Best Of
Re: My Update—6 years post diagnosis
Crossh:
A couple things I wanted to say related to your posts…….my doctor who put me on hormone therapy told me if you have a uterus….you MUST go on progestrone (the sleep aid). In fact, my new primary told me that she tells her pts to take progestrone while they are sitting on the bed because it really does act so fast. LOL. It has really helped me sleep. Magnesium is a blessing too…really helps people relax and sleep. ( Glysinate form of magnesium won't make you have to use the restroom)
Another thing I wanted to share related to iron….. I too do not absorb iron well. I get iron infusions….. my MO does those as well! It is possible your MO may do that. My MO is a hemo/onco doctor. So maybe not all MO's do this. But thought I would mention this to you. Iron infusions have seemingly helped my iron level to stay good. My dad who has microscopic colitis also gets iron infusions and his levels are now starting to stay good too. Once your level goes down you have another infusion….
Please know we are here for support. Let us know how you are doing ….we care about you.
Re: 2017 BC Diagnosis…how are you doing?
Thank you for this information about the FES PET scan! Women here need to know about this scan. I have never heard of this!!! Thank you!
Re: My Husband, My Life, My Love, My Family, My Cancer
Scans tomorrow. Life has been quiet, hence not posting here much. That's probably my own issue, I think I need to have something "important" to say.
I do believe taking care of plants, reading great books, drawing, going for walks and petting random dogs IS important though! My life is important! I just said that out loud here in my house, and I rather like the sound of that.
Love to you all, the emotional and physical struggles with this illness feel overwhelming sometimes. ♥️
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
I too read every day, or multiple times a day sometimes, but I don't feel I have much to contribute.
I am just living my life. As boring as it is. I scan again in November- 4 months from the last scan. In between scans I am still taking Lynparza pills twice a day. I nap practically every day- at least for 30 minutes, but up to 1 hour. I don't do too much, as I don't work and do not have many friends or family activities.
But I do enjoy reading what you all are doing. I wish Mel's Living Room was real and we could hang out there.
Re: My Husband, My Life, My Love, My Family, My Cancer
@threetree I agree, I miss the chatter here. I look everyday but feel as though I don't have anything to contribute. I am in sort of a holding pattern waiting to see if this medicine (Orserdu) will hold up. My tumor markers are slowly edging up a few points at a time but there are only mild SEs and my scans look stable so I am praying I can get a lot more time on it. I am seven months into it now. My DH is having prostate problems but there is no cancer so we are thankful. In the meantime I am enjoying a mild fall slowly preparing for the next season.
Re: My Husband, My Life, My Love, My Family, My Cancer
I miss the old forum.
Hope everyone has a good day and enjoys some nice fall weather.
Re: Can we have a forum for "older" people with bc?
Had my facial today—PITA trying to park with all the street construction in River North (city is desperately trying to get all the sewer work done before the snow flies) and loads of moving vans. In Chicago, leases expire either 9/30 or 3/31, so there's a flurry of moving around the equinoxes.
We got a lot done today: Bob & our landscaper plowed through the pass-through room and now there's space to put our pillows (tons of 'em—we had no idea they would be salvageable, nor the down duvets) and whatever luggage we can wriggle out from behind the mountain of office cartons. My BFF & I unboxed crystal, china & some of the Carnival glass from a mutual friend who's a collector. I made room in the living toom breakfront by being ruthless in wrapping up breakable lesser glassware for donation. We still have tons to cull. Found all my mom's 1847 Rogers Bros. silverplate—which the silver specialists in Wilmette had refused to touch when I inherited it, but the restoration crew managed to get pretty clean. Still have a few Kirk-Stieff pieces missing: I bet they're in boxes in the office, or marked "basement" (many of which are stacked in the garage). I noticed boxes in the garage marked "pots & pans" and "books and paperwork." Oy.
My toenails are shredding from all the trying on of shoes for culling. Meanwhile, I think I found some decent but affordable display cabinets (Penny Mustard, Ashley, Joss & Main) online that fit the dimensions of where our piano used to be. I'm considering only those pieces eligible for "white glove" delivery—I'm not about to start assembling furniture—and that will arrive in the next couple of weeks. Surprisingly, both Macy's and Wayfair seem to carry only the DIY-assembly stuff (which is usually particle board). I'm amazed by how much good china cabinets cost now. Back in 1988 at a furniture discount store in Lincoln Park (the now-defunct Roy's), we got a full American Drew solid cherry dining set (huge lighted cabinet, oval table with leaves, 4 chairs, 2 armchairs) for…are you ready?…$2900. That cabinet alone today is almost $5K (on sale)—the entire set is over $10K now. Speaking of inflation, I went to Metropolis Coffee to pick up some decaf beans. They used to sell beans for $16-18/lb, in full-pound bags. Then 4 years ago the bags shrunk to 12 oz., and now they're 10.5 oz. for $18-20. At least they're less likely to get stale before I can use them.
Also need to get cracking on finding a painter soon. My HK is coming 10/4-19, staying at the house and I hope she can use the shower there (instead of having to come here to Lincolnwood). She will help me decide what goes where and what to keep. I discovered that the first floor bathroom fan switch is on the same plate as the sole GFCI outlet…but all the fan does is hum. We'll have to get that fixed too. And I'd like at least one more GFCI there and one installed in the upstairs bath.
I hope my fellow musicians aren't insulted by my discarding the freebie CDs we exchanged at conferences. Still a lot of empty jewel boxes and "orphaned" discs. There will be time enough to try to "reunite" them.
chisandy
Re: So...whats for dinner?
LOL, Eric.
Yum on the lamb. We like ours medium to medium rare. I didn't eat lamb until it was served at a dinner party. I must have been in my 40's.
Last night was a small pork steak, breaded and browned in a skillet. Bob's mashed potatoes and Pioneer country gravy. A chopped salad for me and a very small helping of potatoes.
I'll gaze into the freezer and decide on tonight's dinner.
I don't stay up late enough to watch late night tv, but I'm glad Kimmel is back on the air.
Re: Can we have a forum for "older" people with bc?
Hi. Ladies. I was back in North Carolina at my little cabin. It does not have any closets, but has a big utility room with washer and dryer, hot water heater and lots of storage.
Chris, glad you made it through surgery.
Betrayal, Love the pictures
Cindy, love yours as well. I have been to DC and found it overwhelming. That was back in the 1980's
firefighter306, Welcome
Sandy, sounds like you are making good progress through the box
Good to hear from Carole, taco.
Canarycat, like the tropical look
and hi, to all I missed
petite1