Best Of

@mkestrel and @eleanora I will be thinking of you on Monday and Thursday praying there is a good solution. Eleanora, sorry you are still on the antibiotics. There never seems to be a good solution.

Well, slept pretty well, went to bed late as usual but did manage to shave a couple hours off the bedtime, aiming for more civilized hours today. I did some bed exercise, ankles with rotations and holding feet away from me and toward me, 10 of each. Some hip rotations to the outside as well and some crazy good leg and hip stretches and arm stretches as well, felt good. Later may pull up mr Paul Eugene and do his 10 min version of senior gold.

I do not have any plans as of yet today, I do want to get off my butt, organize the recycle area in front of the closet, get everything in one location, I do keep garbage in another big container, when it gets full, goes outside. The big 3 containers are good because there are tight lids on them. I also have laundry and the regular stuff to do.

Was unsure about what I wanted to eat, decided on Mcdonalds delivery. Got the deluxe cheese burger and added extra lettuce, tomato, onion and mayo. I like those so you don't pay extra for tomatoes and such. I also got a junior chicken extra lettuce and mayo, will eat the sandwiches together, happy with extra veggies added to both. Got fruitopia to drink instead of coke this time. Later today, will probably have an a frozen stirfry with an egg and pre heated peppers to make sure not too moist and possible cheese, I will see. It could not be too much cheese. Heat up in the stir fry package and add a few minutes, normally add 2 for a low wattage microwave but with extra stuff, bump up to about 6 min 30 seconds, will be yummy. I do like whisking an egg and add those right to the stirfry or pasta. I could also take the elbow noodles from KD and add queso after boiled, add grilled frozen peppers, garlic and whatever else I may want to add, I will see.

Well, I do hope everyone will have a good day. In pockets for all who may be dealing with pain meds cut in have, SE or progression, I am hugging all of you.

@irishlove In your pocket, I am sorry about the pneumonia but glad you finished the antibiotics. I am sorry for the whackamole sort of treatment for you and empathize with the unease of a low doses of a drug that still give SE for you to deal with. In pocket as well for the PET scan, hope the epdural is at least dealing with any pain for now.

@eleanora I am sorry to read about your progression, will be in your pocket to see what this development leads to related to your treatment and any changes.

Thank you everyone, I have appreciated the support and well wishes re the news from my RO.

I want to say, now that the shock has worn off, I can be realistic and not so worried about the road ahead.

Again, have to see the brain surgeon first, find out what he wants to do about it and go from there, brain surgery is fine with me and not having whole brain radiation either way is good. I will get through whatever happens. I think the realism sunk in sooner because of the length of time brain has been officially involved though MO believes there were cells too small to detect in the brain from 2015. Oh well almost 11 years I have dealt with cancer and different treatments, overall I have not had many set backs and been lucky. I put that thought in my head and it works fairly well. Cognitive decline is not a worry either, I remember everything needed 98 per cent of the time. Recalling actor names not so much. My gait is good even with my cane and lack of proper walking done.

As far as what I want to do around my house, I need to figure out organization, and actually get rid of unneeded stuff that is not used, hate to say it, robot vac would be part of the list, it is trapped under the couch and can stay there. I have huge rubbermaid totes, l like those because I can put something in and top with a lid, I do wish to get the front of the closet cleared out, see what if anything could be stored in there. Keep food storage together in one or two. Keeping the walker back in my bedroom where it started out, was not a bother in there. Not getting rid of it because I know that as soon as I do that, I will decide I want to use it. Now that it is so cool outside, may also take a walk with it up to the drug store to pick up anti nausea meds for future scans and take rests, I used to walk on an empty stomach besides water then eat later. It really is not that far to the drugstore, best time of the day is definitely morning. I will see. If I do it, will be first thing in the morning before noon and take a slow pace and sit, probably every 5 or ten minutes or walk to a street, pop a squat for a minute or so and keep going. I will see since it can be delivered too. I talk a good game but would be the safest walk I could take. Come winter, it would not happen but may start out doing that. I will see.

The only stuff staying are old phones and tablets, old phones can be turned into music streamers, I use one at the hospital, remotes for TV and tablets are good for some programs or watching movies. I also enjoy playing with my older laptops as well with different operating systems to see if there are options to get other uses from like remotes for tv, streaming movies.

As far as food, couple of ideas are floating around. One sees me adding frozen peppers, different seasonings, small dot of plant butter AND garlic butter (it is milder), take a cheese powder, fry up the peppers first, partly to get rid of water, locate a can of chicken or microwave a mini pot pie first, stick into the mini griddle once peppers are done, mash it down, add tiny dollop of either salad dressing or one of my mayos. After this stip is done, remove pot pie and peppers and do a quick egg in there, I really enjoy the eggs done that way. Option 2 sees me microwave a frozen stir fry, has noodles and veggies, easy enough to crack an egg on top and heat in the microwave with butter and garlic butter and the ramen beef seasoning.

EDIT: had some chicken fried rice in the freezer, opened it up first. I took an egg, whisked it, added some small amounts garlic spread and the plant butter. After mixing them in a small bowl, poured over top the rice, heating for 6 mins in the microwave. I did add a packet of the ramen seasoning which is fine. It smells REALLY good. I did also add shredded cheese as well and it was quite yummy and very enjoyable. My last meal of the day believe it or not, I got some honey nut cheerios so added handfuls of those into peanut butter containers, dang that was good and quite filling too which was great.

I was lazy today, watching youtube most of the day and a movie with Steve Martin and Turner called The Man With Two Brains. I really do enjoy that movie, crazy but funny to me.

I hope everyone else had a good day, I am in pockets for all who need support, in my own to maintain my more practical mind of dealing with worries as well. 10 years of having this beast, by next year, will be 11 and 10 on the official dx of brain mets allows me to map out possibilities in what needs doing re the cyst with blood flow that will require drainage or removal. It is not even close to the end of me, just might be a PIA stay in the hospital. I must admit that post surgery the first time around in 2016, I actually enjoyed my stay. I can only hope that if there is a stay with a roommate or more, will get one like this.

.