Best Of
Re: My choice--refusing treatment
I am 50 in March and so happy to see I'm not alone on the island!
I did the surgery.....that's it I'm out.
The chemicals in the chemo are GOING to cause other problems down the road.....this isn't a maybe. The MO said it would have a 1.6% chance of stopping death from BC in 10 years (doesn't say it won't reoccur btw), but it has a chance of creating leukaemia!!!!! I will take my chances....
The tamoxifen is my last decision. I originally thought I would take it, almost everyone I know who could take it did. I started reading and I can honestly say it was really disturbing! The origin of the drug, one particular study to validate it, the fact that it is a carcinogen on the WHO and cancer sites, the possible side effects which can be beyond serious in my eyes, and the fact that it can still come back after all that(and stronger), I can't do it.
Now I was stage 2A (3cm no lymph nodes involved), another area was 1.4cm. Was multi centric in the right breast, something unknown in left, 3 aunts with BC, I chose a bilateral mastectomy. Turns out I also had Pagets on the right, so good choice!
My plan is diet, exercise, supplements, emotional and spiritual well being. It was always about everyone and everything else for me, now this will change. BC was my wake up callto treat myself better.
There is an abundance of information out there, choose wisely (from reputable sources), read and think outside the box a bit (recognize full hippie fanatic vs pharma front man and anyone who receives bonus payment for the kind of treatment they recommend)
Do what you can live with. It's a hard decision, I am trying to come to terms with mine......
Yet don't want to upset MO lol how silly!!!!
Re: Mastectomy or 3rd try
I haven’t been keeping up with my post but checked today and saw yours. I ended up having a bilateral mastectomy in July, no reconstruction. Pathology findings were IDC grade 2, right axilla lymph node positive for metastatic carcinoma. Left breast had minor findings of DCIS, so very thankful we did the bilateral. I finished 6 weeks of radiation and have just now started on Kasqali and Anastrozole along with a monthly injection of Goserelin. Sending you all the best vibes as you navigate this next part of your journey.
Re: So...whats for dinner?
Carole, Well done getting back to your winter routine and making your scale go in the right direction.
Wally, It’s too bad the saw arrived at the same time as your DH’s fatigue. Hopefully your eyes will recover from dilation quickly so you can attend the dedication.
Nance, Enjoy the Italian dinner. When you find a dish you really enjoy there’s no need to order anything else.
Eric, A gravel truck that was supposed to slowly spread new stone along our driveway in MD miscalculated the height of a wire and just dumped the load of gravel. DH had already moved to Canada so I had to spread it all. Afterwards people driving by would ring the doorbell and ask who had done our driveway. I told them but let the know I was not for hire. It was hard work.
Dinner tonight was pot roast, butternut squash and mashed potatoes.
Re: Can we have a forum for "older" people with bc?
This morning I was chilling out on the couch talking to a gf in Illinois, when another call came in. I didn’t recognize it but took the call. Good thing I did because it was the couch repair guy saying he’d be here in 15 minutes. It was just 10 AM; appointment was 12-1:30. I told him I had to get dressed! It’s a good thing I shower at night. Wash face, brush teeth, run a brush through my hair & hit my eye lashes with mascara. And threw on clothes.
It took him less than 5 minutes. He didn’t have the full part to replace but thought he had the cover plate in the truck. Sure enough he did, and it snapped on in seconds.
I also ran to pick up our ceramic pieces after picking up my grandniece from school. We’ll, let’s just say my pieces look like a kid under 10 did them. We laughed! For what they cost me, I could have hired a professional to paint them; or bought them for $10 or less at a craft fair. The lady who wrapped them said the smaller pieces are harder, because you’re trying not to get the colors mixed. I say that was her being polite.
Gf dh had a cardiac catheter procedure today. No blockages were found and no stents required. They were told it could be at the end of next week, even Friday, before his procedure in NYC will take place; and that he’d most likely be there for at least 4 days. I may stop over tomorrow with a deck of cards see if we can waste some time playing a game of rummy or just leaving them for him to play solitaire.
