Best Of
Re: Can we have a forum for "older" people with bc?
Chris, my orthotics last 1-2 years at max. The body weight on them compresses them, sometimes sooner or later. This is what a script had to say for mine to be covered between Medicare and my secondary: One pair customer foot orthotics; coding: 247.89. This is my first time not having to pay for them. Here they’re up to $520, includes the orthotics and as many visits necessary.
At our dermatology appointment yesterday the dr noted my one toenail is coming off. I’ve never lost a nail. This is from the surgery on toes next to it. He says the new nail is under it and it will peel off eventually.
This morning we were up at 5:15 AM; to the gastro office before 6 AM. I went in for the sign in and left for the procedure. We’re about 5-7 minutes away. I picked him up by 8:10. They found 4 polyps, sessile, under 4mm - believed to be benign, and removed them. Follow-up in 3 years for surveillance. Although his son, a gastroenterologist said newer protocol is 5-7 years; he’ll do it again in 3.
I took a “nap” for an additional hour around 9:30; total sleep 4 hrs. SO is in bed now, I don’t think he slept more than an hour last night.
I’ve got a chill. House feels cold but isn’t. It’s probably from lack of sleep. I’m fully dressed, with my fuzzy robe on too - which lets me feel comfortable.
Let’s go JAY’s!! Last night was good.
cindyny
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 I have been getting caught up reading everyone’s posts from the last week or so, even though my own setbacks have kept me from reading & Posting. My dear sweet girl, I saw what you have dealt with in your brain. I am so sorry for all that you are facing.. I’ve also read that @eleanora , you too are going thru cancer bullshit. @irishlove I also want to say thank you for your caring comments. Geese, I’been away from this forum too long. I should have been here all along sharing and updating rather than isolating. We all need this space to share our good and bad stuff we go thru. Thankyou again @cookie54 for reach out to me. It got me out of my own head and back here with my sisters. Also I want to say happy birthday to @micmel ’s Gabby and I love the picture of Theo little Hap Hap Happy dog, He’s a Happy dog🥰🎶. Also I’m thinking of You @intolight @mkestrel @tougholdcrow @tanya_djamila @candy-678 @goldensrbest 🩵💗
@threetree I think of you all the time and pray for what you too are going thru with your liver progression.
I’m still wondering if my new met on my Vestesabulum in the pack of my groin and hip showed up in the latest MRI because I went off the Verzenio for 3 weeks during the summer, due to dental, issues, and also I forgot some doses the week I had the bronchoscopes and radio frequency neck procedures. I et with the Radiology Oncologist at JFK Hospital on Monday morning and he said I may not have to do more than 7 days of radiation. I’m hoping that will knock out the pain in my hip and groin so I can walk without limping and pain. I’m not mentally ready for a Cain or a walker. I still prefer holding on to DH while I’m walking….I have my appointment with my Onc on Monday and also my pulmonologist same day, so I am wondering if my Onc will let me stay on the Verzenio and put me back on the XGeva. It’s all a waiting game for us all. I am here in everyone’s pockets who are struggling with new setbacks, pain and everything that goes with mets. For me, I just want to remain on my usual treatment a bone metastases, and not worry about lung liver and brain progression🫣. Also, You are all in my breath prayers throughout the day.
Re: Can we have a forum for "older" people with bc?
I am following along. I need new orthotics. Those who wear them, how long before you need new ones? This has been two years, and I am back to wearing an ankle brace to get me through the time necessary for my appointment. That is in the city on the third, I will also have the cast sut off and a custom splint for my right hand.
Somehow I have gotten French as well as anglas in my word correct.
Still eager to get some sewing done. I got the coolest knives for cooking ..
Amazon.com: Right Angle Knife 2-Pack – Ergonomic L Shaped Knives with Serrated & Chopping Blades, Adaptive Kitchen Tools for Arthritis : Health & Household Tried the serrated one with my 100% whole wheat bread, but it didn't work. Will try a loaf of 33% ww.
