Best Of
Re: Can we have a forum for "older" people with bc?
chrisandy, sounds like N O is not treating you very special this year. Hopefully things will improve. My one and only time there was just about the same timing. We arrived during the pre-parade and our hotel was on the other side of the street where we couldn't cross, but the taxi wouldn't drive around. So we ran around on foot until we finally found a break in the street where we could cross dragging our suitcases behond us. I was struggling from my cancer med and kept having to sit down so it was not fun. My DG had a conference and I was on my own for the next two days fully expecting to take it easy. I had fun touring, listening to the music, walking the quarters, and we did enjoy all the food. Ah, memories!
Re: My Husband, My Life, My Love, My Family, My Cancer
I must say having the heater out here is very helpful, just need to turn it off when using something else there. For now it is very helpful and warm. Plan to turn off at night though. It is really very cold.
Anyone affected by the storm they are calling for are in my pockets as well, that is a wide swath for the snowstorm to affect.
Re: Can we have a forum for "older" people with bc?
Chris, your BC was ER-, so lactating or lack thereof had no bearing on your risk.
Not a very productive day. Bob let me sleep till noon. He came back up about 1pm after brunching at Cafe Beignet (didn’t bring back beignets, as he had a crawfish omelette with grits). I had the leftover shrimp (peeled off the batter coating), lettuce & tomato from yesterday’s shrimp po-boy as my brunch. He went to take a walk down Bourbon, had a couple of Hurricanes at Pat O’Brien’s and wisely decided to forgo the casino due to that. He is searching for a set of scrubs he saw yesterday in Mardi Gras colors. I never got to the panels or exhibit hall, as I had to deal with a bazillion texts from our helper back home, and preregistration (including 3 annoying surveys) for my Medicare Wellness visit Tues. Also spent some time writing a song for tonight’s circle—not easy without an instrument. (And memorizing it is harder still—have to keep repeating it). Went downstairs for a cafe au lait and beignets (got through only one of three, and wisely deployed lots of napkins to protect against the powdered sugar). Came back up to drop off the leftovers—and found the Exhibit Hall closed. No big loss—this year there were no instrument or accessory vendors and certainly no swag as in years past (former conferences were my main sources of free strings, capos, picks, etc.).
Now it’s pouring & thundering. Trying to reach Bob to tell him to come back to the room—not answering my texts and his phone goes to voicemail (bet he forgot to charge it). He wants to go to Redfish Grill tonight, but I don’t know when to make the reservation.
chisandy
Cold Caps Users Past and Present, to Save Hair
Hi all, I wanted to start a forum for all us that are using the cold caps to try to save our hair. I am on FEC100 X3 followed by Taxotere X3. My dosage unfortunately is not a guaranteed success. I am 40 days out from my first treatment and will have my third June 17. So far I have thinned but have not required a wig. I have no bald spots; however, around my right ear is the thinnest..I think because the cap wasn't tight there. All in all, I am pleased to still have a good covering. If you are using or have used the Cold Caps, I would love to hear your experience. Take care, Candy
Can-D
Re: My Husband, My Life, My Love, My Family, My Cancer
I did bring out my heater from the bedroom and turned it on HI, already feeling the warmth. Just waiting on Walmart, got immodium, pizza and texas garlic toast. Should be here by around 1pm. That will be my dinner meal. I have also ordered new LED bulbs because the living room one is dull and cannot find the other ones I had. New ones come Monday, they are 13 W which are the equivalent 100 bulbs as I find the living room really dull.
Re: My Husband, My Life, My Love, My Family, My Cancer
Irish - your goulash sounds yummy. I might have to take my slow cooker out, haven’t used it in years. Love cooking. It’s like making art, picking the colors, chopping into shapes, and the tastes… my tastebuds have changed over the years with chemo, it savoring food is still a pleasure. Agreed about hope! I like to read in Nature about the cancer trials and new discoveries, a lot of good work being done on the horizon.
Mara- so glad you are healing so quickly. Your level of energy and upbeat approach to the day to day is awesome, and fun to read.
Intolight- sorry about the disappointing PET scan. Two infusions are not a lot, so glad you can stay on the chemo for awhile to see if it works over time. And yeah that it is tolerated, all the better.
Stay warm and safe , wishing everyone in the path of the storm electricity that does not go out, and warm homes to wait it out.
Re: Contemplative practices - Affirmations, white light visualizations, healing meditations
l enjoy entering the MBTA northbound at the Kendall/MIT stop because of the art display of holographic star images. Feeling part of such a vast universe is calming.
maggie15
Re: I say YES. YOU say NO....Numero Tre! Enjoy!
Life is an accomplishment and each moment has a meaning and you must use it.
betrayal
Re: How are people with liver mets doing?
@ailurophile I have no experience with liver ablation. I was on Faslodex for a number of years. I didn't like it but tolerated the shots just fine. Make sure the nurses push the med real slow. It should take a couple of minutes for each shot. I didn't have any bad SEs other than the usual fatigue. Everolimus and I didn't get along well so I was only on it for a short time, but everyone reacts differently. I just wanted to respond to let you know you were heard. Best of luck with your new plan. I hope it all works well for you.
Re: My Husband, My Life, My Love, My Family, My Cancer
Checking in from my high spot in Texas. 41 degrees here but the cold is moving up the mountain to me as I type. All good though, I’ve got electric and propane heat, food for weeks and of course, a beach bar on my property. No snow yet but likely later today, we’ll see. I hope everyone is comfy and warm this weekend.
illimae