Taco, my condolences on the loss of your friends. While it is expected in our age group, it still is not easy to accept the loss of a loved one. Does Mutz miss Bella? As far as the dinner competition, is Ken the cook? Perhaps you could change the frequency of the dinners to monthly? If there is difficulty in finding things to discuss, I would be bored as well.
cindyny, loving the DC photos. Keep posting them.
canarycat, how are things with you?
orknitter, we met 2 sisters on our cruise that were from OR. My DH and I had taken a PNW land trip and loved the one beach with the huge boulders. One of the sisters had a video of an elk herd on Cannon beach she shared with DD and I. We did not see it on our trip, but were amazed with the video.
Carole, where are you? Are you heading back to LA yet? I miss your posts.
petite1, how are you?
To anyone I failed to mention, I am waving "hi".
It's sunny and warm today. I had a goal to clear clutter in the kitchen and worked on organizing what I needed to keep. It could still need some more detailed organization but I will save that for later.
I hope everyone had a great day.
betrayal
Re: Can we have a forum for "older" people with bc?
I've been here but not feeling chatty I guess. Seems to have been a hard period. Several deaths among friends - one expected and one a terrible shock. Also a murder/suicide in a local continuing care community. Supposedly wife begged for relief and the husband helped her. So sad. Wish every state had death with dignity laws. I'm really having to deal with the down-side of living in an age restricted community.
Our Saturday nite dinner friends are back from Michigan. I've been trying very hard to get Ken to not consider these meals a contest and plan more simply. Happy to report that he did for this week. Frankly, I'd like to get together much less frequently. Neither of us have particularly interesting lives which make the get-togethers boring. The original friendship was between the wives and Ann has been gone since 2017, another cancer casualty.
Bella went home Thursday. It's certainly quieter here now. Sweet girl but quite a barker. Jie says she barks less than when she came to us but has developed a taste for treats. Ken spoiled both the dogs. I suspect Bella will be here off and on as they both have significant health issues.
On the other hand, two nice mornings with friends - one who I haven't seen in years, the other my BFF. All you gardeners inspired me to buy flowering plants for the front window ledge.
Cindy - the night pics from DC were exceptional. Haven't been back since we left in '97. Sounds like a great trip for you too, Betrayal.
A warm welcome to Firefighter and thank you for your service. Not an easy occupation. As you have undoubtedly noticed, we talk about more than cancer but we have all walked the journey and will be here for you. I always suggest that you also check out the threads related to your diagnosis and treatment. My "starting chemo Feb. , 2017" still maintains a private Facebook group which was a wonderful lifeline at the time.
Have a good weekend, everyone.
1946taco