Best Of
Re: Can we have a forum for "older" people with bc?
Welcome Janie. As you may have observed, we don't bite. Thanks for the extra bio. My DH did his surgical residency at Wilford Hall/Lackland. We lived in DC twice and have been in AZ since 1997.
Snow is beautiful to look at but I'll pass. And you can all remind me of that this summer when it's 110 degrees for many days in a row. It's supposed to be 94 on Saturday. Way too soon and we really need some of that moisture that you easterners are getting.
Carole - I sold real estate for over 15 years when we first moved here and in all those years, I only had one client that got more for their house when they turned the first offer down. Assure your friend that it's just one signal that the timing is right for the next chapter. She can now move on with the mess of moving without worrying about having the house ready to show on a moments notice.
My Irish relative was born in Dublin in 1822, my deadend in genealogy terminology. She shows up first when she marries a much older man in 1859. Part of my frustration is that I don't know if the surname given when she married was a birth surname or a previous marriage. I've even had the Irish expert at NEGHS help me and we couldn't find her, even with a birthdate from her gravestone.
Be safe everyone. Looks like more bad weather is on the way across the country again.
1946taco
Re: Can we have a forum for "older" people with bc?
In the end, you're trying to find God. That's the result of not being satisfied. And it doesn't matter how much money, or property, or whatever you've got, unless you're happy in your heart, then that's it. And unfortunately, you can never gain perfect happiness unless you've got that state of consciousness that enables that.
betrayal
Re: How are people with liver mets doing?
@maaaki
My tumor was 1.8 cm in segment 7, in a tricky location close to the diaphragm and lung. (Grew 30% more when I was waiting for the ablation. So probably 2.3 cm or so)The ablation is done and I’m now 12 days post-procedure. My doctor said it was successful.
I’ve had three Faslodex injections two weeks apart and now continuing monthly, and I’m on day 3 of Afinitor. I’m feeling good — especially after reading your story and seeing that someone could stay liver-clear for eight years. That really gave me hope, so thank you for sharing.
Do you mind if I ask what your next treatment plan is now?
Also, did you follow any particular lifestyle, diet, supplements, or exercise routine during those years that you feel helped keep things stable? I’d really appreciate hearing what worked for you.
Re: All about Xeloda
@airlinegal….I moved up to 2,500 at my request. When my feet got so horrible before I realized the folic problem, my oncologist took me off Xeloda for 7 weeks.
During that time, a spot appeared in my liver.
So I asked to go up to 2,500 and the spot did go away.
I take a dose of Miralax and 300 mg of stool softeners every evening, and have done so for my two years on Kadcyla and for my 8 years on Xeloda.
Glad that you are feeling better. My PCP gave me a referral for a new cardiologist who I will see in April. My
BP is either very low or very high.
@threetree…..I don't have muscle aches and hope that you find out why you do.
denny123
Re: Use of Signatera testing in stable disease
@gypsy11995544 Julia, congrats on the clear CT and negative Signatera after declining chemo and radiation. 🎉 Wish that test were an option 16 years ago. Although I declined chemo, I did undergo radiation.
I sometimes wonder how much harm the treatments cause. I’m currently having a lot of joint and muscle aches as well as sciatica. All of my research points toward my aromatase inhibitor as the cause. May have to switch to Tamoxifen, which I was on the first go-round. Since my PET scans and Signatera results have been great since July, I am ready to make the switch.
Wishing you continued negative Signatera tests, Julia!
Hugs, Pam 💗
Re: Should I find a new oncologist
So sorry for what you are going through. I feel like there is enough stress and cancer is emotionally taxing on a "good" day. I feel it might be worth finding someone you can connect with. My guess is you'll have to continue with an oncologist for follow ups and you'll want a reassuring doc that you feel comfortable talking to. If there are better options out there, go for it
ebst61
Re: ER-, PR-, Her2+ Roll call
@bcnc321 I am glad you found this forum. We are all at different stages of this diagnosis and I am certain you will find love and support here. Please don’t hesitate to ask any questions you have, someone here will have the experience to answer or share their experience.
Re: My Husband, My Life, My Love, My Family, My Cancer
@runor Frozen yogurt for me is the soft ice cream. My DGD loves a business here called Swirley Cow—sort of like Fro-Yo. Anyways my DD takes her there for a treat and she brings one home for my DH and I too. I eat Greek Yogurt at home and add berries. Me DGD is a nightmare to feed also but she does eat sweetened yogurt. She eats other things but it is a texture thing for her too. She is almost 11 and very active and has good muscles (she is a gymnist) so she is getting something.
@irishlove I was never told 2.5 was the threshhold for active tumors. That is new for me. I thought anything growing was considered active but maybe my MO looked at anything over 2.5 for a med change. Interesting. Our low temps continue to be in the 30s but we are reaching high 60s for the rest of the month during the day. Since we totally redid our landscaping two years ago we need to water. But since we are so dry there are water restrictions. It will be a tough Spring.
Re: Can we have a forum for "older" people with bc?
Cindy, I was on a streak of 110 Wordles solved and hoping to beat my 138 record when I missed one. It was typical of my misses. Two letters missing with multiple obvious choices. Then the next day, I solved on the second try. I was doing most of the NYT puzzles daily but lately have been doing Wordle and Spelling Bee. Occasionally some of the others.
When you were posting about multiple guests visiting, I was thinking, "Better you than me." LOL. Having visitors around can get old quickly. At least for me it can. Hope you enjoy your Key West trip.
We skipped the State of the Union speech last night. This morning I read about it. I was glad that the Supreme Court justices weren't openly scorned. I'm of the generation that likes some decorum.
Chris, glad you're resting and recuperating.
Canary Cat, hope all works out well for you with health issues and with your theatre work.
Re: Can we have a forum for "older" people with bc?
I’m behind, again. Welcome Janie.
Our second guests leave today. The gf is overwhelming me with constant chatter, from the minute her feet hit the floor. A lot of talk about HS, college and a repeat of her kids schooling on through college graduation. The first time it was informative, she’s already told us this information over the summer. Her HS days are 50+ yrs ago and living in the past isn’t for me. I’m venting again!
As they leave, we begin to pack for our Key West vacation. But first, we start the cleaning of the guest bedroom and bathroom. Too much going on in a short period of time. We leave tomorrow morning at 6:30 AM.
I woke up with less than 5 hours sleep. I’m not sure why, but our guests were not up, nor was SO, so it gives me quiet time. LOL How sad is that. I’ve checked all my email, did all The NY Times puzzles (Carole lol) and got on here to read a dozen or so posts. I heard their shower going so I know they’re awake. Fleeting solitude.
Stay warm, stay safe, and Betrayal - I hope that snow goes away sooner than later. As Petite said, I too don’t miss it. ❄️
Enjoy your day ladies!
cindyny