Best Of
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 Happy to hear today went smoothly and you had lovely company too! It’s always nice to chat with others at chemo. Glad you are remaining calm and taking it one step at a time. It’s not easy but I think we’ve all become very good at it.
@shanagirl We all have our moments for a variety of reasons living with illness that keeps us off of here sometimes. We are all in the same boat and when we don’t see a sister here we worry. It’s like having a good friend that you don’t talk to daily but just pick up where you left off.
Had a Dexa yesterday and dentist today , grateful no mouth issues. Will wait to see if bone density has improved or will need to change osteoporosis meds next month. It’s the least of my worries so no worries waiting. Tomorrow looks pretty rainy so will get some house work done . Ugh poor Jamaica , so devastating! Can’t even imagine dealing with that, God Bless Jamaica💔🙏🏻
cookie54
Re: Can we have a forum for "older" people with bc?
Sandy, I'm also sorry to hear about your son's breakup. But glad for you that you're on the verge of being "back at home."
We have missed you on the What's for Dinner? forum but understand why you're too busy to post there.
It must be chilling to have ICE in operation in your neighborhood rather than just read articles and see coverage on tv.
I have had a pleasant day. My exercise class was great. A food trailer outside the YMCA was selling barbecue today so I called dh to ask if he'd like barbecue for lunch. He said he would so I bought him a meal with brisket chili and sides he likes, coleslaw and baked beans. I had the brisket chili, which was full of chunks of barbecued brisket and was very good. Brisket is my favorite barbecue meat, with chicken a close second.
Hope everyone else had a good Wednesday.
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Yeah, I was upset about my brain throwing a growing cyst with bloodflow. I was scared at first but taking things a step at a time. I am sure surgery will be on the table as they need to remove it. If benign that is that. If metastatic, surgery and spot treatment radiation. I can handle it. Yes it sucks but not having any tears and reminding myself that I have done this almost 11 years.
Had a LONG wait for chemo but the weirdest coincidence was that there was 3 of us sitting next to each chatting with the same dx Her2+ cancer, two of us spread to the brain and one spread to some bones. They both had hair, I said I jealous of their lovely hair, they liked my hair too. I did not bother to correct the fact I wear a wig. We waited together at least 90 minutes and one of them had to go and I was taken upstairs to a quieter floor. I did phone Paratransit and moved the trip up half an hour because I would have missed it before. I will say both ladies were sweet and thought I was in my early 40s, I thought that was nice as well. I told them closer to mid 50s. I will say my face shows my age between my brows, frown lines there but the rest of my face really does not have much wrinkling. My mom and DB are the same way. When DB shaves and is clean shaven, he does not look his age.
@threetree Thank you, the appointment was just fine, rides went well too. I am in your pocket as well as you navigate treatment going forward as well.
I've decided to order Mcdonalds a bit later, though the cheese slices gave me some protein, I am always a starving Marvin post Herceptin.
Re: Can we have a forum for "older" people with bc?
OK. So now I just need to watch for the warning signs, rather than until I am in a world of pain from my hands to my toes. A bit much at once. I know they are expensive, and thankful my insurance pays for them. A bad sprain from thirty years ago, plus chemo, and probably a nerve lost in knee replacement.
mcbaker
Re: Can we have a forum for "older" people with bc?
Chris, my orthotics last 1-2 years at max. The body weight on them compresses them, sometimes sooner or later. This is what a script had to say for mine to be covered between Medicare and my secondary: One pair customer foot orthotics; coding: 247.89. This is my first time not having to pay for them. Here they’re up to $520, includes the orthotics and as many visits necessary.
At our dermatology appointment yesterday the dr noted my one toenail is coming off. I’ve never lost a nail. This is from the surgery on toes next to it. He says the new nail is under it and it will peel off eventually.
This morning we were up at 5:15 AM; to the gastro office before 6 AM. I went in for the sign in and left for the procedure. We’re about 5-7 minutes away. I picked him up by 8:10. They found 4 polyps, sessile, under 4mm - believed to be benign, and removed them. Follow-up in 3 years for surveillance. Although his son, a gastroenterologist said newer protocol is 5-7 years; he’ll do it again in 3.
I took a “nap” for an additional hour around 9:30; total sleep 4 hrs. SO is in bed now, I don’t think he slept more than an hour last night.
