Best Of
Re: Can we have a forum for "older" people with bc?
I got the private message, too.
Harley, I admire your workout. One of my cardio machines at the gym is the upright bike. I like riding all those miles. LOL. I had gotten lax on muscle training, just doing weights in the senior classes, but I keep reading about how important strength exercise is for older people. So I will make an effort to do my own strength exercise routine in the gym at least once a week. Today is a senior class at the gym.
Betrayal, I nominate you for Excellence in Housekeeping.
Cindy, you are awesome. I wondered whether the icemaker would make ice.
My wristwatch gadget says I got almost 2 hours of deep sleep last night. That's a record. Some nights I get only 30 minutes. I like sleeping in a cold bedroom. Last night we turned the thermostat to 58.
Happy Friday to all.
Re: Going flat or breast reconstruction
I just wanted to bolster those that have already replied with my experience of going flat. I had my double mastectomy just this last October. I went from an H cup (I'm a big girl) to nothing. I feel like it was the absolute best decision I have ever made. I may eventually want to add prosthetics to my wardrobe, but I'm kind of loving not having to worry about having my chest in the way anymore. Healing wasn't fun, but it was relatively quick and I won't have to worry about future surgeries.
As a side note, being on the larger side does pose other wardrobe issues. It's really hard for me to find things to wear that work with my now XL sized upper body and my 3xl lower half at the same time. It is all a work in progress though.
At the end of the day, you have to decide how much your body's appearance really matters in your life. I feel, if I am healthy and comfortable in my own skin, it shouldn't matter what my shape is! I hope you find the same clarity and happiness with whichever path you choose.
Re: This sucks - Osteonecrosis of the jaw
@cowgal I've been off Xgeva for over a year. At no point was a relay protocol suggested. Perhaps because I've never been a fracture risk and my bone scans have been "no evidence of active disease" for many years? Nonetheless, I'll ask my MO when I see her in five weeks if I need some sort of bone marker test. I'll let you know what she says. I'll have my nuclear bone scan results at that point as well. Re: confusion. I'm with you. Re: the FB poster. Everyone's situation is different and it's not always helpful to use phrases like "you can't just" and "you have to." No matter what, situations like this remind us to keep asking questions.
Re: TNBC MBC Stage 4
@scgal08 Hi there I have been thinking of you every time I pop on here, it's nice to see you! I'm glad to hear rads are over but sorry your battling fatigue and muscle weakness. I can feel the fatigue through the screen and I wish I could give you an energy boost. I wonder if the tea that Rhonda drinks for energy would help? I'm sorry that you're even dealing with all this. I will do what I can on my end and that is pray for strength and healing as you get back to chemo. Wrapping you in a giant comfort hug!!❤️
cookie54
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
I have made it almost two years on Kisqali/Letrozole/Zometa and my MO is starting to deescalate to fewer appointments, saying that I may become a long-term survivor. No guarantees of course as we all know. I am NEAD and have been for a while. I mostly attribute this to the luck of the genetic draw. I sometimes think that my dad's genes are at war with my mom's genes, since she died of an aggressive cancer before her time. (A marvelous woman, by the way.) My dad is in his 90s. If there is anything beyond biological luck, I can say that I eat healthily (though I have a sweet tooth), walk everyday, do strength training three times a week, challenge my mind with good books and puzzles, have a supportive social circle, plan things for the future like trips, have a drink about once every three months, use THC fairly regularly as a sleep aid, take D3, calcium, magnesium, MSM and turkey tail mushroom powder. I have no idea whether any of these have any effect at all, but who knows.
Re: Ribociclib/Kisqali with Letrozole - Any one on this combo?
@elena_p Really sorry you're going through this. Many of us have had to take some weeks off Kisqali for various reasons (letrozole is doing the heavy lifting) and some of us are moved to a lower dose. The lower dose seems as effective. I've been on 400mg for almost two years. THere are other effective drugs available. So my fingers are crossed for a good outcome for you.
Re: Can we have a forum for "older" people with bc?
Hi everyone!
We want to let you know that we’ve investigated the situation that was reported and have already banned the member responsible for the inappropriate private messages. Thank you, @minustwo, for alerting us!
We take member safety very seriously. If you ever receive a message or see content that feels intrusive or concerning, please report it so we can address it quickly.
The Mods
Re: CT and Lung Nodules
Here for an update. I saw my oncologist today. We went over my PET CT results. Everything was good overall. There was slight uptake on the nodule SUV 1.5. The pulmonologist was able to look at my images from Mayo. They all agree the nodule is there a year ago and it's stable. They feel like we could just watch the nodule but they are willing to do a biopsy if that is what I want, and I do! They don't think it's cancer due to the low uptake and the fact that it's been there a while. So that gives me a big relief.
The rest of my PET CT was good. There was no uptake in my abdomen so they will check on the pancreatic cyst in a year. No uptake in my bones. There was a mild uptake in my cervical lymph nodes but it's likely reactive. I have a stuffy nose and scratchy throat right now so I'm not surprised.
Now I'm waiting for the pulmonologist to get back to me to schedule the biopsy. I'm feeling really good about everything. Except my amazing oncologist is moving so I am going to find a new one. I'm heartbroken. I trust her completely. I hate to have to find someone new.
cmre00
Re: All about Xeloda
@lacombattante Thanks! It's interesting about sauerkraut and I have been eating it after reading about its benefits. I found a recipe for sauerkraut salad, which is sauerkraut, chopped onions, peppers, celery, carrots and apple. The recipe calls for 1/4 c of vegetable oil, but I like to substitute applesauce for oil and I add a bit of sugar. It's healthy and even freezes well.
I saw my oncologist today and I will continue with my Herceptin every 3 weeks and 2,500 of Xeloda at 7/7. My platelets are back up, TG. But my red cells are still very low.
denny123