Best Of
Re: Verzenio
Comments so very much appreciated, and especially for us "newbys" who just started on the Verzenio journey. As a nurse myself, I always knew the basic fundamentals of healthy living such as rest, healthy diet, balance rest and activity, lowered stress, etc.
I am finding that if I stick to those fundamentals, it still helps through this process of chemo pill chaos. Chemo is chaos to my body, so my very own personal knee-jerk reaction is in how I refuse to let it run my show. I just carry it (all of the cancer chaos) with me and try to remember to keep a good stock of incontinence products in my car such as adult diapers, extra panties, wipes, extra pants, etc. The balance of rest and activity has taken extra getting used to since I tend to be more others oriented. But maybe that is not so bad since now it's time for me to care for myself like never before. That fact along with my faith being strengthened are true silver linings if you catch my drift!
There are lots and lots of thoughts, feeling, emotions, concerns and new normal knowledge I have not even processed after my first yr of being lacerated in surgery (double mas.), poisoned and burnt, in addition to surviving life-threatening post op sepsis and a large axillary seroma that had to be drained five times before I could even begin the proton radiation. So, I participated in watching the NP drain the fld out of the seroma while I watched on the ultrasound and would tell her please don't miss any…
Long story short, I was so happy I had met my health ins deductible (I'm a RN Case Mgr- so this was a very big deal to me) so early in 2023 and knowing that proton therapy or anything ins gave auth to would be paid for at 100% through the rest of the year was such a relief… until…
The seroma created a "set back" and I had to wait until Jan. 3rd to start the radiation. you know what that meant. My high deductible had to be paid first!
So much loss and trial… i am trying with all heart to count the positive changes taking place. Like the very fact that today I am alive!!! Thanking God to be alive today. That's the best start.
Hugs to you all. I am torn between continuing my career as a nurse in geriatrics as an indep. care mgr or interview for the ABC program at the Y.
I keep coaching myself… well, I help dtrs (and sons) either way… my heart is leaning towards the dtrs who are going my direction and rediscovering who they are and processing what they are going through versus staying with those running after their dear aging loved ones and needing help to coordinate their care.
(Wow, I just kept writing… thanks for reading and thanks for writing as I am learning so much from you all!!)
Re: Stressful event years before diagnosed?
This is almost impossible to prove in a trial which is probably why it is not one of the questions we answer at the doctors office for putting us in high risk. I've answered questions about family history alcohol use whether I've had any pregnancies and even age of first menstruation but never anything related to a stressful lifestyle. I've read about a view that people under stress make lifestyle choices that could potentially put them at a higher risk such as through excessive alcohol consumption or smoking but that seemed a little silly to me as this really is not representative of our population here on BC org. In any case this is not something that can be proven or disproven easily with a scientific trial.
Here is what I also know and think: as mentioned in previous posts cancer cells exist in everyone's body but the immune system takes care of them. Something went wrong in each of us where our bodies could not stop this and eventually tumors were formed. This also puts us at high risk for the same thing reoccurring regarding rogue cancer cells that may have remained in our bodies after treatment from our existing tumors or even completely new ones. So it only makes sense for us to take better care of ourselves, know when we are tired and give our bodies a rest physically and emotionally. It cannot be purely stress but stress could very well be a factor that depressed our bodies' defense mechanism. I watched a documentary (old one I think) on stress on netflix and it's pretty scary what it can do. I don't believe you need to have a traumatic event for stress that depresses the immune system necessarily, this documentary showed that chronic stress due to multitasking is in fact one of the biggest contributors to stress and premature aging internally. I don't know about you girls but I multitask every day, in fact it is one of the performance indicators for many office jobs today and I can say that I am a high performer in that regard. Our bodies probably gave warning signs before one way or the other if we were under stress that affected out immune system to the point where it could be a factor. I have three aunts that had breast cancer (and have survived by the way) and each had lichen skin disease which is thought to be related to issues with the immune system, in the years before they formed breast tumors. I did not have this but it's interesting to me.
Long story short, think stress is a factor but does not have to be a single traumatic event in my opinion, and we should all be watching our bodies carefully to see if we show any signs unrelated to cancer that could indicate our body has reached a limit. I don't mean to say we brought this upon ourselves at alland it could very well be dumb luck that our defense mechanisms did not function as well as others. All I am saying is that as this is not going to be proven one way or the other, it makes sense we try to be aware about this going forward and play it safer. Many of us don't have the ability to make drastic changes in our lifestyle, but I guess we can give it a try to take a break when we see signals. Surely can't be bad right?
Re: Can we have a forum for "older" people with bc?
Betrayal - happy to hear you and DD had a wonderful trip. Thanks for sharing the amazing pictures. The deep blue ice at Dawes Glacier is beautiful. It’s nice that you have the Panama Canal trip to look forward to.
Re: Can we have a forum for "older" people with bc?
@betrayal Lovely pictures. Reminds me of our Alaskan cruise a few years ago. And thanks for Seattle too. My DB and parents lived in Anacortes and I visited Seattle several times. Thank you for memory lane. I am glad you had a good time. I look forward to your trip through the Panama Canal. That is one cruise I have yet to do but it is on my list although I doubt I will make it.
Re: how about drinking?
Mary, I'm so sorry you had to deal with that. Everyone is so unique and different. My surgeon also said lumpectomy but I refused rads (read about too many side effects and issues) and came in with a picture of a 10 year old boy…I said…"THIS. This is what I want." He finally agreed. I healed with zero issues, no pain meds, blah, blah….but I opted out of reconstruction because I wanted this done and done. I had the initial lumpectomy and there was no more cancer they could find, so he finally relented. It is your body. You get to choose what you want done to it.