Best Of
Re: Can we have a forum for "older" people with bc?
Cindy, the garbage dump (can't think of a better term) in Park Rapids, MN, has an area where people put usable items they want to get rid of. I haven't been there, but dh has. I think some local people go there to "shop." We have some charity places here where people donate furniture and clothing and kitchen items. I like the idea of recycling.
On Monday and Tuesday mornings, the forecast is for freezing temperatures in the teens. We will have to run a dribble of water in the kitchen sink. Plumbers will be busy for a week or two repairing broken water pipes. Even the "south shore" of Lake Pontchartrain including New Orleans will have to protect pipes. Normally it's just the north shore.
Enhertu questions and experiences
Hello,
My original diagnosis in June 2022 was Stage IB (T2N1mi)
ER-93%
PR-70%
HER2 - (2+ by IHC 1.0 by FISH )
Ki-67-80%
I did lumpectomy and breast reduction, 4 rounds of TC, and anastrozole switched to fulvestrant due to side effects.
In April of 2025, my CA27-29 spiked and imaging was ordered. Signaterra negative for ctDNA (thought I was in the clear). Recurrence in lung was confirmed metastatic late May. ER- 55%, PR-3%, HER2- (1+ by IHC, 1.2 by FISH). Ki-67 not done. Not enough tumor for NGS. Started ribociclib June 19 (almost 60 days post tumor marker spike). Additional blood biopsy at MDA still negative for ctDNA. Completely asymptomatic. Tumor markers kept rising. Thoracoscopy 8/20 confirmed lung and pleura progression. ER-60%, PR negative, HER2 ? (2+ by IHC, FISH pending) Ki-67-90%
Headed for chemo to stop things growing. Was going to go nuclear option and do AC-T to wipe things out and then do fulvestrant and Verzenio to keep things at bay. After meeting with 2 med oncs and talking to a cancer biologist, I think I’m headed for Enhertu instead as it seems to have higher efficacy. My question is how many rounds or do you just take it indefinitely until progression? Has anyone on here had a complete pathological response with Enhertu? What are side effects like? Has anyone here been on Enhertu for > 12 months? I am interested in any/everyone’s experience…
aaldupre
Re: My Husband, My Life, My Love, My Family, My Cancer
@intolight I am so sorry that you are losing your hair. I hope the chemo eliminates all those lesions. Prayers for your daughter as she travels and works on this challenging weekend. God's peace to you.
Re: My Husband, My Life, My Love, My Family, My Cancer
BONE SCAN came out no changes everything stable😉🥳
@irishlove I always wouldget so frustrated after typinga paragraph comment her and then suddenly lose it. then I just don’t want tostart all over again with the same thought. so what I do now when I post here is I drag the curser over the paragraph hit select all and copy so it is saved in my iPad’s memory and if I lose it I go back to the comment space and hit paste, and the whole paragraph is restored.
@mara51506 It’s great that you are back into your schedule around the house and getting the things done that you want. Also your SiL helping you. It makes me happy to read your positive comment about being back home.🥰
@sf-cakes thank you for your caring comments.🌷
@mkestrel Happy Anniversary to you and Hubby.♥️
@goldensrbest I’m glad you have recovered from the winter Flu, it’s awful having to endure it. Feel better girl
@chicagoan @candy-678 @cookie54 I’m hearing we are all going to be dealing witha huge snowstorm this weekend. Please everybody stay warm and safe. thinking of you @micmel 🌷🩵 @norah2024 @threetree @xsuzx @illimae @intolight @tougholdcrow @tanya_djamila
@eleanora @emac877 @going2beatthis @gailmary @malebreastc @rlschaller @wren44 @weninwi and everyone here thinking of you all. I light a candle for you all every night before bed and saya prayer that each and every one of you positive painfree restful days. 💗
shanagirl
Re: All about Xeloda
@threetree I've been on Xeloda for 2.5 cycles so far so not that far ahead of you.
I usually get a soar throat around the 6 day mark on the first week and my gland under my left armpit gets sore close to where my tumor sits so Oncologist said that's a good thing.
I had some nerve issues the first cycle which are gone now but I do notice that my muscles tend to get a bit tired and sore after pickleball. I don't get too tired overall as my nutrifils are staying in the 2.4 range whereas when I was on Ibrance they were 0.7 super low and I was tired all the time. Everyone is different and I get regular diarrhea daily from xeloda which I handle by taking immodium quick dissolve pills and that allows me to leave the house 🤪
I found some info on robaxacet in the US I will attach. I live in Canada so it's over the counter for me.
bigred62
Re: All about Xeloda
It’s important to note that I only take it occasionally and only at bedtime because it can make you drowsy
aj
Re: My Husband, My Life, My Love, My Family, My Cancer
@shanagirl Great news about your bone scan! Onward-you may very well make it to your eighties😄
Re: My Husband, My Life, My Love, My Family, My Cancer
The stitches are out, they were not staples, had to disinfect my sewing scissors, cut them first and then use disinfected tweezers to pull them out and disinfect area once done. I am glad they are gone. Giving it a day or two before I wear my wigs
Re: Trodelvy - Looking for positive feedback
My Mom took Trodelvy for a while. She managed the symptoms well. They did lower her dose once. But overall, she would have a couple days she didn't feel well then bounced back and did good. She has constipation which is her norm. Not much diarrhea.
sjtrout1
Re: My Husband, My Life, My Love, My Family, My Cancer
@chicagoan The nurse called back after my initial call, no need to worry about infection, they are bringing the alcohol swabs to wipe down my staples and a clean staple remover. They are coming around 10 am. Once staples out, can go back to wigs.