Best Of
Re: ER-, PR-, Her2+ Roll call
@shorty123 welcome and sorry to have to meet under these circumstances. This is a great group for support. I am 6 months out from my total treatment which included chemotherapy, lumpectomy, radiation and immunotherapy. Not super fun but totally doable. I had lots of side effects but most are gone (my feet still hurt). Please ask any questions, come here often, you will get help. A big hug to you. Donna.
Re: ER-, PR-, Her2+ Roll call
shorty - sorry for your new diagnosis. The same thing happened to me. Double mastectomy with no further treatment necessary. Then two years later - IDC in the residual lymph nodes on one side. Since I was diagnosed ER/PR neg and HER2 positive, my doc was very proactive. TCHP chemo, then surgery, then AC chemo since there were still some nodes that lit up, then radiation, then herceptin. It is certainly doable. I drove myself to each of the 6 hour infusion treatment and all the radiation treatments. If you're still working, I would recommend infusions on Thursday or Friday. I was always tired, but back to work by Mondays. The last treatments were now 11 years ago and I have been fine since. Bi-annual breast ultrasounds show no problems. Good luck.
minustwo
Re: Can we have a forum for "older" people with bc?
Betrayal - cute picture of Regan. The bed looks very comfy.
As far as our pool removal, we are waiting on a quote from the guy who came over on Sunday and we have another guy coming on Friday. I believe our city has an ordinance against filling in inground pools and requires that the pool be completely removed. The removal needs to be permitted by the city so we will have to proceed as the city dictates. We will see.
harley07
Re: Abemaciclib Verzenio for Stage IV
Hello everyone,
I was on Verzenio for two years and I had to take a daily dose of Imodium Multi symptom Relief. Walmart has a generic of it that is much cheaper and just as effective. I had major stomach issues on Verzenio and this was the only thing that helped me. I wanted to share it with you all as something to try.
I also lost hair on the 150 dosage. I've been off of it since March of this past year, and it is very slowly growing back in.
kotchaj
Re: Abemaciclib Verzenio for Stage IV
ok @tbos805 sorry for my repetition! I’m new here and navigating The message boardis still a work in progress! But I appreciate the information on managing the food to help with gut pain
Re: TNBC MBC Stage 4
@cookie54 @scgal08 @nonni2015 and all others reading along - good morning gals! It’s a beautiful almost fall like morning. 62 degrees ! So nice. Off to infusion today, still on weekly so will not be able to join the zoom..
Andrea - enjoy your drive with your hubby. And yes, so true fix one thing and another breaks lol.. it’s a balancing act for sure. Tweak this, shift that, try this, oops not that lol.. so important to keep a sense of humor and love life! Wearing orange today a bright lovely shade with a lime green sleeve linen top, feeling like a bouquet of fall leaves ! 🍁
Went out to dinner with DH to celebrate his birthday and had a glass of sangria with my enchiladas- lol such fun. That’s it for the wine, but it’s so nice every once in a while.
Hugs to all Rhonda
Re: How are people with liver mets doing?
I'm nearly 4 years out with liver mets, still going strong. I've been through several hormonal therapies and half a dozen chemos or so, but my onc says we still have lots of tools in the arsenal. Hang in there!
nancyh
Re: How are people with liver mets doing?
Liver mets from start. Liver covered with spots. Taxol with Herceptin for 5 months. Now just Herceptin. My liver did hurt. I think it depends on how swollen liver gets, not size of body. My liver would hurt after each Taxol. I took that as sign that chemo was worked. My liver enzymes and tumor markers dropped with each treatment. I've talked to 4 women who are more than 10 years out from liver mets.
gonegirl
Re: Ghost and Other Phenomena: What's your Story?
I love this topic, as I have experienced similar things in my life. I think we all do, a kind of sixth sense!
I would include "angels" in this, and I am not one who is a member of any established religion. I have been "warned" about a dog running in front of my car miles before it happened, and so many little things like that in my long lifetime. BTW, I didn't hit the dog with my car because the feeling caused me to slow down and be vigilant.
The incident(s) that were most impactful in my life involved my deceased sister, who died of MDS after having breast cancer and non-Hodgkins Lymphoma at the same time.
It had been almost 16 yrs since my first breast cancer Dx. I went for my mammogram after work, which for me was 3:00 as I worked in a school. I got there early and they took me back right away. I thought "great I will get home early" but that didn't happen. I didn't get home until 7:30 as my mammogram was fine, the US was not. (Dx later as ILC)
*Back ground story: When I was first diagnosed in 2003 my sister gave me a small clear "stone" with a silver angel inside, a year before her diagnosis. I took that angel to all my appointments. It was with me on my surgery day, through all my chemo, and radiation treatments. it reminded me that no matter what, I was loved by so many! Years later, I had a student who was having a huge issue with anxiety. I told her about the angel stone and gave it to her to carry with her and remind her that no matter what, she was loved. I searched for years for another stone like that one and while I saw similar ones, not one like that!
So, while I was waiting for my records to be copied, the nurse navigator came out and said she had something for me, she handed me a little box, inside was a velvet bag and inside the bag was an angel stone EXACTLY like the one my now deceased sister, had given me! I KNEW my sister was with me! I felt her presence so many times since them, especially when I was diagnosed for a third time in 2022.
Call them ghosts, angels, whatever. These phenomena exist and I am glad they do!
Re: Faslodex Girls Thread
thanks for the responses…I had just started Truqay and I had every side effect with that drug..ended so dehydrated, rash, etc, fever..in hospital 2 days…still haven’t recovered totally…getting 2nd shots today..could not tolerate Kisqali and one other…on Ibrance 8 yrs with no progression