That’s it here. My sign for Saturdays rally is the same as I carried for the last rally. I put it on my stair landing because I didn’t know where to store it. HA! I see it every night as I go up to bed. Which is where I’m heading now. Nite!
Re: Can we have a forum for "older" people with bc?
I puttered in the house this morning. Then in the afternoon ran out for my hair cut. I like the cut but know I’ll like it more in a week or two. Between product being put in it, and not the same way I dry it, I’ll be good in another week.
This evening I went to a stamping class, to make fall cards. I was supposed to go with the gf whose husband is in the hospital, but that wasn’t happening. Instead my niece went with me, and she had such a good time she is signing up for the next 2 classes - while I’m in Florida. One piece they’ll be making is a shadow box, with sea glass used to make either a wreath, snowman, Christmas trees and I think martini glasses for “Cheers!” - each looked great.
Tomorrow we have a furniture repair guy coming. The new leather sofa has a cover plate missing from where reclining buttons are, and they can’t replace just the plate so the whole thing needs replacing. They’ve narrowed down their arrival time to 12-1:30.
Tomorrow is also when we can pick up our ceramics at the pottery place. I’ll grab my grandniece and maybe go out to eat. Lately she’s hooked on McDonald’s snack wraps. But maybe I can talk her into something else.
Weather doesn’t look too bad, just cooler as is to be expected. - cold and rainy doesn’t happen until Monday. So Sunday the game plan is to get the rest of the summer stuff put away - hoses, table, umbrella, etc.
Hope we all have a good Thursday!
Re: Can we have a forum for "older" people with bc?
Betrayal - miss your words of wisdom but love the pictures.
Like IntoLight, I wish we could still travel. Thanks for sharing your adventures as a missionary. We spent 3 months at a missionary hospital in Adidome, Ghana during Ken's last year of medical school. Tremendous medical experience for him and I collected data for my masters thesis while there. I loved going to the village clinics with the nurse.
Carole - relax and enjoy the time outside. Ken laughs that he has never met anyone who plays so golf so badly and yet enjoys it so much and I agree. I've moved to shortest tees and only play nine but I am missing it and my friends now that they are overseeding. I find the gym very boring. Went to water aerobics a few times and felt that the instructor was making fun of me - and my golf friends just applaud when my ball goes a little farther than usual.
Weather has been beautiful following a really good weekend of rain here. Sadly, there was major flooding east of Phoenix though and a microburst in Tempe, just east of the city. It's a shame that the golf courses are closed right now. For me, fall arrives in the desert when we can have the house open for at least part of the day. And summer arrives when we can't. Speaking of weather, DD forwarded a Facebook post that noted that her town in southern Maine was officially in extreme drought. She's worried about her well.
Bella's parents gave us the gift of a book - one we write ourselves - as a thank you for taking care of her. Every week we get a question and somehow they will edit our recollections into book form. The first question was about our fathers. I've written about my Dad and am grilling Ken about his. He died shortly before we were married so he somewhat of a stranger to me. DH won't write about him but seems pleased to respond to my prompts. I was initially leary when Jie mentioned this, but I think it will be good for both of us and something for Debbie to have when we're gone.
Be safe everyone. I'm going to the No Kings rally!
Re: Can we have a forum for "older" people with bc?
carole, glad you like your new hair.
Cindyny, let us know how your new hairdo works out.
We are in Port Quetzal, Guatemala. None of the cruise excursions appealed to us so we left the ship to explore the local vendors. Got a lot of nice items for a decent price. Bought some embroidered table runners, baseball caps, flower hair barrette for DGD, local coffee, etc. All for Christmas gifts. It us warm but to tolerable due to a nice breeze. Had a nice discussion with a Guatemalan gentleman. He used to pick up cars in US for delivery to Guatemala, but is afraid to do it now. I don't blame him. He spoke English fluently.
Hope everyone had a great day. Waving "hi" to everyone.
