Best Of
Re: Can we have a forum for "older" people with bc?
Hope smiles from the threshold of the year to come, whispering, 'It will be happier.'
betrayal
Re: My Husband, My Life, My Love, My Family, My Cancer
@wren44 - Count me in your pocket too. Good luck with these. I absolutely know the sitting around and waiting for hours with the CT and bone scans. I have a friend who comes and picks me up and accompanies me, and we usually start out in the mid morning where I get the injection, then I get the CT; we go to lunch, and then go back and do the bone scan, before leaving. It does take several hours like you noted, but it does help with a friend and that break in the sessions where we can go get lunch or whatever. Again, best of luck!
Re: So...whats for dinner?
Rhonda, Yum on the home made croutons.
Wally, Your bbq pork shoulder blades sound delicious. Since DH can’t eat pork I’ll have to wait until spring to get takeout pork bbq for myself while DH has chicken.
Minus, I hope your flu recovery is continuing.
Dinner tonight was spinach and ricotta ravioli in Rao’s. Yay for real food.
maggie15
Re: My Husband, My Life, My Love, My Family, My Cancer
@irishlove - Love the cardinal story. Hope it's nothing serious with your swallowing.
@sf-cakes - Hugs right back!
@mara51506 - Sounds like you settling in at home real well. How wonderful that your sister-in-law did so much for you. You are very lucky, indeed! I'm still staying in your pocket as you recover more completely.
Just want to say hi and good morning to all in Mel's living room. I just love this group and I second SF-cakes big group hug. You all have helped and meant so much to me, as I continue to try and navigate this big nightmare. Thanks to everyone!
Re: My Husband, My Life, My Love, My Family, My Cancer
@wren44 in your pocket! Waiting around for the bone scan, ugh. I know that stuff has to "settle" on the bones after it's injected, but I'm usually very impatient, c'mon let's get this over with already...
@intolight in your pocket, as well. ❤️
sf-cakes
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight-a man at church has influenced my thinking. He has been on maintenance chemo for quite some time. During "chemo week," he and his wife plan nothing and just stick to close to home. But on weeks 2 and 3 he lives a pretty good life-he's a song leader and active in various ministries, socializes etc. He also looks pretty good which I am embarrassed to admit is a factor for me. If my chemo was like his-horrible for one week but back to living life for 2 more weeks, I would do it. But I won't know until I am in that position and know how "horrible" the horrible is and how well I feel on the off weeks. God grant you wisdom.
Re: Awaiting results for stage 4 mets to liver and lung
@rink23 I'm really sorry you're having to go through this. The biopsy should show what kind of breast cancer it is and that will determine treatment. You might also want to request a more thorough genetic test (ie. Signatera, Tempus) to see if there is any relevant genetic expression that might be driving your cancer. Some kinds of breast cancer mean rounds of chemo. Others mean that you start with an oral treatment. You will know when you talk to your oncologist. Until you know what kind of cancer it is, you won't know quite how to proceed, but there are many here with triple negative, ER+, HER2+, etc, who can give advice then.
Re: I am not grateful to my oncologist and care team
Mgradie,
For neuropathy, I got great results taking a sugar-lowering drug, Jardiance. Peripheral blood sugar irritates nerves and this drug works so well for diabetes-induced neuropathy that they are considering moving it to the first-line treatment recommendation. My MO was willing to prescribe it for me, although I am not diabetic or prediabetic. I had significant neuropathy for several years and assumed it would be permanent, but now its pretty much gone, no pain, and just a bit of numbness in one area if its really cold out. It seems that even if the problem was caused drugs rather than by high blood sugar, as is the case for diabetic neuropathy, it may still help a lot (ie way better than gabapentin or accupuncture) to try to lower the blood sugar.
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight Two weeks on, one week off sounds really rough. Keep us posted on what you and your MO figure out.
Re: My Husband, My Life, My Love, My Family, My Cancer
@cookie54 I am enjoying being home, playing where did SIL put this stuff. SIL busted her butt organizing and clearing stuff out from the back to go to the trash. I mostly like it tbh, might make a couple minor changes, love and appreciate the pantry rack and how she organized my containers. Still going through to locate stuff. Bedroom apparently is not being used for any sort of food storage either, my clothes are in dresser. Just need to find rice. I will look for it myself, giving SIL a peaceful day to herself.
Another different thing for me is a made bed, I need to make the bed at least when I go to bed, keep up blankets in the wash. Oh well, it takes 2 mins to sweep and mop up the apartment and I really want to keep it up for myself, not just other people.