I’ve got a chill. House feels cold but isn’t. It’s probably from lack of sleep. I’m fully dressed, with my fuzzy robe on too - which lets me feel comfortable.
Let’s go JAY’s!! Last night was good.
cindyny
Re: My Husband, My Life, My Love, My Family, My Cancer
@mara51506 I have been getting caught up reading everyone’s posts from the last week or so, even though my own setbacks have kept me from reading & Posting. My dear sweet girl, I saw what you have dealt with in your brain. I am so sorry for all that you are facing.. I’ve also read that @eleanora , you too are going thru cancer bullshit. @irishlove I also want to say thank you for your caring comments. Geese, I’been away from this forum too long. I should have been here all along sharing and updating rather than isolating. We all need this space to share our good and bad stuff we go thru. Thankyou again @cookie54 for reach out to me. It got me out of my own head and back here with my sisters. Also I want to say happy birthday to @micmel ’s Gabby and I love the picture of Theo little Hap Hap Happy dog, He’s a Happy dog🥰🎶. Also I’m thinking of You @intolight @mkestrel @tougholdcrow @tanya_djamila @candy-678 @goldensrbest 🩵💗
@threetree I think of you all the time and pray for what you too are going thru with your liver progression.
I’m still wondering if my new met on my Vestesabulum in the pack of my groin and hip showed up in the latest MRI because I went off the Verzenio for 3 weeks during the summer, due to dental, issues, and also I forgot some doses the week I had the bronchoscopes and radio frequency neck procedures. I et with the Radiology Oncologist at JFK Hospital on Monday morning and he said I may not have to do more than 7 days of radiation. I’m hoping that will knock out the pain in my hip and groin so I can walk without limping and pain. I’m not mentally ready for a Cain or a walker. I still prefer holding on to DH while I’m walking….I have my appointment with my Onc on Monday and also my pulmonologist same day, so I am wondering if my Onc will let me stay on the Verzenio and put me back on the XGeva. It’s all a waiting game for us all. I am here in everyone’s pockets who are struggling with new setbacks, pain and everything that goes with mets. For me, I just want to remain on my usual treatment a bone metastases, and not worry about lung liver and brain progression🫣. Also, You are all in my breath prayers throughout the day.
Re: Can we have a forum for "older" people with bc?
I am following along. I need new orthotics. Those who wear them, how long before you need new ones? This has been two years, and I am back to wearing an ankle brace to get me through the time necessary for my appointment. That is in the city on the third, I will also have the cast sut off and a custom splint for my right hand.
Somehow I have gotten French as well as anglas in my word correct.
Still eager to get some sewing done. I got the coolest knives for cooking ..
Amazon.com: Right Angle Knife 2-Pack – Ergonomic L Shaped Knives with Serrated & Chopping Blades, Adaptive Kitchen Tools for Arthritis : Health & Household Tried the serrated one with my 100% whole wheat bread, but it didn't work. Will try a loaf of 33% ww.
Made some dill pickle flavored potato soup yesterday, and it is as good as ever.
Had my eyes checked this morning, and I am right on the line with cataracts. Next year they should be ready to pop.
mcbaker
Re: Can we have a forum for "older" people with bc?
Petite, what a great idea purchasing the cabin has turned out to be for you. There are two kinds of winterizing. One is the kind we do with our rv in MN. Winterize to leave for the duration of cold weather. We drain the water and run anti-freeze liquid into the pipes. Drain the water from the icemaker. You're wanting to protect your cabin from freezing weather while still using it. I agree with those who advised you to talk to neighbors. Also the local hardware store can probably give you information.
Cindy, hoping for good report from the colonoscopy.
It's sunny this morning and my laptop says 49 degrees outside.
Taco, I played 9 holes of golf yesterday. The course looked really nice after a good rain.
I plan to go to senior exercise at ll:30.
Hi to all.
Re: My Husband, My Life, My Love, My Family, My Cancer
Must be feeling better, looking at wigs on Amazon, the funny thing is, they are different colours from mine, not going to get one now, let the impulse buy thing go away. I still have 4 wigs two of which have never been opened and I am able to poke some of my own hair at sides of head near ears. My own natural brown colour matches the roots of the wig. They are 30 bucks so can decide to save or budget boost for a different one, try out all the different hair styling paste and stuff like that. I will see.