Best Of
Re: Newly diagnosed with bone mets
Thank you, @tbos805. I feel much better reading your story. I feel much better knowing that the biopsy anesthesia was terrific and that I will be okay!
Since I wrote, I've seen the onc. She ordered a biopsy and radiation consult. She also started me back on an AI and an oral bisphosphonate once weekly. If the biopsy comes back with the original ILC ER+ PR+ markers, I will then start on Kisqali and IV Zometa. I've been put on crutches until I get past the radiation. It's helping the pain tremendously.
I've scheduled two radiation consults this week, so that I have a choice. I'm still waiting to hear from interventional radiology about the biopsy. I hope that doesn't hold things up.
By the way, my son and DIL live in Seattle. When he first moved there, I went for sort of a 2nd opinion at Fred Hutchinson/Seattle Cancer Care Alliance. I loved that place. I'm now living in Portugal. I was wondering if you are going to SCCA.
Re: Newly diagnosed with bone mets
Hi, @mary625 and all. I (age 66) have a very similar situation to yours, Mary, diagnosed at the end of January this year - BC recurrence from 2010, bone mets only. The absolute worst part for me was the two weeks between the "bone lesions consistent with metastatic disease" MRI report and not seeing my oncologist until over two weeks later after more scans, tests, and the biopsy she wanted before seeing me. NOBODY telling me I was going to be okay, there is treatment for this, etc. I had visions of mastectomies and chemo (again) running through my brain. So let me be the one to tell you YOU ARE GOING TO BE OKAY!!! I started two weeks of daily radiation immediately on the two painful areas on my spine and that took care of the pain within a few weeks (I had mostly spine and pelvis and ribs mets but did have a spot radiated one time on my femur). Laying on my back on that hard surface in radiology brought tears of pain to my eyes and the radiologist did tell me, "You are going to feel better!" And he was right. The markings for radiation are even easier than 15 years ago. My biopsy was in the hip/pelvis bone, laying on my side, awake but the anesthesia was terrific, no pain, and really no pain afterward, either. I have been on twice-daily Verzenio 100 mg, monthly Faslodex injections, and 3-month Zometa bone infusions since completing radiation. I have been coping and managing with the G.I. and diarrhea issues, to be honest, since starting the drug treatments on Feb. 21. So I am a little over six months in with the drug treatments, have been in physical therapy to rebuild strength and stamina (after a year of decline from pain we all thought was caused by worsening scoliosis from bone loss due to years of Tamoxifen and Arimidex) and I am doing my home exercises, progressing, getting stronger, walking 2 miles a day and building on that, keeping up with my normal activities again. I'm just hoping my G.I. issues are under better control and I can travel again soon, injections and infusions schedules permitting. You are going to be okay!!!
tbos805
Re: Can we have a forum for "older" people with bc?
I slept a good amount of time for the last 2 nights. So I’m hoping I’m getting reoriented to being home. It feels like it took a long time.
I went out today and bought a new leather reclining sofa. Current one is LazyBoy, the area where your back rests has a big slice in it, and another hole where the leather just gave way. I think it’s near 15 years old, but for 10 of them we’ve only been here 1/2 the year. I expected more, so disappointed.
The new one sits off the floor on legs, vs metal frame. I’m hoping the robot vacuum will fit under there (lazy!). Delivery is 9/8. Now to get rid of the old Natuzzi leather reclining sofa on the front porch. The old LazyBoy will go out on the enclosed porch. The Natuzzi one I’m hoping someone can use it in their basement or like I had it on an enclosed front porch. Asking family first, then I’ll put it on FB Marketplace - free, get it out of here. .
Never touched the mini chainsaw today. Picked up grandniece to run with me to buy the couch, stopped at Aldi’s, and took her to Chipotle. I’ll start on another bag full of burnt wood tomorrow; one bag is in the bin for pickup tomorrow.
Temps today were similar to yesterday but cloudy all day. Tomorrow it says 77 & sunny, we’ll see!
Hope you all had a good holiday weekend.
Re: مشاكل النوم
@entisarseed71 مرحبا وحياك بالمنتدى
العلاج اللي أنا اخذه مختلف بس نفس الشي سبب لي مشكلة بالنوم بسبب وقف المبايض والهبات الساخنة .. جربتي مثلا تمارسي رياضة او استشرتي الطبيب إذا ممكن تاخذي مكملات غذائية مثل الماغنيسيوم ممكن تساعد على النوم؟ أنا هالاشياء ساعدتني خاصة الرياضة
Re: 13 Years Since Breast Cancer Diagnosed in 2012 - Where are you now?
Hi Margaret - I started visiting early in 2012 (I think), having been dx with my second round of breast cancer, 19 years after thr first! So all told, I’ve been a survivor for upwards of 33 years! I consider myself lucky and blessed. Best wishes to you!
