Best Of
Re: Abemaciclib Verzenio for Stage IV
@marcials1 I’m so sorry to hear about the metastasis. Do keep us posted on how you are doing. I hope you’re getting the support you need from those around you. Hugs and prayers.
Ladies, I also found gas-X helpful for the cramps on Verzenio. My solution to the protein problem probably isn’t for everyone but I used a meal substitute protein beverage (Premier Protein at Walmart or Sam’s). I tried to limit it to only one meal a day, but on the rdays I just couldn’t stomach food, it got me 90g of protein I could tolerate.
I switched from 150 to 100 on Verzenio early in my treatment. I was having so much trouble with the big D that I had taken a drug vacation without consulting my MO. At my next visit, we discussed it and she told me that there had been study results showing equal if not better results on 100mg and the suspicion was that patients took the medication more consistently on the lower dose. I never asked for the name of the study because it made perfect sense to me that taking the medication consistently without breaks would be more effective.so the information may have originated with me and I apologize for not getting more information. I’ll ask at my next appointment and report back.
Hugs to everyone.
Re: Can we have a forum for "older" people with bc?
@betrayal what a cute dog! When I played softball our shortstop had a Dalmatian named Dexter. He was pretty old but loved Mountain Dew. Not sure soda was good but he loved it. He also drank water.
Regan looks comfy.
Re: Can we have a forum for "older" people with bc?
Betrayal - have a fabulous vacation in Alaska!
harley07
Re: My Husband, My Life, My Love, My Family, My Cancer
Glad to hear the celebrex is beginning to work. Thankful that I had my right hip replaced just prior to my initial diagnosis. The left hip is bothering me, but hoping it holds out although MO said if I want to have it replaced, now would be the time. Not concerned about the surgery, but very anxious about the long break from Kisqali that would be required. I have several friends who live alone and did not go to rehab after surgery, but like you, I think I would want two weeks or so. It's not that you can't get around (I walked and went up and down steps within hours of surgery) - it's the fear of falling or some other emergency when you're not at your full strength.
So sorry about Gamble passing. The unconditional love these creatures give us is priceless. Glad it was an easy death for her.
Sorry about your heat-stroke incident. Sounds like you handled it extremely well and have plans in place to deal with the problem going forward. I had several instances this summer where I felt weak and dizzy from the heat, but it never quite reached what you experienced. The treatments and medications lower our ability to thermoregulate along with so many other issues.
eleanora
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Ruth, I taking a cruise to Alaska with DD. Hope we have good weather.
betrayal
Re: how about drinking?
A fine pinot noir was enjoyed by me tonight with homemade ravioli in rose sauce at our favorite Italian place. 🍷
Love the hot springs!
Re: How are people with liver mets doing?
Sending positive thoughts and virtual hugs as you wait for your MO appointment. In your pocket ❤️
eleanora
Re: How are people with liver mets doing?
Oh, luckyladyinpa, thanks for answering and I am sorry you have to be here with us. It is a club where no one wants to be but it has best people and knowledge pool in the world! Many hugs, Saulius
bsandra
Re: Stage IV MBC Fitness
So glad you made the reservation for 2026. Having something like that to look forward to can be incredibly helpful on the not so good days.
The retreat sounds awesome. Wish there was one on the East Coast.
eleanora