Best Of
Re: Can we have a forum for "older" people with bc?
Canarycat - thinking of you as you wait on the procedures and hoping for the best possible outcome. Would love to see a photo of your Ravenclaw costume.
harley07
Re: Can we have a forum for "older" people with bc?
loving all the photos everyone! It’s been sooo rainy here that I’ve decided to not d3corate. At all. Well at work I will. I’m working Halloween and going to dress up as a Ravenclaw. I got the cape at a second hand shop a few years ago for a steal of a deal. Tried on my white shirt and it still fits. Phew. I have a scarf, tie, and a wand. I will post a photo when I’m dressed up. Lol. Two procedures I’m waiting on. Oh three. How can I forget that CT scan of my lungs That still hasn’t happened. Phoning the cancer centre today to squawk.
apparently it’s international black cat day. Ziggy wants to join in so here’s a few photos of him. Also a comic for the season.
Re: Stage IV MBC Fitness
@eleanora Hi! You are right it was painful but I was living with the bad cramps just figuring I had a stomach virus and it would resolve itself. If wasn’t till I had a pain one morning that actually made me cry out that I made a GI appt. The NP at my GI’s office told me to stop tolerating pain - she said women do that all the time and make things worse by ignoring the signs of a bad medical event. In any case, I was very lucky - I was hospitalized for 8 days and was getting antibiotics intravenously. They worked so I didn’t need surgery. Once I learned how close I was too that, I made a pact to be less hardy 😂. At least I thought I did - till the next year where I tolerated a ‘bad cough’ for almost 2 months bc I ‘always’ coughed. Finally decided to look into it and learned about my MBC.
Now I wonder with every little cough, ache and pain whether I should be concerned or not. I’m using the good scans as my guide unless something is really bad - just hope I don’t screw myself up again.
I am diligent with keeping hydrated, probiotics and eating enough fiber to try my best to prevent any flare ups - so far so good. I hated the limited diets and weeks of low fiber and strong antibiotics (they really are difficult to deal with!). Once you are in better GI shape, I highly recommend keeping on top of this stuff too. I hope you feel real better soon!
eddiej
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl hug to you, sorry you had to cancel your trip. I hope you improve enough to go soon.
Doc wants a PET scan to see if the new liver lesion lights up before deciding to change treatment. Also since the other two were smaller and nothing new on bone scan, might not change. Maybe consider ablation procedure or radiation target option too depending on location etc. yippee yahoo sigh
mkestrel
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Thank you for taking the time to update us on your situation. I have been wondering how you were doing knowing you would be going through some tough procedures lately. I am so sorry you are struggling so much and pray the doctors can find a strategy to provide some relief. You are loved and thought about here. Bathing you in hugs and prayers.
Re: My Husband, My Life, My Love, My Family, My Cancer
Well, the force was with me on a terrible walk. I did use the walker, it was as bad as I remember, kept hitting right foot on the wheel then at time, it got away from me until I put breaks on. I did make it there and picked up the prescription, I did down a whole large bottle of water and did take rest breaks BUT once I got close to home, I was feeling the faint feeling. Got to my steps, folded the walker but was super tired at that point, neighbour helped me get walker to my place but I had to hold onto the railing to feel balanced. I think if my place had elevators, that part would have been easier to get the walker in but have to carry it up and when already feeling a bit faint, does not work.
I am no longer going to worry about walking with a walker, I don't like not seeing my feet, cane will suffice and get steps in the house. As said walker kept wandering off ahead, I found it difficult to keep my feet in that space, seat was nice but I almost lost balance getting up. If I had to, would take the bus places, bus stops are not that far away and feel more sure on my feet.
Also, even though it is only around 50 F, my face is bright red too so that may be an issue. As far as outdoor walking, that is no longer an option, indoor on treadmill will be fine, walk on the spot etc, shoot, sit my butt down and march my legs or lift legs in bed and march. One thing I will say is that all the PT on ankles and hips and such did come in handy to keep me up when a stumble could have happened. I also got 9000 steps round trip so guess that is good too.
Not getting rid of walker but tucked it out back instead.
Now getting something to eat, nice not to have fallen but will continue with my cane instead. Keep this experience to myself vs SIL, she has enough to deal with herself, wish she would tell me but have to wait til I see her. Not sure if epilepsy is getting worse or what. Again sit on my hands until we see each other. Once I have an appointment at the other hospital with my neurosurgeon, she comes for that and I will ask.
In the end, it is good to sort of add up the good and bad, good was no fall, almost stumbled but could catch myself. Did manage the walker most of the time except when it felt like it was moving ahead. Handled that well. Sitting along the way was good too.
The one thing I cannot do anything about is my thermoregulation even in cooler weather. My face was bright red, lets me know that it is not necessary to walk an hour outdoors but keep the legs strong in the house, walk around with a cane. Make sure walking to a bus stop if need be
I did not getMcdonalds after all, had my new snack of choice, putting Honeynut Cheerios into a peanut butter container, I must say that taste combo is really good and filling though may have to make an egg a little later.
Re: De Novo Stage IV
Dear @superdenovo37 , 56 cycles of Enhertu, wow! I remember times when during Cleopatra protocol clinical trials >50 injections of HP were wow… now we are on to most powerful ADCs and we manage them well. You are amazing, your team is amazing! You are there for your daughters and that is the best thing in this world… Many many chugs and keep us posted from time to time,
Saulius
bsandra
Re: Bone Mets Thread
@norah2024 - I understand what you mean about the tumor markers. My onc is basing his advice to me on the fact that my tumor markers are rising very slowly; like about 1 or 2 points every 3 months. They are in the teens somewhere now if I remember. He did say that if one of those suddenly jumped to a 50 (like the 20-30 point jumps you are referencing), he would take a different view. I didn't realize your markers were jumping that much. I also want to say how very sorry I am about your pneumonia. That sounds terrible. I have never had to deal with that and hope I never do of course. Reading about both yours and @irishlove 's experiences with pneumonia have been downright shocking. I wish you both the absolute best with your recoveries.
Re: STEAM ROOM FOR ANGER
Hello @klrtts3p.
Thank you for being part of our community and sharing your truth. I’m sorry you’re going through this, and I want you to know it’s okay to feel angry. This is a safe space for you to connect and share as you need. Please know that we’re here for you — today, tomorrow, and always.
The Community Navigators
Re: Capivasertib and fulvestrant injection
Thank you so much for your welcome, I will look into the thread you suggested.
It helps knowing there is support out there 💖
Kind Regards 🙂