Made some dill pickle flavored potato soup yesterday, and it is as good as ever.
Had my eyes checked this morning, and I am right on the line with cataracts. Next year they should be ready to pop.
mcbaker
Re: Can we have a forum for "older" people with bc?
Petite, what a great idea purchasing the cabin has turned out to be for you. There are two kinds of winterizing. One is the kind we do with our rv in MN. Winterize to leave for the duration of cold weather. We drain the water and run anti-freeze liquid into the pipes. Drain the water from the icemaker. You're wanting to protect your cabin from freezing weather while still using it. I agree with those who advised you to talk to neighbors. Also the local hardware store can probably give you information.
Cindy, hoping for good report from the colonoscopy.
It's sunny this morning and my laptop says 49 degrees outside.
Taco, I played 9 holes of golf yesterday. The course looked really nice after a good rain.
I plan to go to senior exercise at ll:30.
Hi to all.
Re: My Husband, My Life, My Love, My Family, My Cancer
Must be feeling better, looking at wigs on Amazon, the funny thing is, they are different colours from mine, not going to get one now, let the impulse buy thing go away. I still have 4 wigs two of which have never been opened and I am able to poke some of my own hair at sides of head near ears. My own natural brown colour matches the roots of the wig. They are 30 bucks so can decide to save or budget boost for a different one, try out all the different hair styling paste and stuff like that. I will see.
Re: HER2 Positive-anyone 10 years out?
@shorty123 I have been on Herceptin for 20 years, sometimes alone and otherwise with a chemo. I have an echo every 3-4 months (tons easier than a MUGA scan), and my heart is fine.
I have no side effects from it and have my infusion for a half hour. There is a Herceptin injection available, but the side effects from those can be hard.
I am at almost 24 years of Stage 4 MBC de novo and credit my longevity to Herceptin.
denny123
Re: HER2 Positive-anyone 10 years out?
Shorty, I did do herceptin and it wasn't bad at all. Something to consider if you decide to do it is to have them run the infusion for an hour instead of a half hour. Some gals who did have problems with herceptin had the duration of the infusion increased to 90 minutes and it really, really helped. My first infusion was run at 30 minutes but it felt wierd so they increased the infusion time to 60 minutes.
As far as heart concerns, I had a MUGA scan every 3 months and I think once every 3 months is standard protocol. Here is a description that I found which explains a little more about a MUGA scan. "This mode of imaging uniquely provides a cine type of image of the beating heart, and allows the interpreterto determine the efficiency of the individual heart valves and chambers. MUGA/Cine scanning represents a robust adjunct to the now more common echocardiogram".
I was triple positive and I am now 16 years out. I would get a second opinion on treatment recommendation.
Sending you positive wishes.
Elizabeth
Re: Can we have a forum for "older" people with bc?
petite - I went to a NO Kings rally. Good luck winterizing the cabin.
Betrayal - Norway and Arctic Circle sounds fabulous in 2027!
Cindy - Autumn Glow looks wonderful. Good luck to you and SO tomorrow
harley07
Re: Starting chemo in October 2025? Let's support each other here!
Hi @adeena1 - likewise! I was also diagnosed early August from a routine mammogram, had a lumpectomy 3 weeks later. I am starting infusion #2 later this week and am suddenly having my hair shedding like crazy. Up until then, I was just managing side effects that have gone quiet for now. Good luck with your ongoing treatment!, I hope you feel as well as possible. 😍
The moderators sent me this link to the Hair Hair Hair thread which is ALL about hair. Interesting to read others' experiences. (I hope the link works)
Re: CALLING ALL ARTISTS- Lets make an art gallery!
The gallery idea is excellent.
I’m an architect and an artist, and these are some of my drawings.
I’ve recently stopped drawing because I developed pneumonia and some health issues that worried me, so I lost the desire to draw for now.
