Best Of
Re: Can we have a forum for "older" people with bc?
Endicott Arm Fjord and Dawe's glacier.
Re: Can we have a forum for "older" people with bc?
Mendenhall Glacier and Nugget Falls plus Red Dog Saloon interior.
Re: Can we have a forum for "older" people with bc?
Sandy, my condolences to your DS and DDIL on the death of her father.
Like your friends, I am amazed that you were not able to participate in your kitchen design nor the paint choices. The adjuster we had at SF just sent checks and did not want any involvement in what happened with the restoration of our house. I chose the paints used, supervised the floor installers and finishers, etc. True, I was on site, which made this easier.
I had my appointment with my new PCP, who is family practice, and not an internist as my prior one was. We reviewed my medications, reasons for using and PMH which contained a lot of inactive dx which she archived. There was a lot of duplication in dx, such as osteoarthritis multiple times, which she was able to delete. It was an opportunity for a meet and greet where I discussed what care I needed and we discussed it. I will miss my old PCP for sure, but I am willing to make it work.
She was formerly with a healthcare system which just shut after poor management, and it resulted in the closing of 4 community hospitals, one of which was the only trauma center in the entire county and another where I took my students for their clinical experience. It displaced many physicians and thousands of hospital employees including their RN's. I have heard from former students who did land new positions elsewhere but many have yet to find employment.
I asked how long she had worked there and she replied it would have been 20 years in June. All of their former patients are scrambling to find new physicians, and many are coming up empty, with no one to order prescription renewals or inability to get a timely appointment. Long story short they were bought by a flimflam company named Prospect who has a reputation for buying hospitals, increasing their debt, they sell the land they occupy, and then leasing it back at a gouging price.
My DD and I had the trip of a lifetime. We had excursions to the Mendenhall Glacier, a Juneau tram ride to Mount Roberts top and then dinner at the Red Dog Saloon. I have a coat I bought many years ago from there and they no longer make them. I was hoping to get a replacement though mine is still in good shape. DH wanted a shirt but they had no golf type shirts which is what he prefers. I did find a denim shirt with their logo on it and a Red Saloon hat which pleased him. It was foggy, so not much of a view of the surrounding area.
The next day we had a catamaran excursion in the Endicott fjord to the Dawes glacier and saw it calve 4 times. I will post pictures from my phone, it is easier than trying to transfer them in. On Thursday we went to a Lumberjack show in Ketchikan and then a tour of Totem Bight State Park. Our guide was very knowledgeable for someone who had only resided there for 5 months and was a newly wed. He made us laugh when he said milk was $10/gallon and as one who loves cereal, his wife was unwilling to purchase milk so he'd had to learn to eat dry cereal. She asked what he wanted for his birthday, and he asked for a gallon of milk. She paused and told him, "she would think about it". He said that there was a lot to learn while being a husband and one was that "I'll think about it" generally means "no" since he did not get any milk. It was raining that day so while the show and tour were pleasant, the weather was not. My fleece lined raincoats, plus layering, kept DD and I comfortable.
Unfortunately, our High Tea at the Pendray Mansion was cancelled due to low enrollment. We arrived at 8 PM and docked over 1/2 mile from town so we opted to stay on the ship. There didn't seem to be cabs in the area either. It was disappointing and I don't know why Victoria was a port of call. They advertised a tour of Bouchart gardens but the bus ride was an hour each way and it left maybe 45 minutes to explore the gardens under lighting. We were sailing at 11:30 PM. I would rather have gone to Sitka.
DD found a cats eye cabochon Alexandrite ring she loved. It is her birth stone and we did bid on it in the auction they held, but lost to a higher bidder. Then we found a one of a kind one (heart-shaped stone with diamonds) and were able to get it for a better price. It is being sized. I found my birthstone in a ring, in another case found the matching pendant and later found the matching earrings. The final price made it hard to say "no". I had to send the ring to be sized as well.
We explored Pikes Place Market on Friday when we arrived in Seattle to pick up the cruise and on the Saturday when we returned we planned to do the Underground Seattle tour. The former was great and I just love the flower market there. As far as the Underground, I was a participant until I found there were 17 steps to be climbed in addition to the hour long walk. The walk I can do, the steps, not. So I was able to get a refund and sat in Pioneer Square, people watching until she returned. There is a French cafe in this square that we decided to have lunch at. She had the goat cheese quiche and I had the chicken salad. Both were delicious and I was hoping to have room for the fig topped pastry shell dessert, but alas, I was full. We did purchase a pastry each for Sunday's breakfast, since we were a 5 AM checkout for our flight home and their dining room didn't open until 6:30.
Today was a trek to Costco to get tires installed on DH's car and DS joined us while we shopped. He always has a list though today, by past standards, it was a short one. He bought DH lunch, but I was still full from breakfast.
Tomorrow we go for the new Covid vaccine, with the flu shot to occur at the end of the month. I don't want to do two together, but want to have both before we set sail for the Panama Canal next month.
I hope everyone has had a great day. It is overcast and chilly here so I am glad we had an indoor outing. Waving "hi" to everyone I didn't mention.
Re: Can we have a forum for "older" people with bc?
There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are the messengers of overwhelming grief, of deep contrition, and of unspeakable love.
Re: Verzenio
Comments so very much appreciated, and especially for us "newbys" who just started on the Verzenio journey. As a nurse myself, I always knew the basic fundamentals of healthy living such as rest, healthy diet, balance rest and activity, lowered stress, etc.
I am finding that if I stick to those fundamentals, it still helps through this process of chemo pill chaos. Chemo is chaos to my body, so my very own personal knee-jerk reaction is in how I refuse to let it run my show. I just carry it (all of the cancer chaos) with me and try to remember to keep a good stock of incontinence products in my car such as adult diapers, extra panties, wipes, extra pants, etc. The balance of rest and activity has taken extra getting used to since I tend to be more others oriented. But maybe that is not so bad since now it's time for me to care for myself like never before. That fact along with my faith being strengthened are true silver linings if you catch my drift!
There are lots and lots of thoughts, feeling, emotions, concerns and new normal knowledge I have not even processed after my first yr of being lacerated in surgery (double mas.), poisoned and burnt, in addition to surviving life-threatening post op sepsis and a large axillary seroma that had to be drained five times before I could even begin the proton radiation. So, I participated in watching the NP drain the fld out of the seroma while I watched on the ultrasound and would tell her please don't miss any…
Long story short, I was so happy I had met my health ins deductible (I'm a RN Case Mgr- so this was a very big deal to me) so early in 2023 and knowing that proton therapy or anything ins gave auth to would be paid for at 100% through the rest of the year was such a relief… until…
The seroma created a "set back" and I had to wait until Jan. 3rd to start the radiation. you know what that meant. My high deductible had to be paid first!
So much loss and trial… i am trying with all heart to count the positive changes taking place. Like the very fact that today I am alive!!! Thanking God to be alive today. That's the best start.
Hugs to you all. I am torn between continuing my career as a nurse in geriatrics as an indep. care mgr or interview for the ABC program at the Y.
I keep coaching myself… well, I help dtrs (and sons) either way… my heart is leaning towards the dtrs who are going my direction and rediscovering who they are and processing what they are going through versus staying with those running after their dear aging loved ones and needing help to coordinate their care.
(Wow, I just kept writing… thanks for reading and thanks for writing as I am learning so much from you all!!)
Re: Stressful event years before diagnosed?
This is almost impossible to prove in a trial which is probably why it is not one of the questions we answer at the doctors office for putting us in high risk. I've answered questions about family history alcohol use whether I've had any pregnancies and even age of first menstruation but never anything related to a stressful lifestyle. I've read about a view that people under stress make lifestyle choices that could potentially put them at a higher risk such as through excessive alcohol consumption or smoking but that seemed a little silly to me as this really is not representative of our population here on BC org. In any case this is not something that can be proven or disproven easily with a scientific trial.
Here is what I also know and think: as mentioned in previous posts cancer cells exist in everyone's body but the immune system takes care of them. Something went wrong in each of us where our bodies could not stop this and eventually tumors were formed. This also puts us at high risk for the same thing reoccurring regarding rogue cancer cells that may have remained in our bodies after treatment from our existing tumors or even completely new ones. So it only makes sense for us to take better care of ourselves, know when we are tired and give our bodies a rest physically and emotionally. It cannot be purely stress but stress could very well be a factor that depressed our bodies' defense mechanism. I watched a documentary (old one I think) on stress on netflix and it's pretty scary what it can do. I don't believe you need to have a traumatic event for stress that depresses the immune system necessarily, this documentary showed that chronic stress due to multitasking is in fact one of the biggest contributors to stress and premature aging internally. I don't know about you girls but I multitask every day, in fact it is one of the performance indicators for many office jobs today and I can say that I am a high performer in that regard. Our bodies probably gave warning signs before one way or the other if we were under stress that affected out immune system to the point where it could be a factor. I have three aunts that had breast cancer (and have survived by the way) and each had lichen skin disease which is thought to be related to issues with the immune system, in the years before they formed breast tumors. I did not have this but it's interesting to me.
Long story short, think stress is a factor but does not have to be a single traumatic event in my opinion, and we should all be watching our bodies carefully to see if we show any signs unrelated to cancer that could indicate our body has reached a limit. I don't mean to say we brought this upon ourselves at alland it could very well be dumb luck that our defense mechanisms did not function as well as others. All I am saying is that as this is not going to be proven one way or the other, it makes sense we try to be aware about this going forward and play it safer. Many of us don't have the ability to make drastic changes in our lifestyle, but I guess we can give it a try to take a break when we see signals. Surely can't be bad right?
Re: Can we have a forum for "older" people with bc?
Betrayal - happy to hear you and DD had a wonderful trip. Thanks for sharing the amazing pictures. The deep blue ice at Dawes Glacier is beautiful. It’s nice that you have the Panama Canal trip to look forward to.







